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Ambiguous genitalia: perception of the disease and parents anxiety

OBJECTIVES: to identify how parents perceive and face genital ambiguity in their children during different development phases. METHODS: qualitative study based on the reports of 15 parents of different families on their children's development expectations. Performed at the clinic of endocrinologic and genetic diseases of the Hospital Geral César Cals of Ceará in 2004. RESULTS: subjects reported: fear and anxiety, and the feelings involved in the way they handled the condition were: denial; evasion; regression/projection and rationalization. The tension and anguish noted in the neonatal period are expressed by the fear of death, incurable disease and medication. During childhood, of the surgical procedure (ambiguous genitalia) and sexuality (homosexuality). During puberty and adulthood there's the fear of marginalization, prejudice, homosexuality and infertility. There is anguish related to pointing at the guilty party, sexual definition (ambiguity) and the need for secrecy. CONCLUSIONS: ambiguous genitalia is a highly complex condition affecting the family psychological balance. In situations of genital ambiguity determining and demystifying fears and expectations should be part of the therapeutic plan.

Genitalia; Hermaphroditism; Behavior; Parents; Child


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