Pemberger S, 2004 |
78, 22.6 ± 3.8 |
Various |
HRQOL and chronic health conditions |
SF36 |
------ |
Punyko J, 2007 |
417 vs 2685, >18 |
Rhabdomyosarcoma |
Physical deterioration and social adaptation |
Designed for the study |
Siblings |
Nathan P, 2007 |
654 y 432, 18-34 |
Wilms y Neuroblastoma |
HRQOL |
SF-36 |
Between the two types of cancer |
Ness K, 2008 |
7.147, > 18 |
Various |
HRQOL, functional limitations |
SF36 |
General population |
Zeltzer L, 2008 |
7.147 vs 308, 32 (18-54) |
Various |
HRQOL, Life satisfaction, chronic health conditions |
SF36 |
Siblings |
Nagarajam R, 2009 |
629, > 21 years |
Lower extremity bone tumors |
QOL, Physical function |
QOL-CS |
------ |
Zebrack B, 2010 |
599, 27 ± 5.5 |
Various |
HRQOL, sexual function, and emotional distress |
SF36 MO Sexual Function |
------ |
Ishida Y, 2010 |
185 vs 1.000, 23.2 ± 4.9 |
Various |
HRQOL |
SF36 |
General population and QOL without bone marrow transplant |
Ishida Y, 2010 |
185 vs 1.000, 24 ± 5 |
Various |
Disfigurement, HRQOL and emotional distress |
SF 36 |
General population and QOL without radiotherapy |
Ishida Y, 2011 |
184 vs 72, 23.1 ± 4.9 |
Various |
HRQOL, chronic health conditions |
SF36 |
Siblings |
Kinahan K, 2012 |
14.358 vs 4.023 |
Various |
HRQOLand psychological distress |
SF36 |
Siblings |
Rueegg C, 2013 |
1.593 vs 695, 25 ± 6.9 |
Various |
HRQOL |
SF36 |
Siblings |
Chan C, 2014 |
614 vs 208, 21.9 ± 5.6 |
Various |
QOL and chronic conditions |
SF36 |
Siblings |
Rhee M, 2014 |
110, 8-18 |
Various |
HRQOL and symptoms of emotional distress |
PedsQL |
Healthy controls |
Corella Aznar E, 2019 |
54, > 18 |
Acute leukemia |
HRQOL and symptoms of emotional distress |
SF36 and interview |
--- |
Tremolada M, 2018 |
32 vs 28, 19.4 ± 3.8 |
Various |
HRQOL and comorbidities after radiotherapy with proton beam |
SF36 |
Healthy controls |
Fukushima H, 2017 |
17 |
Head or neck tumors |
HRQOL and comorbidities after radiotherapy with proton beam |
PedsQL |
---- |
Halvorsen J, 2018 |
91 vs 223, 24,7 ± 2,77 |
Various |
HRQOL, late effects, distress, received treatment |
PedsQL for young adults |
Healthy controls |
HRQOL in survivors of cancer in childhood or adolescence focused on long-term survival |
First author, year |
N, age (years) |
Type of cancer |
Outcomes |
Instrument |
Comparisons |
Blaauwbroek R, 2007 |
123, 19-50 years |
Various |
HRQOLand long-term late effects |
RAND-36 |
Controls |
Blaauwbroek R., 2007 |
333, 20-60 years |
Various |
HRQOLand long-term late effects |
RAND-36 |
Controls |
Alessi D, 2007 |
691 de 1005, > 18 years |
Various |
HRQOLand long-term late effects |
HUI |
----------- |
Kenney L, 2010 |
55 de 88, 51-71 years |
Various |
Health statusandHRQOL |
SF-36 |
Controls |
Harila M, 2010 |
74, 17-37 years |
Acute L Leukemia |
HRQOL |
RAND-36 |
Controls |
Essig S, 2012 |
457, > 16 years |
Acute L Leukemia |
HRQOL |
SF-36 |
Controls |
Calaminus G, 2013 |
1202, M 26.7 years |
Hodgkin’s Lymphoma |
HRQOL |
EORTC-QLQ-C30 |
Controls |
HRQOL in survivors of cancer in childhood or adolescence focused on psychosocial or behavioral aspects |
First author, year |
N, age (years) |
Type of cancer |
Outcomes |
Instrument |
Comparisons |
Casillas J, 2006 |
27 Latinos 18-32 years and 30 non-latinos, 18-37 |
Various |
HRQOL |
SF-12 Qualitative: focus group and telephone interview |
Latinos vs non- latinos |
Servitzoglou M, 2008 |
103, 19.8 |
Various |
HRQOLand psychosocial functioning |
SF-36 |
Control |
Cantrell MA, 2008 |
35, 22-28 |
Various |
HRQOLand determinants (self-esteem, social and affective support) |
MMIQL |
---------- |
Mört S, 2011 |
271, ND |
Various |
HRQOLand factors associated with the disease |
SF-36 y 15D |
Control |
Badr H, 2013 |
170, ND |
Various |
HRQOL, lifestyles, medical variables |
PEDQ |
---------- |
Hocking M, 2015 |
34 child/mother dyads |
CNS Tumor |
HRQOLand cognitive function, mediated by the family |
POQOLS |
----------- |
Huang I-Chan, 2017 |
7103, average 31.8±7.5 |
Various |
HRQOLand emotional stress |
SF-36 |
Control |
Cantrell MA, 2017 |
95 women, 22.5±2.5 |
Various |
HRQOLpre- and post-intervention regarding care of self-esteem and hope |
MMIQL |
---------- |
Zhang F, 2018 |
2480, ND |
Various |
HRQOLand modifiable lifestyle factors |
SF-36 |
---------- |
Wogksch M, 2018 |
336, 19.1-60.6 |
Various |
HRQOL, chronic diseases and physical exercise |
SF-36 |
Control |
Ritt-Olson A, 2018 |
194, 20.75 |
Various |
HRQOL, depression, gender and culture |
PedsQL |
Latinos vs no latinos |
Dixon S, 2019 |
white/non-Hispanic 600 black/non-Hispanic 821 Hispanic |
Various |
Racial and ethnic disparities in neurocognitive, emotional and HRQOL outcomes |
SF-36 |
Hermanos |
Studies for the development, validation or adaptation of instruments for measuring HRQOL in survivors of cancer in childhood or adolescence |
Author, year |
Objective |
Zebrack B, 2001 |
Psychometric evaluation of Quality of Life-Cancer Survivors (QOL-CS) |
O’Leary T, 2007 |
Effects of response bias on self-reported quality of life among childhood cancer survivors |
Zebrack B, 2010 |
Psychometric evaluation of the Impact of Cancer (IOC-CS) scale for young adult survivors of childhood cancer |
Huang I-Chang, 2012 |
Comparison of two instruments for measuring HRQOL in young adult survivors of cancer (QOL-CS y YASCC) |
Huang I-Chang, 2012 |
Development of an instrument for measuring HRQOL (YASCC) in survivors of childhood cancer based on three legacy measures |
Jervaeus A, 2013 |
Psychometric properties of KIDSCREEN-27 among childhood cancer survivors |
Quinn G, 2013 |
Missing content in the evaluation of HRQOL |
Jervaeus A, 2014 |
Clinical significance in self-rated HRQOL using KIDSCREEN-27 demonstrated by qualitative anchor-based thresholds |
Koike M, 2014 |
Development of the Japanese version of the MMQL-Adolescent Form and evaluation of its reliability and validity |
Bosworth A, 2018 |
Evaluation of the reliability and validity of the MMQLI in adult survivors of childhood cancer |