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Stress among Parents of Children with Hearing Loss and How They Deal with It: A Systematic Review

Abstract

Introduction

Parenting a child with hearing loss may be accompanied by high stress levels and several challenges.

Objectives

The present systematic review was performed to compile the existing literature pertaining to parental stress in parents of children with hearing loss and coping strategies.

Data synthesis

The databases searched include PubMed/Medline, Scopus, Cochrane Library and Cumulative Index to Nursing, and Allied Health Literature. The systematic review was designed and performed using the Preferred Reporting Items for Systematic Reviews and Meta-analyses statement guidelines. The screening for studies was performed independently by two researchers. Methodological quality appraisal was done using the Mixed methods appraisal tool. Twenty-eight studies were identified and included in the present review, which discussed the stress factors and coping mechanism associated with having child with hearing loss reported by parents. The factors leading to stress were thematically classified into parent/family-related factors, child-related factors, and professionals/service-related factors. The coping strategies were thematically classified into improved support systems and better professional resources.

Conclusion

The present systematic review was an attempt at exploring the various stress causing factors among parents of children with hearing loss. The various coping strategies would help in better planning services for these parents and helping to lessen the stress.

Keywords
hearing loss; parents; children; stress; coping mechanism

Introduction

Healthcare professionals such as audiologists and otorhinolaryngologists break the news about hearing loss to the parents. The news about the hearing loss diagnosis of their child is a life-changing moment in parents’ lives. Kushalnagar et al.11 Kushalnagar P, Mathur G, Moreland CJ, et al. Infants and children with hearing loss need early language access. J Clin Ethics 2010;21 (02):143–154 have speculated that ~ 96% of children with hearing loss are born to parents with normal hearing. Therefore, these parents may not much knowledge about hearing loss, its consequences, as well as habilitation options for their child. When they get to know that their child has permanent hearing loss, it adds an entirely new dimension to parental life circumstances and stress.

Parenting stress comprises a complicated and persistent series of challenges faced by individuals while parenting, and it involves adapting to the demands of the job.22 Deater-Deckard K. Parenting stress (current perspectives in psychology). New Haven, CT:: Yale University Press;; 2004, 33 Quittner AL, Glueckauf RL, Jackson DN. Chronic parenting stress: moderating versus mediating effects of social support. J Pers Soc Psychol 1990;59(06):1266–1278 Parenting stress leads to negative repercussions on parenting; this, in turn, leads to poor psychosocial function and socioeconomic growth, as well as marital discord. Parents of children with disability have higher stress levels, which are chronic in nature. Elevated stress levels have been found among parents of children with physical, mental, and psychological problems as well as developmental issues.44 Feizi A, Najmi B, Salesi A, Chorami M, Hoveidafar R. Parenting stress among mothers of children with different physical, mental, and psychological problems. J Res Med Sci 2014;19(02):145–152, 55 Oelofsen N, Richardson P. Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. J Intellect Dev Disabil 2006;31(01):1–12 The reaction toward a situation varies among individuals and so, too, do coping mechanisms. The coping process consists of two main strategies: one being problem-focused and the other being emotion-focused. Using problem-focused strategies, an individual will act to take some action against the stressful situation, whereas using emotion-focused strategies involves mental efforts that help to reduce the stress.66 Lazarus RS, Folkman S. Stress, appraisal and coping. New York, NY:: Springer;; 1984

The parents of children with hearing loss often feel that they are not capable enough to cope up with the demands of their child, as they cannot respond to his/her communication needs. They are highly dependent upon the healthcare experts for their help and guidance. There are few studies available in the literature exploring the lived experiences and stress levels among parents of children with hearing loss as well as their coping strategies. The present systematic review aimed to compile the existing literature pertaining to parental stress in parents of children with hearing loss and their coping strategies. This would enable us to have a more complete understanding of the contributors of stress in the process of diagnosis to the habilitation of a child with hearing loss, and the coping strategies practiced by these parents to overcome stress.

Review of literature

The present systematic review was designed and performed using the Preferred Reporting Items for Systematic Reviews and Meta-analyses (PRISMA) statement guidelines.

Types of studies, participants, outcome measures

The review included English language studies published from January 2000 to December 2019. Case reports, case studies, letters to editors, and gray literature were excluded. Studies performed among parents of children with permanent hearing loss with or without amplification were included. Studies performed primarily in other family members/caregivers/healthcare professionals were excluded. Studies performed in parents of children with temporary hearing loss due to any conductive pathology were excluded. The outcome measures were not limited and included quantitative and qualitative measures of assessing stress and tension associated with having a child diagnosed with hearing loss. The review also targeted coping mechanisms that helped the parents to deal with the diagnosis and further habilitation of the child.

Search methods for identification of the studies

The electronic databases PubMed/Medline, Scopus, Cochrane Library and Cumulative Index to Nursing and Allied Health Literature (CINAHL) were searched for identification of the relevant studies. The keywords included those relevant to the aim of the present review, such as child with hearing loss, child with deafness, deaf child, parent, mother, father, stress, tension, and coping mechanism. The Boolean operators ’AND’ and ’OR’ were used to frame the search strings. The search strings were developed and applied across the different electronic databases. An example of a search string used is as follows: (child* with hearing loss) OR (child* with deafness OR deaf child*) AND (parent* OR mother* OR father*) AND (stress OR tension OR coherence OR [coping mechanism]).

Data collection and analysis

The studies obtained from different databases were pooled together into a reference management software, Mendeley desktop (Mendeley Ltd., London, United Kingdom). Duplicate studies were excluded. Title and abstract screening were performed independently by the first two authors based on the inclusion criteria. Full-text articles were retrieved for the shortlisted abstracts. Any disagreements between the reviewers were resolved through discussion. A predesigned data extraction form was used for the present study. The data extraction form was used to extract information such as study design, location of the study, participants, outcome measure used, stress levels, and coping mechanism to overcome this stress.

Methodological quality appraisal

The methodological quality appraisal was performed using the Mixed methods appraisal tool (MMAT).77 Hong Q, Pluye P, Fàbregues S, et al. Mixed Methods Appraisal Tool (MMAT), version 2018. [Internet]. 2018. Available from: http://mixedmethodsappraisaltoolpublic.pbworks.com/w/file/fetch/127916259/MMAT_2018_criteria-manual_2018-08-01_ENG.pdf%0Ahttp://mixedmethodsappraisaltoolpublic.pbworks.com/
http://mixedmethodsappraisaltoolpublic.p...
Mixed methods appraisal tool is a quality appraisal tool designed for carrying out quality appraisal for studies with different study designs (such as qualitative, randomized control trials, non-randomized control trials, descriptive, quantitative, and mixed methods) included in a systematic review. The tool comprises of two screening questions, followed by five questions for each of the different study designs. If the response for the first two screening questions is ’no’ or ’can’t tell’ for one or both the questions, it is indicative of the paper not being an empirical study. Non-empirical studies (such as theoretical studies or reviews) cannot be appraised using the MMAT. Next, for each of the included studies, the appropriate study design is chosen. Each study is rated on five criteria using the rating of ’yes’, ’no,’ and ’can’t tell.’ Two reviewers were involved independently in the rating process as per the procedural guidelines. Overall, the reviewers shared a 95% agreement while rating, and any disagreements were resolved to arrive at a mutual consensus.

The search strategy applied across the different electronic databases identified 243 articles, 93 out of which were duplicates and, thus, eliminated. Among the 150 remaining studies, 93 titles were identified, out of which 64 abstracts were selected. After title and abstract screening, 30 studies were shortlisted. The full texts for these 30 studies were retrieved. The screening for the studies at each stage was based on the predefined inclusion and exclusion criteria. Based on full-text review, all 30 studies were found suitable for inclusion in the review. It is worth to note that all the studies using a quantitative framework used validated questionnaires/test materials.

Fig. 1 illustrates the PRISMA chart for the screening process.

Fig. 1
Prisma chart

Study characteristics

The 30 studies included 2,941 parents of children diagnosed with hearing loss. Among these, 27 studies used a quantitative approach (questionnaires, surveys, scales), while 3 used a qualitative approach (parent interviews). Nine studies were performed in the USA, while four each were performed in Germany and Israel, and two each were performed in Malaysia and India. A single study was performed in each of the following countries: Australia, Canada, China, Denmark, Iran, Korea, Netherlands, Sweden, and Turkey. The publication dates spanned from 2002 to 2018.

Table 1 summarizes the characteristics of all the included studies (n = 30).

Table 1
Characteristics of the included studies

Table 2 depicts the factors leading to stress among parents. Twenty-four different factors leading to stress among the parents were identified across all the studies and were divided into three broad themes: parent/family-related, child-related, and professional services-related. As one can observe, the parent/family-related and child-related themes presented the most factors.

Table 2
Factors associated with stress as reported by parents of children with hearing loss

Fifteen coping strategies were identified for how these parents deal with the stress associated with having a child with hearing loss. These were broadly classified into two main themes: general support seeking and utilization of professional services. ►Fig. 2 displays the strategies used by parents to deal with the stress associated with having a child with hearing impairment.

Fig. 2
Coping strategies to overcome stress associated with having a child with hearing impairment

Quality appraisal

The MMAT was used to conduct the quality appraisal of the included studies, based on the study design followed. Twenty-five studies were rated using the items for quantitative studies (items 4.1–4.5) while three were rated using the items for qualitative studies (1.1–1.5). ►Table 3 depicts the quality appraisal of the included studies.

Table 3
Quality appraisal data

Discussion

The present systematic review was performed to compile the existing literature pertaining to parental stress among the parents of children with hearing loss. Additionally, it explored the coping strategies adopted by these parents to deal with this stress. In order to overcome publication bias, the electronic search was conducted in four databases, and two researchers independently reviewed the articles to be included at each stage of the review process. Thirty studies were included in the review, with a total of 2,883 parents of children with hearing loss.

Factors associated with stress as reported by parents of children with hearing loss

Twenty-four different factors leading to stress among the parents were identified across all the studies. As previously mentioned, these were divided into three broad themes: parent/family-related, child-related, and professional services related. Most factors were captured by the parent/family-related and child-related themes.

Eleven factors related to the parents or family themselves. Six studies identified the two most common factors to be low income99 Pipp-Siegel S, Sedey AL, Yoshinaga-Itano C. Predictors of parental stress in mothers of young children with hearing loss. J Deaf Stud Deaf Educ 2002;7(01):1–17, 1515 Zaidman-Zait A. Everyday Problemsand Stress Faced by Parents of Children With Cochlear Implants. Rehabil Psychol 2008; 53:139–152, 1919 Quittner AL, Barker DH, Cruz I, Snell C, Grimley ME, Botteri Mthe CDaCI Investigative Team. Parenting Stress among Parents of Deaf and Hearing Children: Associations with Language Delays and Behavior Problems. Parent Sci Pract 2010;10(02):136–155, 2323 Chen YA, Chan KC, Liao PJ, Chen CK, Wu CM. Parental stress in raising Mandarin-speaking children with cochlear implants. Laryngoscope 2013;123(05):1241–1246, 3232 Dev AN, Lohith U, Pascal B, Dutt CS, Dutt SN. A questionnaire-based analysis of parental perspectives on pediatric cochlear implant (CI) re/habilitation services: a pilot study from a developing CI service in India. Cochlear Implants Int 2018;19(06): 338–349, 3737 Jean YQ, Mazlan R, Ahmad M, Maamor N. Parenting stress and maternal coherence: mothers with deaf or hard-of-hearing children. Am J Audiol 2018;27(03):260–271 and drastic reduction in the quality of life at the time of diagnosis, with a gradual improvement.1010 Spahn C, Richter B, Burger T, Löhle E, Wirsching M. A comparison between parents of children with cochlear implants and parents of children with hearing aids regarding parental distress and treatment expectations. Int J Pediatr Otorhinolaryngol 2003;67 (09):947–955, 1313 Burger T, Spahn C, Richter B, Eissele S, Löhle E, Bengel J. Psychic stress and quality of life in parents during decisive phases in the therapy of their hearing-impaired children. Ear Hear 2006;27 (04):313–320, 1616 Meinzen-Derr J, Lim LHY, Choo DI, Buyniski S, Wiley S. Pediatric hearing impairment caregiver experience: impact of duration of hearing loss on parental stress. Int J Pediatr Otorhinolaryngol 2008;72(11):1693–1703, 2323 Chen YA, Chan KC, Liao PJ, Chen CK, Wu CM. Parental stress in raising Mandarin-speaking children with cochlear implants. Laryngoscope 2013;123(05):1241–1246, 3232 Dev AN, Lohith U, Pascal B, Dutt CS, Dutt SN. A questionnaire-based analysis of parental perspectives on pediatric cochlear implant (CI) re/habilitation services: a pilot study from a developing CI service in India. Cochlear Implants Int 2018;19(06): 338–349, 3535 Anmyr L, Larsson K, Olsson M. Parents’ Stress and Coping Related to Children’s Use of a Cochlear Implant: A Qualitative Study. J Soc Work Disabil Rehabil 2016;15(02):150–167 The diagnosis of hearing loss in their child produced a catastrophic reaction in the parents and, hence, they reported a drastic reduction in quality of life immediately after diagnosis. With time, there was a gradual improvement in the quality of life, as access to intervention improved. The next three most common factors were related to the influence of society and reactions. These included reduced family support and lack of family cohesion,1414 Weisel A, Most T, Michael R. Mothers’ stress and expectations as a function of time since child’s cochlear implantation. J Deaf Stud Deaf Educ 2007;12(01):55–64, 2626 Sarant J, Garrard P. Parenting stress in parents of children with cochlear implants: relationships among parent stress, child language, and unilateral versus bilateral implants. J Deaf Stud Deaf Educ 2014;19(01):85–106, 3636 Park J, Yoon J. A phenomenological study of parenting stress among korean mothers of deaf children. Am Ann Deaf 2018;163 (04):440–462 reduced social support,99 Pipp-Siegel S, Sedey AL, Yoshinaga-Itano C. Predictors of parental stress in mothers of young children with hearing loss. J Deaf Stud Deaf Educ 2002;7(01):1–17, 2929 Dirks E, Uilenburg N, Rieffe C. Parental stress among parents of toddlers with moderate hearing loss. Res Dev Disabil 2016; 55:27–36. Doi: 10.1016/j.ridd.2016.03.008
https://doi.org/10.1016/j.ridd.2016.03.0...
, 3232 Dev AN, Lohith U, Pascal B, Dutt CS, Dutt SN. A questionnaire-based analysis of parental perspectives on pediatric cochlear implant (CI) re/habilitation services: a pilot study from a developing CI service in India. Cochlear Implants Int 2018;19(06): 338–349, 3737 Jean YQ, Mazlan R, Ahmad M, Maamor N. Parenting stress and maternal coherence: mothers with deaf or hard-of-hearing children. Am J Audiol 2018;27(03):260–271 and socioemotional concerns.1212 Hintermair M. Parental resources, parental stress, and socioemotional development of deaf and hard of hearing children. J Deaf Stud Deaf Educ 2006;11(04):493–513, 3434 Dammeyer J, Hansen AT, Crowe K, Marschark M. Childhood hearing loss: Impact on parents and family life. Int J Pediatr Otorhinolaryngol 2019;120:140–145 Parents are often concerned about the reaction of society and acceptance of their child. The stigma associated with having a child with disability also makes the parents isolate themselves from the society, which is another stress-inducing factor due to the lack of a support system. The next factor was the lack of acceptance of having a child with disability. Lower acceptance leads to higher stress levels.3030 Zaidman-Zait A, Most T, Tarrasch R, Haddad-eid E, Brand D. The Impact of Childhood Hearing Loss on the Family: Mothers’ and Fathers’ Stress and Coping Resources. J Deaf Stud Deaf Educ 2016; 21(01):23–33, 3737 Jean YQ, Mazlan R, Ahmad M, Maamor N. Parenting stress and maternal coherence: mothers with deaf or hard-of-hearing children. Am J Audiol 2018;27(03):260–271 The other stress inducing factors included lower education,1414 Weisel A, Most T, Michael R. Mothers’ stress and expectations as a function of time since child’s cochlear implantation. J Deaf Stud Deaf Educ 2007;12(01):55–64 lack of time for oneself,1616 Meinzen-Derr J, Lim LHY, Choo DI, Buyniski S, Wiley S. Pediatric hearing impairment caregiver experience: impact of duration of hearing loss on parental stress. Int J Pediatr Otorhinolaryngol 2008;72(11):1693–1703 lower self-competencies,3030 Zaidman-Zait A, Most T, Tarrasch R, Haddad-eid E, Brand D. The Impact of Childhood Hearing Loss on the Family: Mothers’ and Fathers’ Stress and Coping Resources. J Deaf Stud Deaf Educ 2016; 21(01):23–33 and communication barriers with the child.1919 Quittner AL, Barker DH, Cruz I, Snell C, Grimley ME, Botteri Mthe CDaCI Investigative Team. Parenting Stress among Parents of Deaf and Hearing Children: Associations with Language Delays and Behavior Problems. Parent Sci Pract 2010;10(02):136–155

The next theme that led to stress among the parents of children with hearing loss was child-related factors. Among these, three factors were reported across six studies. These included the presence of other handicaps along with hearing loss,99 Pipp-Siegel S, Sedey AL, Yoshinaga-Itano C. Predictors of parental stress in mothers of young children with hearing loss. J Deaf Stud Deaf Educ 2002;7(01):1–17, 1111 Hintermair M. Sense of coherence: a relevant resource in the coping process of mothers of deaf and hard-of-hearing children? J Deaf Stud Deaf Educ 2004;9(01):15–26, 1212 Hintermair M. Parental resources, parental stress, and socioemotional development of deaf and hard of hearing children. J Deaf Stud Deaf Educ 2006;11(04):493–513, 1818 Doǧan M. Comparison of the parents of children with and without hearing loss in terms of stress, depression, and trait anxiety. Int J Early Child Spec Educ. 2010;2:231–253, 2121 Oghalai JS, Caudle SE, Bentley B, et al. Cognitive outcomes and familial stress after cochlear implantation in deaf children with and without developmental delays. Otol Neurotol 2012;33(06): 947–956, 3434 Dammeyer J, Hansen AT, Crowe K, Marschark M. Childhood hearing loss: Impact on parents and family life. Int J Pediatr Otorhinolaryngol 2019;120:140–145 the communicative ability of children or delayed language development due to hearing loss,1212 Hintermair M. Parental resources, parental stress, and socioemotional development of deaf and hard of hearing children. J Deaf Stud Deaf Educ 2006;11(04):493–513, 1313 Burger T, Spahn C, Richter B, Eissele S, Löhle E, Bengel J. Psychic stress and quality of life in parents during decisive phases in the therapy of their hearing-impaired children. Ear Hear 2006;27 (04):313–320, 1515 Zaidman-Zait A. Everyday Problemsand Stress Faced by Parents of Children With Cochlear Implants. Rehabil Psychol 2008; 53:139–152, 1717 Åsberg KK, Vogel JJ, Bowers CA. Exploring correlates and predictors of stress in parents of children who are deaf: Implications of perceived social support and mode of communication. J Child Fam Stud 2008;17:486–499, 1919 Quittner AL, Barker DH, Cruz I, Snell C, Grimley ME, Botteri Mthe CDaCI Investigative Team. Parenting Stress among Parents of Deaf and Hearing Children: Associations with Language Delays and Behavior Problems. Parent Sci Pract 2010;10(02):136–155, 2626 Sarant J, Garrard P. Parenting stress in parents of children with cochlear implants: relationships among parent stress, child language, and unilateral versus bilateral implants. J Deaf Stud Deaf Educ 2014;19(01):85–106, 2828 Stika CJ, Eisenberg LS, Johnson KC, et al. Developmental outcomes of early-identified children who are hard of hearing at 12 to 18 months of age. Early Hum Dev 2015;91(01):47–55, 2929 Dirks E, Uilenburg N, Rieffe C. Parental stress among parents of toddlers with moderate hearing loss. Res Dev Disabil 2016; 55:27–36. Doi: 10.1016/j.ridd.2016.03.008
https://doi.org/10.1016/j.ridd.2016.03.0...
and, lastly, behavioral issues.1515 Zaidman-Zait A. Everyday Problemsand Stress Faced by Parents of Children With Cochlear Implants. Rehabil Psychol 2008; 53:139–152, 1616 Meinzen-Derr J, Lim LHY, Choo DI, Buyniski S, Wiley S. Pediatric hearing impairment caregiver experience: impact of duration of hearing loss on parental stress. Int J Pediatr Otorhinolaryngol 2008;72(11):1693–1703, 1919 Quittner AL, Barker DH, Cruz I, Snell C, Grimley ME, Botteri Mthe CDaCI Investigative Team. Parenting Stress among Parents of Deaf and Hearing Children: Associations with Language Delays and Behavior Problems. Parent Sci Pract 2010;10(02):136–155, 2020 Topol D, Girard N, St Pierre L, Tucker R, Vohr B. The effects of maternal stress and child language ability on behavioral outcomes of children with congenital hearing loss at 18-24months. Early Hum Dev 2011;87(12):807–811, 2525 Plotkin RM, Brice PJ, Reesman JH. It is not just stress: parent personality in raising a deaf child. J Deaf Stud Deaf Educ 2014;19 (03):347–357, 2828 Stika CJ, Eisenberg LS, Johnson KC, et al. Developmental outcomes of early-identified children who are hard of hearing at 12 to 18 months of age. Early Hum Dev 2015;91(01):47–55, 3434 Dammeyer J, Hansen AT, Crowe K, Marschark M. Childhood hearing loss: Impact on parents and family life. Int J Pediatr Otorhinolaryngol 2019;120:140–145 These factors are directly linked to the presence of hearing loss among the children leading to all these concerns. The next two factors were related to academic concerns1515 Zaidman-Zait A. Everyday Problemsand Stress Faced by Parents of Children With Cochlear Implants. Rehabil Psychol 2008; 53:139–152, 1919 Quittner AL, Barker DH, Cruz I, Snell C, Grimley ME, Botteri Mthe CDaCI Investigative Team. Parenting Stress among Parents of Deaf and Hearing Children: Associations with Language Delays and Behavior Problems. Parent Sci Pract 2010;10(02):136–155, 3232 Dev AN, Lohith U, Pascal B, Dutt CS, Dutt SN. A questionnaire-based analysis of parental perspectives on pediatric cochlear implant (CI) re/habilitation services: a pilot study from a developing CI service in India. Cochlear Implants Int 2018;19(06): 338–349 and concerns about the acceptance of the child into the society.1616 Meinzen-Derr J, Lim LHY, Choo DI, Buyniski S, Wiley S. Pediatric hearing impairment caregiver experience: impact of duration of hearing loss on parental stress. Int J Pediatr Otorhinolaryngol 2008;72(11):1693–1703, 3232 Dev AN, Lohith U, Pascal B, Dutt CS, Dutt SN. A questionnaire-based analysis of parental perspectives on pediatric cochlear implant (CI) re/habilitation services: a pilot study from a developing CI service in India. Cochlear Implants Int 2018;19(06): 338–349, 3737 Jean YQ, Mazlan R, Ahmad M, Maamor N. Parenting stress and maternal coherence: mothers with deaf or hard-of-hearing children. Am J Audiol 2018;27(03):260–271 Parents have an expectation to make their child fit for a hearing society, and all of these factors can act as hurdles leading to increased stress. Two studies each identified factors linked with the identification and consequences of hearing loss.88 Lederberg AR, Golbach T. Parenting stress and social support in hearing mothers of deaf and hearing children: a longitudinal study. J Deaf Stud Deaf Educ 2002;7(04):330–345, 1919 Quittner AL, Barker DH, Cruz I, Snell C, Grimley ME, Botteri Mthe CDaCI Investigative Team. Parenting Stress among Parents of Deaf and Hearing Children: Associations with Language Delays and Behavior Problems. Parent Sci Pract 2010;10(02):136–155 These also included issues with amplification devices,1515 Zaidman-Zait A. Everyday Problemsand Stress Faced by Parents of Children With Cochlear Implants. Rehabil Psychol 2008; 53:139–152, 3737 Jean YQ, Mazlan R, Ahmad M, Maamor N. Parenting stress and maternal coherence: mothers with deaf or hard-of-hearing children. Am J Audiol 2018;27(03):260–271 higher age of identification of hearing loss,1616 Meinzen-Derr J, Lim LHY, Choo DI, Buyniski S, Wiley S. Pediatric hearing impairment caregiver experience: impact of duration of hearing loss on parental stress. Int J Pediatr Otorhinolaryngol 2008;72(11):1693–1703, 2323 Chen YA, Chan KC, Liao PJ, Chen CK, Wu CM. Parental stress in raising Mandarin-speaking children with cochlear implants. Laryngoscope 2013;123(05):1241–1246 and child’s safety.1616 Meinzen-Derr J, Lim LHY, Choo DI, Buyniski S, Wiley S. Pediatric hearing impairment caregiver experience: impact of duration of hearing loss on parental stress. Int J Pediatr Otorhinolaryngol 2008;72(11):1693–1703, 2323 Chen YA, Chan KC, Liao PJ, Chen CK, Wu CM. Parental stress in raising Mandarin-speaking children with cochlear implants. Laryngoscope 2013;123(05):1241–1246 These factors often lead to stress, especially in hearing parents as they might have never faced these situations in their lives and have no experience on how to handle them either. Lastly, the child’s gender was also considered to be a factor associated with stress in a study.2323 Chen YA, Chan KC, Liao PJ, Chen CK, Wu CM. Parental stress in raising Mandarin-speaking children with cochlear implants. Laryngoscope 2013;123(05):1241–1246 This would be related to the gender stereotypes and specific roles expected from both genders. The last two factors were related to the lack of professional support,3636 Park J, Yoon J. A phenomenological study of parenting stress among korean mothers of deaf children. Am Ann Deaf 2018;163 (04):440–462, 3737 Jean YQ, Mazlan R, Ahmad M, Maamor N. Parenting stress and maternal coherence: mothers with deaf or hard-of-hearing children. Am J Audiol 2018;27(03):260–271 services, and advocacy.1515 Zaidman-Zait A. Everyday Problemsand Stress Faced by Parents of Children With Cochlear Implants. Rehabil Psychol 2008; 53:139–152 The parents often rely on professionals for support and help to overcome adverse situations, as they trust them to be knowledgeable. However, if these support systems are not available, then it could lead to increased stress levels among the parents. These findings are in agreement with those of a model that explains parental adjustments after the disclosure of the presence of a disability in their child.3838 Bicknell J. The psychopathology of handicap. Br J Med Psychol 1983;56(Pt 2):167–178

Measures taken to overcome stress by parents of children with hearing loss

Fifteen coping strategies adopted by parents to overcome stress were identified across the studies. These were thematically classified into two broad categories: improved support from different sources and better professional resources. The parents reported that they were able to cope better with stress if they received support from their spouse or parents or family.1212 Hintermair M. Parental resources, parental stress, and socioemotional development of deaf and hard of hearing children. J Deaf Stud Deaf Educ 2006;11(04):493–513, 1515 Zaidman-Zait A. Everyday Problemsand Stress Faced by Parents of Children With Cochlear Implants. Rehabil Psychol 2008; 53:139–152, 3232 Dev AN, Lohith U, Pascal B, Dutt CS, Dutt SN. A questionnaire-based analysis of parental perspectives on pediatric cochlear implant (CI) re/habilitation services: a pilot study from a developing CI service in India. Cochlear Implants Int 2018;19(06): 338–349, 3333 Levinger M, Alhuzail NA. Bedouin hearing parents of children with hearing loss: Stress, coping, and quality of life. Am Ann Deaf 2018;163(03):328–355, 3737 Jean YQ, Mazlan R, Ahmad M, Maamor N. Parenting stress and maternal coherence: mothers with deaf or hard-of-hearing children. Am J Audiol 2018;27(03):260–271 These studies across different countries were indicative that a person turns to the immediate family in such a situation. The second most commonly reported support system was the social one.1717 Åsberg KK, Vogel JJ, Bowers CA. Exploring correlates and predictors of stress in parents of children who are deaf: Implications of perceived social support and mode of communication. J Child Fam Stud 2008;17:486–499, 3030 Zaidman-Zait A, Most T, Tarrasch R, Haddad-eid E, Brand D. The Impact of Childhood Hearing Loss on the Family: Mothers’ and Fathers’ Stress and Coping Resources. J Deaf Stud Deaf Educ 2016; 21(01):23–33, 3131 Zaidman-Zait A, Most T, Tarrasch R, Haddad E. Mothers’ and fathers’ involvement in intervention programs for deaf and hard of hearing children. Disabil Rehabil 2018;40(11): 1301–1309, 3333 Levinger M, Alhuzail NA. Bedouin hearing parents of children with hearing loss: Stress, coping, and quality of life. Am Ann Deaf 2018;163(03):328–355 Amidst the factors leading to stress among the parents of children with hearing loss, a common factor was related to stress associated with whether the society would accept the child with hearing loss. The opposite, that is, receiving support from the society, helped the parents to cope better. The next factors included better awareness/understanding about hearing loss,1212 Hintermair M. Parental resources, parental stress, and socioemotional development of deaf and hard of hearing children. J Deaf Stud Deaf Educ 2006;11(04):493–513, 3232 Dev AN, Lohith U, Pascal B, Dutt CS, Dutt SN. A questionnaire-based analysis of parental perspectives on pediatric cochlear implant (CI) re/habilitation services: a pilot study from a developing CI service in India. Cochlear Implants Int 2018;19(06): 338–349, 3737 Jean YQ, Mazlan R, Ahmad M, Maamor N. Parenting stress and maternal coherence: mothers with deaf or hard-of-hearing children. Am J Audiol 2018;27(03):260–271 better competence,88 Lederberg AR, Golbach T. Parenting stress and social support in hearing mothers of deaf and hearing children: a longitudinal study. J Deaf Stud Deaf Educ 2002;7(04):330–345, 3131 Zaidman-Zait A, Most T, Tarrasch R, Haddad E. Mothers’ and fathers’ involvement in intervention programs for deaf and hard of hearing children. Disabil Rehabil 2018;40(11): 1301–1309 social resources,1111 Hintermair M. Sense of coherence: a relevant resource in the coping process of mothers of deaf and hard-of-hearing children? J Deaf Stud Deaf Educ 2004;9(01):15–26, 1212 Hintermair M. Parental resources, parental stress, and socioemotional development of deaf and hard of hearing children. J Deaf Stud Deaf Educ 2006;11(04):493–513 and support from the families of other children with hearing impairment.1212 Hintermair M. Parental resources, parental stress, and socioemotional development of deaf and hard of hearing children. J Deaf Stud Deaf Educ 2006;11(04):493–513, 1515 Zaidman-Zait A. Everyday Problemsand Stress Faced by Parents of Children With Cochlear Implants. Rehabil Psychol 2008; 53:139–152 These coping strategies made the parents have a better grip and understanding over the situation and, thereby, helped in easing down the stress. The remaining factors were related to support from other sources, such as personal resources,1111 Hintermair M. Sense of coherence: a relevant resource in the coping process of mothers of deaf and hard-of-hearing children? J Deaf Stud Deaf Educ 2004;9(01):15–26 acquaintances,1212 Hintermair M. Parental resources, parental stress, and socioemotional development of deaf and hard of hearing children. J Deaf Stud Deaf Educ 2006;11(04):493–513 emotional,2424 Md Daud MK, Noor SSM, Yusoff MNCM, Abd Rahman N, Zakaria MN. Gender differences in coping skills of parents with hearing-impaired children. B-ENT 2013;9(04):319–323 financial,3232 Dev AN, Lohith U, Pascal B, Dutt CS, Dutt SN. A questionnaire-based analysis of parental perspectives on pediatric cochlear implant (CI) re/habilitation services: a pilot study from a developing CI service in India. Cochlear Implants Int 2018;19(06): 338–349 and religious support.2424 Md Daud MK, Noor SSM, Yusoff MNCM, Abd Rahman N, Zakaria MN. Gender differences in coping skills of parents with hearing-impaired children. B-ENT 2013;9(04):319–323

The remaining four strategies were classified under availability of better resources, with the most common one being support from professionals.1212 Hintermair M. Parental resources, parental stress, and socioemotional development of deaf and hard of hearing children. J Deaf Stud Deaf Educ 2006;11(04):493–513, 1515 Zaidman-Zait A. Everyday Problemsand Stress Faced by Parents of Children With Cochlear Implants. Rehabil Psychol 2008; 53:139–152, 3232 Dev AN, Lohith U, Pascal B, Dutt CS, Dutt SN. A questionnaire-based analysis of parental perspectives on pediatric cochlear implant (CI) re/habilitation services: a pilot study from a developing CI service in India. Cochlear Implants Int 2018;19(06): 338–349 Parents need to rely on healthcare professionals and need to team up with them to provide better care for their child. Thus, the support from these professionals is considered a coping strategy for the parents. The other coping strategies included were better access to services,3232 Dev AN, Lohith U, Pascal B, Dutt CS, Dutt SN. A questionnaire-based analysis of parental perspectives on pediatric cochlear implant (CI) re/habilitation services: a pilot study from a developing CI service in India. Cochlear Implants Int 2018;19(06): 338–349 comprehensive services,3636 Park J, Yoon J. A phenomenological study of parenting stress among korean mothers of deaf children. Am Ann Deaf 2018;163 (04):440–462 and counselling.3232 Dev AN, Lohith U, Pascal B, Dutt CS, Dutt SN. A questionnaire-based analysis of parental perspectives on pediatric cochlear implant (CI) re/habilitation services: a pilot study from a developing CI service in India. Cochlear Implants Int 2018;19(06): 338–349

Limitations and future directions

The studies in the present review spanned from 2002 to 2018, a period during which many changes have taken place in healthcare services. However, the findings and interpretations of the present review provide a holistic account of the different factors associated with stress and the coping strategies. Additional studies using a qualitative or mixed methods approach would help in having a better understanding of these stress factors and coping strategies.

Final comments

The review enables a complete understanding of the factors leading to stress among the parents of children with hearing loss and how they cope with it. The awareness levels, availability of facilities, and socioeconomic status vary to a great extent across the different parts of the world. These findings are useful for planning better services and counselling strategies to reduce stress and improve coping among these parents.

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Publication Dates

  • Publication in this collection
    06 Mar 2023
  • Date of issue
    Jan-Mar 2023

History

  • Received
    07 Apr 2021
  • Accepted
    30 Nov 2021
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