Qualidade de vida nos doentes ostomizados – estudo usando o questionário <i>Stoma-care QoL</i> – influência de alguns dados clínicos e demográficos na QoL

Silva, José O.; Gomes, Pedro; Gonçalves, David; Viana, Charlene; Nogueira, Fernanda; Goulart, André; Leão, Pedro; Mota, Maria José; Peixoto, Palmira; Rodrigues, António Mesquita; Martins, Sandra F.

doi:10.1016/j.jcol.2018.10.006

José O. Silva

Centro Hospitalar Médio Tejo, Departamento de Urologia, Torres Novas, Portugal

Pedro Gomes

Universidade do Minho, Escola de Medicina, Braga, Portugal

David Gonçalves

Universidade do Minho, Escola de Medicina, Braga, Portugal

Charlene Viana

Hospital de Braga, Braga, Portugal

Fernanda Nogueira

Hospital de Braga, Departamento de Cirurgia Geral, Unidade de Coloproctologia, Braga, Portugal

André Goulart

Hospital de Braga, Departamento de Cirurgia Geral, Unidade de Coloproctologia, Braga, Portugal

Pedro Leão

Hospital de Braga, Departamento de Cirurgia Geral, Unidade de Coloproctologia, Braga, Portugal

Universidade do Minho, Escola de Ciências da Saúde, Instituto das Ciências da Vida e da Saúde (ICVS), Braga, Portugal

Instituto das Ciências da Vida e da Saúde (ICVS)/3B's Laboratório Associado-UMinho, Braga, Portugal

Maria José Mota

Hospital de Braga, Departamento de Estomaterapia, Braga, Portugal

Palmira Peixoto

Hospital de Braga, Departamento de Estomaterapia, Braga, Portugal

António Mesquita Rodrigues

Hospital de Braga, Braga, Portugal

Sandra F. Martins ^**Corresponding author. E-mail: sandramartins@med.uminho.pt (S.F.Martins).

Hospital de Braga, Departamento de Cirurgia Geral, Unidade de Coloproctologia, Braga, Portugal

Universidade do Minho, Escola de Ciências da Saúde, Instituto das Ciências da Vida e da Saúde (ICVS), Braga, Portugal

Instituto das Ciências da Vida e da Saúde (ICVS)/3B's Laboratório Associado-UMinho, Braga, Portugal

*Corresponding author. E-mail: sandramartins@med.uminho.pt (S.F.Martins).

Conflicts of interest

The authors declare no conflicts of interest.

Tabelas (4)

Thumbnail

Table 1
Characteristics of the study population.

Thumbnail

Table 2
Comparison of QoL total score according to clinical data.

Thumbnail

Table 3
Domain analysis (SeSi Score, FF Score, SF Score, and DeF Score) according to sex, age group, primary disease, emergency or elective surgery, stoma duration and type of stoma.

Thumbnail

Item Always (1) Sometimes (2) Rarely (3) Never (4) I become anxious when the pouch is full DeF score I worry that the pouch will loosen I feel the need to know where the nearest toilet is I worry that the pouch may smell SeSi Score I worry about noises from the stoma SeSi Score I need to rest during the day SF score My stoma pouch limits the choice of clothes that I can wear SeSi Score I feel tired during the day SF score My stoma makes me feel sexually unattractive SeSi Score I sleep badly during the night SF score I worry that the pouch rustles SeSi Score I feel embarrassed about my body because of my stoma FF Score It would be difficult for me to stay away from homeovernight It is difficult to hide the fact that I wear a pouch I worry that my condition is a burden to people close to me I avoid close physical contact with my friends My stoma makes it difficult for me to be with other people I am afraid of meeting new people I feel lonely even when I am with other people I worry that my family feel awkward around me

	n (%)
Age, mean
<70 years	32 (58.2)
≥70 years	23 (41.8)
Sex
Male	36 (65.5)
Female	19 (34.5)
Primary disease
Malignant	50 (90.9)
Benign	5 (9.1)
Surgery
Elective	37 (67.3)
Emergency	16 (29.1)
NA	2 (3.6)
Stoma duration
<12 months	35 (63.6)
≥12 months	20 (36.4)
Type of stoma
Colostomy	29 (52.7)
Ileostomy	18 (32.7)
Urostomy	8 (14.5)

	Total score
	Median	IQR	p
Sex			0.15
Male	62.0	18.5
Female	57.5	11.0
Age (years)			0.93
<70	60.0	15.3
≥70	59.0	19.0
Primary disease			0.07
Malignant	61.0	16.8
Benign	57.0	21.5
Surgery			0.94
Elective	60.0	18.0
Emergency	59.0	7.0
Stoma duration			0.4
<12 months	58.0	15.8
≥12 months	62.0	19.0
Type of stoma			0.01
Colostomy	58.0^a	13.0
Ileostomy	59.0^b	18.5
Urostomy	71.5^a,b	6.3

	SeSi Score			FF Score			SF Score			DeF Score
	M	IQR	p	M	IQR	p	M	IQR	p	M	IQR	p
Sex
Male	15.5	7.0	0.12	31.5	7.5	0.56	8.5	6.5	0.06	7.0	4.0	0.37
Female	12.0	5.0		31.0	5.0		6.0	5.0		7.0	3.0
Age (years)
<70	13.0^a	6.8	0.03	31.0	6.0	0.78	8.5	4.8	0.09	8.0	4.0	0.35
≥70	17.0^a	4.5		31.0	7.0		6.0	6.5		6.0	3.0
Primary disease
Malignant	15.0^a	6.0	0.03	31.5^a	5.8	0.02	7.0	6.0	0.92	7.0	3.8
Benign	11.0^a	6.5		28.0^a	11.5		8.0	4.5		7.0	5.5	0.54
Surgery
Elective	15.0	6.0	0.87	31.0	6.5	0.77	7.0	5.5	0.81	7.0	3.5	0.53
Emergency	15.0	6.8		31.5	5.0		6.5	6.3		7.5	3.8
Stoma duration (months)
<12	13.0	7.8	0.22	30.5	7.8	0.31	8.5	5.0	0.94	6.5	3.5	0.61
≥12	15.0	6.0		32	5.5		7.0	6.0		7.0	3.5
Stoma
Colostomy	14.0^a	6.5	<0.01	31.0^a	4.0	0.02	6.0	4.5	0.07	7.0	3.5
Ileostomy	14.5^b	6.8		28.0^b	9.5		9.5	7.8		6.0	2.5	0.15
Urostomy	18.0^a,b	0.8		33.5^a,b	3.8		9.5	3.5		9.5	2.8

Item	Always (1)	Sometimes (2)	Rarely (3)	Never (4)
I become anxious when the pouch is full					DeF score
I worry that the pouch will loosen
I feel the need to know where the nearest toilet is
I worry that the pouch may smell					SeSi Score
I worry about noises from the stoma					SeSi Score
I need to rest during the day					SF score
My stoma pouch limits the choice of clothes that I can wear					SeSi Score
I feel tired during the day					SF score
My stoma makes me feel sexually unattractive					SeSi Score
I sleep badly during the night					SF score
I worry that the pouch rustles					SeSi Score
I feel embarrassed about my body because of my stoma					FF Score
It would be difficult for me to stay away from home overnight
It is difficult to hide the fact that I wear a pouch
I worry that my condition is a burden to people close to me
I avoid close physical contact with my friends
My stoma makes it difficult for me to be with other people
I am afraid of meeting new people
I feel lonely even when I am with other people
I worry that my family feel awkward around me

[1] *Corresponding author. E-mail: sandramartins@med.uminho.pt (S.F.Martins).

Brasil

Brasil

Qualidade de vida nos doentes ostomizados – estudo usando o questionário Stoma-care QoL – influência de alguns dados clínicos e demográficos na QoL

RESUMO

Introdução:

Objectivos:

Materiais e métodos:

Resultados:

Conclusões: