Herbst, deSante-Bertkau; 2020 8
|
“Ethical dilemmas at the beginning and end of life: a needs-based, experience-informed, small-group, case-based curriculum for pediatric residentes” |
A trio of small group discussions based on cases on artificial nutrition and hydration, futility, and ethical considerations in neonatology |
United States |
MedEdPORTAL
|
Evidence of deficiencies in medical ethics. It demonstrated an enhancement in the comfort levels and self-reported attitudes of pediatric residents and medical students following conversations about ethical dilemmas at the onset and end of life |
Richards and collaborators; 2018 9
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“Physicians perceptions of shared decision-making in neonatal and pediatric critical care” |
Semi-structured interviews and content and thematic analysis |
United States |
American Journal of Hospice & Palliative Medicine
|
Shared decision-making might be affected by various factors, including power differentials between physicians and family members, clinical uncertainties regarding the optimal approach to balancing the interests of the family and the child. Furthermore, the values and preferences of families might not be integrated into end-of-life decisions and conversations concerning care objectives. |
Carter; 2018 10
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“Pediatric palliative care in infants and neonates” |
Literature review |
United States |
Children
|
Need to add palliative care to intensive care, and not just in the terminal phase of children’s lives. Takes the incorporation of palliative care in the management of fetal diagnosis into consideration as a futuristic action |
Stanak, Hawlik; 2019 11
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“Decision-making at the limit of viability: the Austrian neonatal choice context” |
Mixed: literature review and semi-structured interviews |
Austria |
BMC Pediatrics
|
Communication strategies regarding therapeutic options can significantly impact decisions, the survival rate, and the neuropsychomotor development of infants. Potential influencing factors on decision-making included professional biases, parental comprehension, and how information was conveyed. |
Willems, Verhagen, van Wijlick; 2014 12
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“Infants’ best interests in end-of-life care for newborns” |
Mixed: literature review and consensus meetings in a multidisciplinary committee of experts |
Netherlands |
Pediatrics
|
Current recommendations from the Netherlands regarding end-of-life decision-making for newborns suggest that treatment be conditional. In case of failure, it must be abandoned and palliative care for the child and their family must be initiated. |
Arnaez and collaborators; 2017 13
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“La bioética en el final de la vida en neonatología: cuestiones no resueltas” |
Synthesis of studies and conferences plus the experience of professionals and information from databases such as PubMed, Embase, and Cochrane |
Spain |
Anales de Pediatria
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It emphasizes the necessity of educating professionals in bioethics, the deliberative method, communication proficiency, and the handling of moral distress, ensuring prudent and rational decision-making. It underscores the dearth of advancements in perinatal and home-based palliative care within hospitals catering to newborns and the absence of protocols guiding neonatal organ donation |
Gazzola, Leite, Gonçalves; 2020 14
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“Comunicando más notícias sobre malformações congênitas: reflexões bioéticas e jurídicas” |
Update |
Brazil. |
Revista Bioética
|
The significance of effective communication and a strong doctor-patient relationship cannot be overstated in preserving the right to autonomy and the receipt of information. Failure to adhere to these standards could lead to civil and ethical-professional liabilities. |