Experiences, challenges and perspectives for ensuring end-of-life patient care: A national online survey with general practitioners in Germany(1515 Tielker JM, Weber JP, Simon ST, Bausewein C, Stiel S. Schneider N. Experiences, challenges and perspectives for ensuring end-of-life patient care: a national online survey with general practitioners in Germany. Plos One. 2021;16(7). https://doi.org/10.1371/journal.pone.0254056
https://doi.org/10.1371/journal.pone.025...
) |
2021 |
Describe the experiences, strategies and challenges faced by physicians in COVID-19 care. |
Remote communication has become the main strategy to keep the patient close to the family even during hospital isolation. This strategy gained evidence by ensuring not only the humanization of care, but human dignity at the end of life, giving patients and family members the opportunity to be close. |
Qualitative exploratory study |
Creating a Palliative Care Inpatient Response Plan for COVID-19 The UW Medicine Experience(1616 Fausto J, Hirano L, Lam D, Mehta A, Mills B, Owens D. Creating a palliative care impatient response plan for COVID-19: the UW Medicine Experience. J Pain Symptom Manage. 2020;60(1):e21-e26. https://doi.org/10.1016/j.jpainsymman.2020.03.025
https://doi.org/10.1016/j.jpainsymman.20...
) |
2020 |
Share strategies created by health professionals in the implementation of high-quality palliative care in the context of contingency and crisis as a result of COVID-19. |
The speed with which the contingency plan was instituted for the care of patients without palliative care during the height of the crisis proved to be largely effective in relieving severe symptoms, supporting family members, especially in the use of remote approaches. |
Descriptive-exploratory study |
Palliative Care Interventions from a Social Work Perspective and the Challenges Faced by Patients and Caregivers during COVID-19(1717 Dhavale P, Koparkar A, Fernandes P. Palliative care interventions from a social work perspective and the challenges faced by patients and caregivers during COVID-19. Indian J Palliat Care. 2020;26(Supl-1):58-62. https://doi.org/10.4103/IJPC.IJPC_149_20
https://doi.org/10.4103/IJPC.IJPC_149_20...
) |
2020 |
Describe challenges faced by patients under palliative care and their caregivers during COVID-19 pandemic restrictions and what interventions are provided by the team to face these conditions. |
It highlights the positive lessons experienced by a palliative care team, with an emphasis on support strategies, highlighting the importance of maintaining contact between the family and patients, even remotely, especially in times of gravity and grief. |
Qualitative exploratory study |
Lessons Learned from caring for patients with COVID-19 at the end of line(1818 Rao A, Kelemen A. Lessons learned from caring for patients with COVID-19 at the end of life. J Palliat Med. 2021;24(3):468-471. https://doi.org/10.1089/jpm.2020.0251
https://doi.org/10.1089/jpm.2020.0251...
) |
2021 |
Describe the experiences of a multidisciplinary team in palliative care when living with the death of patients infected by COVID-19 |
It is concluded that to face challenges, such as the pandemic, palliative care teams must adapt quickly, be agile, innovative and open to new ideas. Care strategies such as those presented here, through remote visits and phone calls, helped to mitigate the distance between patients and their families, alleviating distance, the death and dying process and anticipated grief. |
Descriptive study |
“Why Couldn’t i go in to see him?” Bereaved families’ perceptions of end-of-Life communication during COVID-19(1919 Feder SAPRN, Smith DMS, Griffin HMPH, Shreve ST, Kinder DDO, Kuntney-lee A, et al. “Why Couldn't I Go in To See Him?” bereaved families perceptions of end-of-life communication during COVID-19. J Am Geriatr Soc. 2021;69(3):587-92. https://doi.org/10.1111/jgs.16993
https://doi.org/10.1111/jgs.16993...
) |
2021 |
Analyze the perceptions of bereaved families about the quality of end-of-life communication between health professionals during the COVID-19 pandemic |
The study shows that low-quality communication increases suffering and affects the quality of dying and mourning. The results underscore that remote communication at the end of life was an excellent strategy to maintain access to the team, families informed and close through face-to-face contact with terminally ill patients. In addition, it is also the most significant strategy given the limitations and restrictions imposed by the pandemic. |
Descriptive-qualitative study |
Learning a palliative care approach during the COVID-19 pandemic: A case study in an Infectious Diseases Unit(2020 Tanzi S, Alquati S, Martucci G, Panfilis de L. Learning a palliative care approach during the COVID-19 pandemic: A case study in an Infectious Diseases Unit. Palliative Medicine, Italy, vol. 34(9), 2020. 1220-1227 p. Available from: https://doi.org/10.1177/0269216320947289
https://doi.org/10.1177/0269216320947289...
) |
2020 |
Describe the consultation and assistance intervention of a palliative care unit during the COVID-19 pandemic, determining which changes are necessary for palliative care provision. |
It was identified that some elements of conventional palliative care that needed to be readapted in the pandemic scenario: Improvement in communicating bad news; optimization and use of communication devices; agility in critical interventions and guarantee of a peaceful death in the hospital. |
Descriptive-qualitative study |
Communication and virtual visiting for families of patients in intensive care during the COVID-19 pandemic: A UK National Survey(2121 Rose L, Yu L, Casey J, Cook A, Metaxa V, Pattison N, et al. Communication and virtual visiting for families of patients in intensive care during the COVID-19 pandemic: a UK National Survey. ATS J. 2021;18(10). https://doi.org/10.1513/AnnalsATS.202012-1500OC
https://doi.org/10.1513/AnnalsATS.202012...
) |
2021 |
Understand how communication between family members, patients and ICU staff during the pandemic was made possible and explore the strategies used to facilitate virtual visit |
There were changes in the way ICU teams began to communicate with patients’ families during the pandemic, some created communication teams and others adopted a virtual visit system. The therapeutic benefits of these alterations went beyond the informative and emotional support to the family, becoming an essential aid in patients’ recovery, in the team grieving process and morale. On the other hand, a barrier to be considered in the implementation of these resources was also evidenced, the lack of access or ability of many families to these virtual devices, which, instead of bringing them closer, can segregate them. |
Cross-sectional study |
Hearts above water: Palliative care during a pandemic(2222 Currin-Mcculloch J, Chapman B, Carson C, Fundalinkski K, Hays M, Budai P, et al. Hearts above water: palliative care during a pandemic. Soc Work Health Care. 2021;60(1):93-105 https://doi.org/10.1080/00981389.2021.1885562
https://doi.org/10.1080/00981389.2021.18...
) |
2021 |
Describe the aspects involved in nursing approaches during palliative care assistance that were structured to foster humanistic patient and family care amidst social distancing and visitation restrictions in the context of the COVID-19 pandemic. |
After experiencing numerous challenges during the COVID-19 pandemic and realizing the need for knowledge regarding advance directives and knowledge about the death and dying process, palliative care teams began to engage in the dissemination of preventive information, especially in relation to advance directives, and emphasize the importance of talking about the subject in families, in the community, hoping to raise awareness of the need for advanced planning that will certainly help in new crises like these. |
Qualitative exploratory study |
Urgent creation of a palliative care team in a small hospital during the COVID-19 crisis(2323 Martinez N, Tanev H, Gurevitvh S, Davis C, Cazeau M, Mehta J, et al. Urgent creation of a palliative care team in a small hospital during the COVID crisis. Am J Hospice Palliat Med. 2020. https://doi.org/10.1177/1049909120975191
https://doi.org/10.1177/1049909120975191...
) |
2020 |
Present the structuring of a palliative care service in order to support critical patients with COVID-19. |
It is possible to structure a palliative care service quickly in crisis situations, even with little structure and in an emergency way, through cooperation, resources and teamwork, in order to offer support to patients and their families. The organized service facilitated service strategies, with goals and screening of emergency cases, prioritizing those most in need and optimizing the service. In this way, all patients and family members received adequate treatment, especially in terms of communication and contact, even in a remote format. |
Qualitative descriptive study |
Beyond the mask: a multidisciplinary reflection on palliating patients with COVID-19 receiving continuous positive airway pressure ventilation(2424 Hough A, Dell GD, Blaber M, Kavanagh D, Lock A. Beyond the mask: a multidisciplinary reflection on palliating patients with COVID-19 receiving continuous positive airway pressure ventilation. Int J Palliat Nurs. 2020;26(7):336-40. https://doi.org/10.12968/ijpn.2020.26.7.336
https://doi.org/10.12968/ijpn.2020.26.7....
) |
2020 |
Describe the experiences of professionals working in a respiratory clinical treatment unit for patients with COVID-19 in the development of guiding strategies on the cessation of respiratory ventilation when this intervention is no longer effective. |
The arduous challenges that the pandemic provoked in health services, in a way, also left many lessons learned, especially on how to offer palliative care in a set of serious and emergency circumstances. Thus, it is extremely necessary that palliative care be widely discussed by a multidisciplinary team, including family members and the patient, this dynamic requires preparation, a personalized approach on a case-by-case basis, recognizing who is behind the masks and what their real needs are. |
Descriptive study |
Preparing a young palliative care unit for the COVID-19 pandemic in a teaching hospital in Ghana(2525 Ofosu-Poku R, Anyane G, Agbeko AE, Dzaka AD, Owusu-ansah M, Appiah MO, et al. Preparing a young palliative care unit for the COVID-19 pandemic in a teaching hospital in Ghana. Palliat Support Care. 2020;18(4):400-2. https://doi.org/10.1017/S1478951520000498
https://doi.org/10.1017/S147895152000049...
) |
2020 |
Present strategies and suggestions to deal with the palliative care needs of critically ill patients with COVID-19 and their families, based on the experiences of a palliative care team in a hospital in Ghana-Africa. |
The shared experiences in creating, quickly and urgently, a palliative care sector for patients in serious and irreversible situations of COVID-19, reveal positive and innovative strategies, such as communication and remote approximation between patients, family members and health professionals throughout the care phase and also in the grieving process. Sharing these experiences is a stimulus to other services demonstrating that it is possible to reorganize and readapt to deal with palliative care needs in emergency situations. |
Qualitative exploratory study |
Preparedness to Face the COVID-19 Pandemic in Hospice and Palliative Care Services in the Asia-Pacific Region: A Rapid Online Survey(2626 Lin C, Boufkhed S, Kizwa Y, Mori M, Hamzah E, Aggarwal G. Preparedness to Face the COVID-19 Pandemic in Hospice and Palliative Care Services in the Asia-Pacific Region: a rapid online survey. Am J Hosp Palliat Care. 2021;38(7):861-8. https://doi.org/10.1177/10499091211002797
https://doi.org/10.1177/1049909121100279...
) |
2021 |
Assess the readiness and capacity of palliative care services in the Asia-Pacific region to care for patients with COVID-19. |
There are countless changes that occur in the lives of those who experience the consequences and mishaps of COVID-19 in the terminality of life. That is why it is essential that palliative care be quickly integrated into this assistance, this work. Recommendations are listed, important and fundamental, to be followed for the strengthening and foundation of palliative care services. |
Cross-sectional study |
Visitor Restrictions, Palliative Care, and Epistemic Agency: A Qualitative Study of Nurses Relational Practice During the Coronavirus Pandemic(2727 Mcmillan K, Wright DK, Mcpherson CJ, Ma K, Bitzas V. Visitor restrictions, palliative care, and epistemic agency: a qualitative study of nurses’ relational practice during the Coronavirus Pandemic. Glob Qualit Nurs Res. 2021;8. https://doi.org/10.1177/23333936211051702
https://doi.org/10.1177/2333393621105170...
) |
2021 |
Understand the ethical issues that palliative care nurses experience as a result of circumstances related to COVID-19 and how they deal with these issues. |
Professionals from different areas of health experienced numerous negative consequences during the worsening of the pandemic. In this way, when going through these tensions, they made an effort to maintain fundamental and ethical values in their practices, engaging to integrate safety and humanity in their work, strengthening the practices advocated by palliative care, enabling an end of life with comfort, quality and bringing together (even if remote) patients and family members at the time of departure. |
Qualitative descriptive study |
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