Use of photography in research with children and adolescents with chronic conditions: an integrative review

Evangelista, Thais Alves Reis; Nunes, Michelle Darezzo Rodrigues; Machado, Stephanie Gabriel; Santos, Milena Agnelo; Olegário, Bheatriz da Costa Diniz; Nascimento, Lucila Castanheira

doi:10.37689/acta-ape/2023AR0019944

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Review Article • Acta Paul Enferm 36 • 2023 • https://doi.org/10.37689/acta-ape/2023AR0019944 copy

Use of photography in research with children and adolescents with chronic conditions: an integrative review

Authorship SCIMAGO INSTITUTIONS RANKINGS

Abstract

Objective

To identify studies that used Photo-Elicitation and Photovoice techniques as a strategy for data collection with children and adolescents with chronic conditions.

Methods

This is an integrative literature review, carried out in the Web of Science, CINAHL, MEDLINE, PsycINFO and LILACS databases, with a search for articles published in English, Portuguese and Spanish, between 2010 and 2021. The searches were conducted between February and April 2022. Data were analyzed descriptively and organized into categories.

Results

A total of 28 articles were included and, based on the analytical process, the following categories were constructed: Advantages of using Photo-Elicitation and Photovoice; and Challenges in using these techniques.

Conclusion

The literature is converging when considering that the visual approach is configured as a tool that facilitates the communication of the experiences of children and adolescents with chronic conditions, although it may present some challenges in its applicability.

Child; Adolescent; Photography; Data collection; Chronic disease

Database	Authors, year, country, reference number	Participants/technique	Objectives
MEDLINE	Alvarenga, Leite, Menochelli, Ortiz La Banca, De Bortoli, Neris, et al. (2021). Brazil(¹¹11. Alvarenga WA, Leite AC, Menochelli AA, Ortiz La Banca R, De Bortoli PS, Neris RR, et al. How to talk to children and adolescents with cancer about spirituality? establishing a conversation model. J Pediatr Oncol Nurs. 2021;38(2):116-30.)	15 adolescents aged 7 to 17 years, hospitalized with cancer. Photo-Elicitation	Develop and assess a conversation model for a spiritual approach with children and adolescents with cancer.
MEDLINE	Alvarenga, Machado, Leite, Caldeira, Vieira, Rocha, et al. (2021). Brazil(¹²12. Alvarenga WA, Machado JR, Leite AC, Caldeira S, Vieira M, Rocha SS, et al. spiritual needs of brazilian children and adolescents with chronic illnesses: a thematic analysis. J Pediatr Nurs. 2021;60:e39-45.)	35 children and adolescents between 7 and 18 years diagnosed with cancer, cystic fibrosis and type 1 diabetes. Photo-Elicitation	Identify the spiritual needs of children and adolescents with chronic diseases and how these needs are perceived by health professionals during hospitalization.
CINAHL	Andriana & Evans, (2021). Indonesia(¹³13. Andriana E, Evans D. Voices of students with intellectual disabilities: experiences of transition in “inclusive schools” in Indonesia. British J Learn Disabil. 2021;49:316-28.)	7 students with intellectual disabilities from 9 to 3 years. Photo-Elicitation	Report experiences of transitions in different contexts, such as from “regular school” to “inclusive school”, from special class to regular class.
Web of Science	Bagnall, Fox & Skipper (2021). United Kingdom(¹⁴14. Bagnall CL, Fox CL, Skipper Y. What emotional‐centred challenges do children attending special schools face over primary–secondary school transition? J Research Special Educational Needs. 2021;21(2):1-11.)	6 children in the 5^th grade and 11 children in the 6^th grade with social, emotional and mental health difficulties (ages of participants not specified). Photo-Elicitation	Examine how children with social, emotional and mental difficulties in a special school experience the transition from elementary to high school and how they are supported, in order to propose recommendations to improve this transition.
Web of Science	Ebrahimpour, Mirlashari, Hosseini, Zarani & Thorne. (2021). Iran(¹⁵15. Ebrahimpour F, Mirlashari J, Hosseini AS, Zarani F, Thorne S. Symbols of hope on pediatric oncology ward: children’s perspective using photovoice. J Pediatr Oncol Nurs. 2021;38(6):385-98.)	20 children aged 6 to 12 years with cancer. Photovoice	Identify the view of hospitalized children with cancer on the circumstances and factors that provide hope in the oncology ward.
Web of Science	Mott, Tummons, Simonsen, & Vandermau (2021). United States(¹⁶16. Mott R, Tummons J, Simonsen J, Vandermau R. Photo elicitation: useful supplemental tool for qualitative interviews with youths. J Extension. 2021;58(1):4.)	Adolescents between 17 and 18 years (number of participants and diagnosis not specified). Photo-Elicitation	Describe a Photo-Elicitation protocol used with youth involved in livestock production throughout childhood and to assess the benefits and challenges of using Photo-Elicitation for qualitative research purposes.
Web of Science	Netherton, Horton, Stock, Shaw, Noons & Evans. (2021). United Kingdom(¹⁷17. Netherton J, Horton J, Stock NM, Shaw R, Noons P, Evans MJ. Psychological adjustment in apert syndrome: parent and young person perspectives. Cleft Palate Craniofac J. 2023;60(4):461-73.)	4 adolescents aged 11 to 15 years with Apert syndrome and their mothers. Photo-Elicitation	Explore psychological adjustment to Apert syndrome from the perspective of young people and their parents, with the broader aim of analyzing care and support for this population.
CINAHL	Pals, Hviid, Cleal & Grabowski. (2021). Denmark(¹⁸18. Pals RA, Hviid P, Cleal B, Grabowski D. Demanding devices - Living with diabetes devices as a pre-teen. Soc Sci Med. 2021;286:114279.)	18 children with type 1 diabetes mellitus between 10 and 14 years. Photo-Elicitation	Explore how children with type 1 diabetes perceive, make sense of, and deal with diabetes treatment technologies in their everyday lives.
Web of Science	Ramalho, El Husseini, Bloc, Bucher-Maluschke, Moro & Lachal. (2021). Brazil(¹⁹19. Ramalho JA, El Husseini M, Bloc L, Bucher-Maluschke JS, Moro MR, Lachal J. The role of food in the family relationships of adolescents with anorexia nervosa and bulimia in northeastern Brazil: a qualitative study using photo elicitation. Front Psychiatry. 2021;12:623136.)	8 adolescents aged 12 to 18 years with anorexia nervosa or bulimia nervosa. Photo-Elicitation	Investigate the role of food in the family relationships of adolescents with anorexia nervosa and bulimia in Northeast Brazil using Photo-Elicitation as well as identify the main problems and what adaptations can be suggested.
Web of Science	Coussens, Destoop, De Baets, Desoete, Oostra, Vanderstraeten, et al. (2020). Belgium(²⁰20. Coussens M, Destoop B, De Baets S, Desoete A, Oostra A, Vanderstraeten G, et al. A qualitative photo elicitation research study to elicit the perception of young children with developmental disabilities such as ADHD and/or DCD and/or ASD on their participation. PLoS One. 2020;15(3):e0229538.)	16 children between 5 and 9 years with developmental disorders such as attention deficit, hyperactivity, dyspraxia and autism. Photo-Elicitation	Capture the subjective experiences of young children with developmental disabilities about participating in life situations.
Web of Science	Powrie, Copley, Turpin, Ziviani & Kolehmainen. (2020). United Kingdom(²¹21. Powrie B, Copley J, Turpin M, Ziviani J, Kolehmainen N. The meaning of leisure to children and young people with significant physical disabilities: Implications for optimising participation. British J Occupational Therapy. 2020;83(2):67-77.)	6 participants, aged between 9 and 19 years and with physical disabilities. Photovoice	Understand meaningful leisure from the perspective of children and young people with physical disabilities.
MEDLINE	Vänskä, Sipari & Haataja. (2020). Finland(²²22. Vänskä N, Sipari S, Haataja L. What makes participation meaningful? Using photo-elicitation to interview children with disabilities. Phys Occup Ther Pediatr. 2020;40(6):595-609.)	9 children aged 5 to 10 with disabilities. Photo-Elicitation	Describe meaningful participation in everyday life from the perspective of children with disabilities.
MEDLINE	Denford, Hill, Mackintosh, McNarry, Barker & Williams. (2019). England(²³23. Denford S, Hill DM, Mackintosh KA, McNarry MA, Barker AR, Williams CA. Youth Activity Unlimited – A Strategic Research Centre of the UK Cystic Fibrosis Trust. Using photo-elicitation to explore perceptions of physical activity among young people with cystic fibrosis. BMC Pulm Med. 2019;19(1):220.)	12 adolescents aged 12 to 18 years with cystic fibrosis. Photo-Elicitation	Explore reasons, barriers and facilitators for physical activity in this population.
Web of Science	Poku, Caress & Kirk. (2019). Ghana(²⁴24. Poku BA, Caress A-L, Kirk S. The opportunities and challenges of using photo elicitation in child-centered constructivist grounded theory research. Inter J Qualitative Methods. 2019;18.)	Children aged 12 to 17 with sickle cell anemia in Ghana (number of participants not specified). Photo-Elicitation	Develop a theory to explain fatigue related to sickle cell disease in adolescence.
Web of Science	Cooper. (2017). United Kingdom(²⁵25. Cooper VL. Lost in translation: exploring childhood identity using photo-elicitation. Children’s Geographies. 2017;15(6):625-37.)	20 children from 6 to 10 years. Photo-Elicitation	Provide opportunities for children to build ‘all about me’ narratives using images as a encouragement to talk.
Web of Science	Ford, Bray, Water, Dickinson, Arnott & Carter. (2017). England, Australia and New Zeland(²⁶26. Ford K, Bray L, Water T, Dickinson A, Arnott J, Carter B. Auto-driven photo elicitation interviews in research with children: ethical and practical considerations. Comprehensive Child Adol Nurs. 2017;40(2):111-25.)	No sample Photo-Elicitation	Raise ethical and practical considerations for the use of photo elicitation interviews in research with children.
MEDLINE	Sibeoni, Costa-Drolon, Poulmarc’h, Colin, Valentin, Pradère, et al. (2017). France(²⁷27. Sibeoni J, Costa-Drolon E, Poulmarc’h L, Colin S, Valentin M, Pradère J, et al. Photo-elicitation with adolescents in qualitative research: an example of its use in exploring family interactions in adolescent psychiatry. Child Adolesc Psychiatry Ment Health. 2017;11:49.)	15 adolescents between 13 and 18 years with psychological disorders (anxiety, depression, personality disorder and panic disorder). Photo-Elicitation	Examine the value and feasibility of using Photo-Elicitation in adolescent psychiatry research by exploring the role of food in family relationships.
Web of Science	King, Williams & Gleeson. (2017). United Kingdom(²⁸28. King MC, Williams E, Gleeson K. Using photographs to explore self-understanding in adolescent boys with an autism spectrum condition. J Intellectual Devel Disability. 2017;44(2).)	5 adolescents aged 13 to 15 diagnosed with autism or Asperger’s syndrome. Photo-Elicitation	Explore self-understanding among five adolescent boys diagnosed with an autism spectrum condition.
Web of Science	Ha & Whittaker. (2016). Vietnam(²⁹29. Ha VS, Whittaker A. ‘Closer to my world’: Children with autism spectrum disorder tell their stories through photovoice. Glob Public Health. 2016;11(5-6):546-63.)	9 adolescents between 10 and 17 years with autism spectrum disorders. Photovoice	Report the use of a modified form of Photovoice in adolescents with autism spectrum disorder, as a means of promoting meaningful participation in research that addresses their lives and experiences.
LILACS	Pereira, Coimbra, Cardoso, Oliveira, Vieira, Nobre, et al. (2016). Brazil(³⁰30. Pereira VR, Coimbra VC, Cardoso CS, Oliveira NA, Vieira AC, Nobre MO, et al. Metodologias participativas em pesquisa com crianças: abordagens criativas e inovadoras. Rev Gaúcha Enfermagem. 2016;37(Spe):e67908.)	Children between 6 and 11 years with difficulties with interpersonal relationships, concentration problems and learning disabilities. Photovoice	Report the use of participatory methodologies in research with children.
CINAHL	Walker, Johnson, Schatz, Silverstein, Lyles & Rohrs. (2015). United States(³¹31. Walker AF, Johnson C, Schatz DA, Silverstein JH, Lyles S, Rohrs HJ. Using photography as a method to explore adolescent challenges and resilience in type 1 diabetes. Diabetes Spectr. 2015;28(2):92-8.)	40 adolescents between 12 and 19 years with type 1 diabetes. Photo-Elicitation	Better understand the perspectives of young people with type 1 diabetes according to key demographic variables.
Web of Science	Watts, Lovato, Barr, Hanning & Mâsse. (2015). Canada(³²32. Watts AW, Lovato CY, Barr SI, Hanning RM, Mâsse. A qualitative study exploring how school and community environments shape the food choices of adolescents with overweight/obesity. Appetite. 2015;95:360-7.)	22 overweight/obese adolescents between 11 and 16 years. Photovoice	Explore the perceived factors that prevent or facilitate healthy eating in the home environment among overweight adolescents.
MEDLINE	Whiting (2015). England(³³33. Whiting LS. Reflecting on the use of photo elicitation with children. Nurse Res. 2015;22(3):13-7.)	20 children between 9 and 11 years (unspecified diagnosis). Photo-Elicitation	Reflect on the use of photo elicitation as a data collection method in research with school-aged children.
CINAHL	Fournier, Bridge, Kennedy, Alibhal & Konde-Lule. (2014). Uganda(³⁴34. Fournier B, Bridge A, Kennedy AP, Alibhal A, Konde-Lule J. A photovoice project with children who are orphaned and living with HIV in a Ugandan group home. Children Youth Serv Review. 2014;45:55-63.)	13 adolescents between 12 and 18 years living with HIV. Photovoice	Explore the experiences of HIV-positive orphan children living in foster homes in semi-urban western Uganda through the use of Photovoice.
Web of Science	Lamb, Firbank & Aldous. (2014). England(³⁵35. Lamb P, Firbank D, Aldous D. Capturing the world of physical education through the eyes of children with autism spectrum disorders. Sport Education Society. 2014;21(5):1-25.)	5 adolescents aged 12 to 16 years with autism spectrum disorders. Photo-Elicitation	Analyze physical education experiences from the perspective of five young people with autism spectrum disorder.
CINHAL	Desai, Sutton, Staley & Hannon. (2013). United States(³⁶36. Desai PP, Sutton LJ, Staley MD, Hannon DW. A qualitative study exploring the psychosocial value of weekend camping experiences for children and adolescents with complex heart defects. Child Care Health Dev. 2014;40(4):553-61.)	13 children and adolescents between 9 and 16 years with complex cardiac disorders. Photo-Elicitation	Explore what children and adolescents with complex congenital heart disease find meaningful when attending a therapeutic camp in the company of peers with similar medical diagnoses.
MEDLINE	Stegenga & Burks. (2013). United States(³⁷37. Stegenga K, Burks LM. Using photovoice to explore the unique life perspectives of youth with sickle cell disease: a pilot study. J Pediatr Oncol Nurs. 2013;30(5):269-74.)	12 children and adolescents between 6 and 14 years diagnosed with sickle cell anemia. Photovoice	Examine the perspective of children/adolescents with sickle cell anemia using photovoice, both to better understand the perspective of these patients and to assess the usefulness of the research method with this population.
Web of Science	Wells, Ritchie & McPherson. (2012). United Kingdom(³⁸38. Wells F, Ritchie D, McPherson AC. ‘It is life threatening but I don’t mind’. A qualitative study using photo elicitation interviews to explore adolescents’ experiences of renal replacement therapies. Child Care Health Dev. 2013;39(4):602-12.)	10 adolescents aged 13 to 17 years with chronic kidney disease. Photo-Elicitation	Explore the experiences of adolescents with established renal failure on dialysis and to identify potential barriers to effective treatment.

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[1] Corresponding author: Thais Alves Reis Evangelista E-mail: thaisareare@gmail.com