Use of photography in research with children and adolescents with chronic conditions: an integrative review

Evangelista, Thais Alves Reis; Nunes, Michelle Darezzo Rodrigues; Machado, Stephanie Gabriel; Santos, Milena Agnelo; Olegário, Bheatriz da Costa Diniz; Nascimento, Lucila Castanheira

doi:10.37689/acta-ape/2023AR001994

Brasil

home Sumário navigate_before Anterior Atual Seguinte navigate_next

home Sumário

Review Article • Acta Paul Enferm 36 • 2023 • https://doi.org/10.37689/acta-ape/2023AR0019944 linkcopy

Use of photography in research with children and adolescents with chronic conditions: an integrative review

Authorship SCIMAGO INSTITUTIONS RANKINGS

Abstract

Objective To identify studies that used Photo-Elicitation and Photovoice techniques as a strategy for data collection with children and adolescents with chronic conditions.

Methods This is an integrative literature review, carried out in the Web of Science, CINAHL, MEDLINE, PsycINFO and LILACS databases, with a search for articles published in English, Portuguese and Spanish, between 2010 and 2021. The searches were conducted between February and April 2022. Data were analyzed descriptively and organized into categories.

Results A total of 28 articles were included and, based on the analytical process, the following categories were constructed: Advantages of using Photo-Elicitation and Photovoice; and Challenges in using these techniques.

Conclusion The literature is converging when considering that the visual approach is configured as a tool that facilitates the communication of the experiences of children and adolescents with chronic conditions, although it may present some challenges in its applicability.

Database	Authors, year, country, reference number	Participants/technique	Objectives
MEDLINE	Alvarenga, Leite, Menochelli, Ortiz La Banca, De Bortoli, Neris, et al. (2021). Brazil(¹¹)	15 adolescents aged 7 to 17 years, hospitalized with cancer. Photo-Elicitation	Develop and assess a conversation model for a spiritual approach with children and adolescents with cancer.
MEDLINE	Alvarenga, Machado, Leite, Caldeira, Vieira, Rocha, et al. (2021). Brazil(¹²)	35 children and adolescents between 7 and 18 years diagnosed with cancer, cystic fibrosis and type 1 diabetes. Photo-Elicitation	Identify the spiritual needs of children and adolescents with chronic diseases and how these needs are perceived by health professionals during hospitalization.
CINAHL	Andriana & Evans, (2021). Indonesia(¹³)	7 students with intellectual disabilities from 9 to 3 years. Photo-Elicitation	Report experiences of transitions in different contexts, such as from “regular school” to “inclusive school”, from special class to regular class.
Web of Science	Bagnall, Fox & Skipper (2021). United Kingdom(¹⁴)	6 children in the 5^th grade and 11 children in the 6^th grade with social, emotional and mental health difficulties (ages of participants not specified). Photo-Elicitation	Examine how children with social, emotional and mental difficulties in a special school experience the transition from elementary to high school and how they are supported, in order to propose recommendations to improve this transition.
Web of Science	Ebrahimpour, Mirlashari, Hosseini, Zarani & Thorne. (2021). Iran(¹⁵)	20 children aged 6 to 12 years with cancer. Photovoice	Identify the view of hospitalized children with cancer on the circumstances and factors that provide hope in the oncology ward.
Web of Science	Mott, Tummons, Simonsen, & Vandermau (2021). United States(¹⁶)	Adolescents between 17 and 18 years (number of participants and diagnosis not specified). Photo-Elicitation	Describe a Photo-Elicitation protocol used with youth involved in livestock production throughout childhood and to assess the benefits and challenges of using Photo-Elicitation for qualitative research purposes.
Web of Science	Netherton, Horton, Stock, Shaw, Noons & Evans. (2021). United Kingdom(¹⁷)	4 adolescents aged 11 to 15 years with Apert syndrome and their mothers. Photo-Elicitation	Explore psychological adjustment to Apert syndrome from the perspective of young people and their parents, with the broader aim of analyzing care and support for this population.
CINAHL	Pals, Hviid, Cleal & Grabowski. (2021). Denmark(¹⁸)	18 children with type 1 diabetes mellitus between 10 and 14 years. Photo-Elicitation	Explore how children with type 1 diabetes perceive, make sense of, and deal with diabetes treatment technologies in their everyday lives.
Web of Science	Ramalho, El Husseini, Bloc, Bucher-Maluschke, Moro & Lachal. (2021). Brazil(¹⁹)	8 adolescents aged 12 to 18 years with anorexia nervosa or bulimia nervosa. Photo-Elicitation	Investigate the role of food in the family relationships of adolescents with anorexia nervosa and bulimia in Northeast Brazil using Photo-Elicitation as well as identify the main problems and what adaptations can be suggested.
Web of Science	Coussens, Destoop, De Baets, Desoete, Oostra, Vanderstraeten, et al. (2020). Belgium(²⁰)	16 children between 5 and 9 years with developmental disorders such as attention deficit, hyperactivity, dyspraxia and autism. Photo-Elicitation	Capture the subjective experiences of young children with developmental disabilities about participating in life situations.
Web of Science	Powrie, Copley, Turpin, Ziviani & Kolehmainen. (2020). United Kingdom(²¹)	6 participants, aged between 9 and 19 years and with physical disabilities. Photovoice	Understand meaningful leisure from the perspective of children and young people with physical disabilities.
MEDLINE	Vänskä, Sipari & Haataja. (2020). Finland(²²)	9 children aged 5 to 10 with disabilities. Photo-Elicitation	Describe meaningful participation in everyday life from the perspective of children with disabilities.
MEDLINE	Denford, Hill, Mackintosh, McNarry, Barker & Williams. (2019). England(²³)	12 adolescents aged 12 to 18 years with cystic fibrosis. Photo-Elicitation	Explore reasons, barriers and facilitators for physical activity in this population.
Web of Science	Poku, Caress & Kirk. (2019). Ghana(²⁴)	Children aged 12 to 17 with sickle cell anemia in Ghana (number of participants not specified). Photo-Elicitation	Develop a theory to explain fatigue related to sickle cell disease in adolescence.
Web of Science	Cooper. (2017). United Kingdom(²⁵)	20 children from 6 to 10 years. Photo-Elicitation	Provide opportunities for children to build ‘all about me’ narratives using images as a encouragement to talk.
Web of Science	Ford, Bray, Water, Dickinson, Arnott & Carter. (2017). England, Australia and New Zeland(²⁶)	No sample Photo-Elicitation	Raise ethical and practical considerations for the use of photo elicitation interviews in research with children.
MEDLINE	Sibeoni, Costa-Drolon, Poulmarc’h, Colin, Valentin, Pradère, et al. (2017). France(²⁷)	15 adolescents between 13 and 18 years with psychological disorders (anxiety, depression, personality disorder and panic disorder). Photo-Elicitation	Examine the value and feasibility of using Photo-Elicitation in adolescent psychiatry research by exploring the role of food in family relationships.
Web of Science	King, Williams & Gleeson. (2017). United Kingdom(²⁸)	5 adolescents aged 13 to 15 diagnosed with autism or Asperger’s syndrome. Photo-Elicitation	Explore self-understanding among five adolescent boys diagnosed with an autism spectrum condition.
Web of Science	Ha & Whittaker. (2016). Vietnam(²⁹)	9 adolescents between 10 and 17 years with autism spectrum disorders. Photovoice	Report the use of a modified form of Photovoice in adolescents with autism spectrum disorder, as a means of promoting meaningful participation in research that addresses their lives and experiences.
LILACS	Pereira, Coimbra, Cardoso, Oliveira, Vieira, Nobre, et al. (2016). Brazil(³⁰)	Children between 6 and 11 years with difficulties with interpersonal relationships, concentration problems and learning disabilities. Photovoice	Report the use of participatory methodologies in research with children.
CINAHL	Walker, Johnson, Schatz, Silverstein, Lyles & Rohrs. (2015). United States(³¹)	40 adolescents between 12 and 19 years with type 1 diabetes. Photo-Elicitation	Better understand the perspectives of young people with type 1 diabetes according to key demographic variables.
Web of Science	Watts, Lovato, Barr, Hanning & Mâsse. (2015). Canada(³²)	22 overweight/obese adolescents between 11 and 16 years. Photovoice	Explore the perceived factors that prevent or facilitate healthy eating in the home environment among overweight adolescents.
MEDLINE	Whiting (2015). England(³³)	20 children between 9 and 11 years (unspecified diagnosis). Photo-Elicitation	Reflect on the use of photo elicitation as a data collection method in research with school-aged children.
CINAHL	Fournier, Bridge, Kennedy, Alibhal & Konde-Lule. (2014). Uganda(³⁴)	13 adolescents between 12 and 18 years living with HIV. Photovoice	Explore the experiences of HIV-positive orphan children living in foster homes in semi-urban western Uganda through the use of Photovoice.
Web of Science	Lamb, Firbank & Aldous. (2014). England(³⁵)	5 adolescents aged 12 to 16 years with autism spectrum disorders. Photo-Elicitation	Analyze physical education experiences from the perspective of five young people with autism spectrum disorder.
CINHAL	Desai, Sutton, Staley & Hannon. (2013). United States(³⁶)	13 children and adolescents between 9 and 16 years with complex cardiac disorders. Photo-Elicitation	Explore what children and adolescents with complex congenital heart disease find meaningful when attending a therapeutic camp in the company of peers with similar medical diagnoses.
MEDLINE	Stegenga & Burks. (2013). United States(³⁷)	12 children and adolescents between 6 and 14 years diagnosed with sickle cell anemia. Photovoice	Examine the perspective of children/adolescents with sickle cell anemia using photovoice, both to better understand the perspective of these patients and to assess the usefulness of the research method with this population.
Web of Science	Wells, Ritchie & McPherson. (2012). United Kingdom(³⁸)	10 adolescents aged 13 to 17 years with chronic kidney disease. Photo-Elicitation	Explore the experiences of adolescents with established renal failure on dialysis and to identify potential barriers to effective treatment.

vertical_align_top file_download show_chart

more_horiz close
- image
- translate
- link
- article
- vertical_align_top
- file_download
- show_chart
- image
- translate
- link
- article

location_on

Escola Paulista de Enfermagem, Universidade Federal de São Paulo R. Napoleão de Barros, 754, 04024-002 São Paulo - SP/Brasil, Tel./Fax: (55 11) 5576 4430 - São Paulo - SP - Brazil
E-mail: actapaulista@unifesp.br

rss_feed Acompanhe os números deste periódico no seu leitor de RSS

Acessibilidade / Reportar erro