Pais e prof saúde |
IBD and JIA |
Quali |
2015 |
USA |
Med 26 |
Understanding parents' DM process for chronic disease management |
IBD and JIA |
Quali |
2014 |
USA |
Med 27 |
Understand how decisions are made about treatment of chronic diseases |
CHISPEN |
Quali |
2013 |
USA |
Med 29 |
Describe factors that influence parental/medical partnerships in exchange for information and SDM when CHISPEN are referred to subspecialists |
Prof Saúde |
IBD and JIA |
Survey |
2016 |
USA |
Med 28 |
To examine the use of SDM by pediatricians and their perception of facilitators and barriers to SDM with parents and patients in the beginning of treatment |
CCHC |
Survey |
2014 |
USA |
Med 48 |
Identify existing challenges and potential strategies to provide complex care training for future pediatricians |
Chronical disease |
Quali |
2013 |
Australia |
Nur 50 |
Explore nurse's perception of parental empowerment in chronic disease |
Chronic disease |
Lit rev |
2009 |
USA |
Psyc 52 |
Analyzing and synthesizing research on the behavior of pediatricians in the management of chronic disease and its relation with treatment adherence |
Those who brought death |
Quanti |
2003 |
Arg |
Med 30 |
Describing the modalities of death and factors involved in procedural DM that limit the maintenance of life. |
Those who brought death |
Quanti |
2001 |
Brazil |
Med 44 |
Determining the prevalence of different ways of dying and identifying therapeutic limits in patients of a pediatric ICU |
Diabetes, asthma, eczema, epilepsy, O2 dependence, ventilation and nutritional, cardiac and metabolic supports |
Quanti |
2000 |
UK |
Nur 31 |
Exploring the role and use of nur competencies in relation to the physical and psycho-social needs of children and examining how these skills are used in DM in relation to the care of children and their families with chronic illness in the community |
Prof saúde crianças e seus pais |
ALL, asthma, DM (Diabetes Mellitus), CF, obesity |
Quanti |
2015 |
USA |
Med and Nur 47 |
Understanding the nature of the child's participation in the management of the care of his or her illness. |
CCHC |
Quali |
2013 |
USA |
Med 49 |
Identifying prevailing issues discussed in the pediatric palliative care consultation of patients with CCHC care by pediatric generalists |
JIA |
Quali |
2007 |
UK |
Antrop 42 |
Exploring the experience of everyday life and dealing with the illness of children that live with JIA. |
Diabetes M1 |
Quali |
2006 |
UK |
Sociol 57 |
Investigating children's opinions about their diabetes, their participation in the management |
Prof saúde, adolescentes e seus pais |
Of their care, their daily likes and dislikes, achievements and problems |
Quali |
2009 |
Israel |
Med, ci soc 32 |
Estudar formas como decisões de tratamento são alcançadas na prática, durante encontros em que gastro pediatras comunicam más notícias e seus reflexos para pacientes, familiares e relação médico paciente |
Pais e Crianças |
DII |
Quali |
2009 |
Israel |
Med, soc, sci 32 |
Studying how treatment decisions are reached in practice during encounters in which gastro pediatricians communicate bad news and their reflexes to the patients, family and patient-physician relationship |
CF, Diabetes M and asthma |
Quanti |
2012 |
USA |
Psyc 33 |
Developing an instrument to measure DM involvement in the management of health condition in children and adolescents with CF, Diabetes M and asthma. |
Pais e adolescentes |
Asthma, DM type 1 or CF |
Quali |
2009 |
USA |
Psyc 34 |
Exploring collaborative DM concept from the perspective of children and their parents and generating items for new measure of SDM parent-child report |
JIA/Crohn |
Quali |
2016 |
USA |
Med 36 |
Comparing factors considered by the parents with those considered by the adolescents in DM regarding treatments of chronic diseases. |
Crianças |
CF, JIA, DII, sickle cell anemia |
Survey |
2008 |
USA |
Med 35 |
Describing the preferences for decision-making for the treatment of adolescents with chronic diseases and their parents, and on what measures they agree. |
Adolescentes |
Haemorrhagic Disorder |
Quali |
2012 |
Can |
Nur 51 |
Analyzing how children understand family-centered care and their inherent role in this approach |
Crohn and JIA |
Quali |
2013 |
USA |
Med 37 |
Understanding the roles and preferences of adolescents in DM for chronic diseases |
Cancer |
Lit rev |
2011 |
USA |
Multiprof 38 |
Summarizing available literature on decision-making aspects of fertility preservation among adolescent cancer patients and recommending strategies for their participation. |
Healthy and sickle cell anemia, HIV, cancer, asthma |
Survey |
2004 |
USA |
Psyc 43 |
Exploring whether there are differences between adolescents with chronic diseases and healthy with regard to their attitudes about end-of-life issues |
Chronic disease |
Lit rev |
2014 |
Brazil |
Collective health 12 |
Analyzing the production of knowledge about chronic diseases in children/ adolescents, aiming to contribute to the systematization of care principles for these subjects. |
Healthy and asthma, Diabetes M |
Quali |
2003 |
EUA |
Enf 54 |
Descrever compreensão de crianças dos adolescentes sobre pesquisas e fatores socioculturais que as influenciam a envolverem-se e a continuarem a participar de pesquisas clínicas |
Pais |
epilepsy or eczema |
Quanti |
2010 |
UK |
Nur 56 |
Determining whether the point of view of children with a chronic disease in relation to clinical trials was different from that of healthy children |
Pais |
Diabetes M and hematologic oncotic disease |
Quali |
2003 |
USA |
Nur 54 |
Describing the understanding of children and adolescents about research and sociocultural factors that influence them to become involved and to continue to participate in clinical research |
CHISPEN |
Quali |
2015 |
Italy |
Med 45 |
Exploring experiences and perceptions of parents in information, management and relational continuity of care for CHISPEN after discharge |
Thalassemia |
Quali |
2015 |
Tail |
Nur 55 |
Designing, implementing and evaluating a Family Empowerment Program guided by the disease belief Model. |
CHISPEN |
Survey |
2015 |
USA |
Nur, Med, Psyc 39 |
Analyzing whether the way parents report SDM varies with type of need (physical, mental or both) and whether home medical care attenuates these differences |
Chronic |
Survey |
2014 |
USA |
Med 46 |
Exploring experience of parents and caregivers their knowledge and preferences regarding early directives for children with chronic diseases |
Life risk |
Quali |
2013 |
USA |
Med 40 |
Identifying and illustrating common heuristics used by parents of children with life-threatening illnesses while confronting and making medical decisions |
|
Cancer |
Quali |
2011 |
USA |
Nur 41 |
Analyzing how parents who do not live together make treatment decisions for their children with Cancer |
|
Diabetes M, asthma, epilepsy, CRF, Cancer and illnesses that limit life |
Quanti quali |
2005 |
USA, Ch Scot |
Nur 53 |
Examining, culturally cross-examined, the experience of parents caring for children with chronic diseases both in terms of the impact on family life as well as the nature of the support received from the health services in Hong Kong and Scotland |