Management Decisions Made by Caregiver Spouses of Persons With Alzheimer’s Disease |
The American Journal of Occupational Therapy, 1994, USA |
The study describes the activities carried out by 26 caregivers’ wives in five categories of work, describing the types of care according to the purpose. They are defined as anticipatory, preventive, supervisory, instrumental and protective care. |
Corcoran MA.1313 Corcoran MA. Management decisions made by caregiver. Am J Occup Ther. 1994;48(1):38-45. http://dx.doi.org/10.5014/ajot.48.1.38. PMid:8116782. http://dx.doi.org/10.5014/ajot.48.1.38...
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Communicating With Persons With Alzheimer’s Disease: Experiences of Family and Formal Caregivers |
Archives of psychiatric nursing, 1995, USA |
The study addressed strategies carried out by 23 family caregivers (spouses and children) to deal with behavioral problems of older adults with Alzheimer’s, such as fear, agitation, wandering and difficulty communicating. Two themes emerged as care strategies: environmental adjustments and comfort. |
Richter JM, Roberto KA, Bottenberg DJ.1414 Richter JM, Roberto KA, Bottenberg DJ. Communicating with persons with Alzheimer’s disease: experiences of family and formal caregivers. Arch Psychiatr Nurs. 1995;9(5):279-85. http://dx.doi.org/10.1016/S0883-9417(95)80047-6. PMid:7487169. http://dx.doi.org/10.1016/S0883-9417(95)...
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The experience of caring for a family member with Alzheimer’s disease |
Western journal of nursing research, 2001, USA |
Study carried out with 103 family caregivers. Caregivers are fully immersed in care, respecting older adults’ dignity and trying to keep their daily lives as normal as possible. Caregivers is concerned with safety, avoiding dangerous situations in the domestic environment and with older adults’ autonomy, thus allowing them to continue performing some domestic tasks that they still manage, respecting their limitations. |
Butcher HK, Holkup PA, Buckwalter KC.1515 Butcher HK, Holkup PA, Buckwalter KC. The experience of caring for a family member with Alzheimer’s disease. West J Nurs Res. 2001;23(1):33-55. http://dx.doi.org/10.1177/019394590102300104. PMid:11216023. http://dx.doi.org/10.1177/01939459010230...
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Dinâmica familiar, as fases do idoso com alzheimer e os estágios vivenciados pela família na relação do cuidado no espaço domiciliar
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Revista Brasileira de Enfermagem, 2004, Brazil |
The study addresses the care provided by eight family caregivers and the family modification resulting from caring for an older adult with Alzheimer’s at home according to the evolution of the disease. Maintaining family care during the course of the illness depends on how well the family is able to implement effective strategies in caring for older adults with dementia. The study selects care according to the evolution of the disease, which is divided into three phases: initial, intermediate and advanced. |
Coelho GS, Alvil NAT.1616 Coelho GS, Alvim NAT. A dinâmica familiar, as fases do idoso com alzheimer e os estágios vivenciados pela família na relação do cuidado no espaço domiciliar. Rev Bras Enferm. 2004;57(5):541-4. http://dx.doi.org/10.1590/S0034-71672004000500005. PMid:15997795. http://dx.doi.org/10.1590/S0034-71672004...
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Atenção ao familiar cuidador do idoso com doença de Alzheimer
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Acta sci, 2004, Brazil |
The activities carried out by the four caregivers (a wife and three children) are described as continuous and uninterrupted care and characterized by hygiene care, care with food and elimination, emotional support, care with transporting older adults, financial administration, environment maintenance, environmental modifications and control of drug treatment accompanying older adults in appointments and supplying the drugs at the correct times. |
Luzardo A, Waldman BF.1717 Luzardo AR, Waldman BF. Atenção ao familiar cuidador do idoso com doença de Alzheimer. Acta Sci Heal Sci. 2004;26(1):135-45. http://dx.doi.org/10.4025/actascihealthsci.v26i1.1640. http://dx.doi.org/10.4025/actascihealths...
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Female Alzheimer’s Patient Caregivers Share Their Strength |
Holistic Nursing Practice, 2004, USA |
The article brings the concern of 14 family caregivers to maintain older adults’ social and religious side through efforts to preserve customs, for instance, participating in masses, social events and leisure activities. |
Pauan O.1818 Paun O. Female Alzheimer’ s Patient Caregivers. Holist Nurs Pract. 2004;18(1):11-7. http://dx.doi.org/10.1097/00004650-200401000-00003. PMid:14765687. http://dx.doi.org/10.1097/00004650-20040...
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La artesanía del cuidado: cuidar en la casa a un familiar con demencia avanzada
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Enfermagem Clínica, 2005, Spain |
The author identifies strategies that 18 family caregivers and two professionals create to help older adults in the home environment, such as using “tricks” and non-verbal communication. In addition, they also adapt the environment and create “work tools” that facilitate care. |
Cuesta-Benjumea C.1919 Cuesta-Benjumea C. La artesanía del cuidado: cuidar en la casa a un familiar con demencia avanzada. Enferm Clin. 2005;15(6):335-42. http://dx.doi.org/10.1016/S1130-8621(05)71140-2. http://dx.doi.org/10.1016/S1130-8621(05)...
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Caregiver Perspectives on Safety in Home Dementia Care |
Western journal of nursing research, 2007, USA |
Caregivers report a lot of concern about older adults’ safety, mainly due to the risk of falling and being lost if they leave the house. In general, the author identified four approaches taken by caregivers to help older adults: environment supervision, modification, encouragement of social and recreational activities, and moving to older adults’ residence. |
Lach HW Chang YP.2020 Lach HW, Chang YP. Perspectivas do cuidador sobre segurança no atendimento domiciliar à demência. West J Nurs Res. 2007;29(8):993-1014. http://dx.doi.org/10.1177/0193945907303098. PMid:17630389. http://dx.doi.org/10.1177/01939459073030...
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O cuidador e os cuidados ao portador de doença de Alzheimer: contribuições à enfermagem
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Revista Mineira de Enfermagem, 2008, Brazil |
Study carried out with eight family caregivers. The authors found several activities carried out by caregivers in the home environment, such as body hygiene, oral hygiene, food and hydration, help with basic activities such as dressing and combing hair, constant supervision and concern for maintaining communication. |
Fonseca AM, Soares E.2121 Fonseca AM, Soares E. O cuidador e os cuidados ao portador de doença de alzheimer: contribuições à enfermagem. Rev Min Enferm. [Internet]. 2008; [citado 2022 mar 4];12(4):501-7. Disponível em: https://pesquisa.bvsalud.org/portal/resource/pt/bde-17883 https://pesquisa.bvsalud.org/portal/reso...
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The demands of family caregivers of elderly individuals with dementia |
Revista da Escola de Enfermagem da USP, 2010, Brazil |
The study had the participation of 104 family caregivers and demonstrated that they help older adults in practically all activities of daily living (ADLs), and those that were assessed were body hygiene, oral hygiene, bowel movements, skin care, food, medication, sleep/rest, physical activity, leisure and return appointments. |
Gratao ACM, Vale FAC, Roriz-Cruz et al.2222 Gratao ACM, Vale FAC, Roriz-Cruz M, Haas VJ, Lange C, Talmelli LFS et al. The demands of family caregivers of elderly individuals with dementia. Rev Esc Enferm USP. 2010;44(4):873-80. http://dx.doi.org/10.1590/S0080-62342010000400003. PMid:21329110. http://dx.doi.org/10.1590/S0080-62342010...
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O idoso portador da doença de alzheimer: o cuidado e o conhecimento do cuidador familiar
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Revista Mineira de Enfermagem, 2010, Brazil |
The study included the participation of 14 family caregivers. Most care is related to concern for physical integrity, protection and constant observation, but it also extends to basic care such as body hygiene. There is also a report of concern with maintaining, at the very least, cognitive capacity through simple memory exercises, such as spelling words and doing math. |
Lenardt MH, Silva SC, Willig MH, Seima MD2323 Lenardt MH, Silva SC, Willig MH, Seima MD. O idoso portador da doença de Alzheimer: o cuidado e o conhecimento do cuidador familiar. Rev Min Enferm. [Internet]. 2010; [citado 2022 mar 4]; 14(3):301-7. Disponível em: https://pesquisa.bvsalud.org/portal/resource/pt/bde-19549 https://pesquisa.bvsalud.org/portal/reso...
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Cuidar de idosos com doença de alzheimer: um enfoque na teoria do cuidado cultural
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Revista RENE, 2012, Brazil |
In this study, the authors report care for older adults with a ritual of constant activities, which are repeated daily, during the day and at night, due to older adults’ dependence. Daily activities are usually based on helping with bathing, changing diapers, putting on clothes, providing meals, administering medications at the correct times, and mentioning watching television as a leisure activity. A total of 20 family caregivers participated in the study. |
Ramos JLC, Menezes MR.2424 Ramos JLC, Menezes MR. Cuidar de idosos com doença de Alzheimer: um enfoque na teoria do cuidado cultural. Rev Rene. [Internet]. 2012; [citado 2022 mar 4]; 13(4):805-15. Disponível em: http://www.periodicos.ufc.br/rene/article/view/4037 http://www.periodicos.ufc.br/rene/articl...
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A perspectiva do cuidador frente ao idoso com a doença de Alzheimer
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Rev. Pesquisa, 2013, Brazil |
The study brings, through the speeches of the ten family caregivers, the constant concern and care they provide in relation to older adults’ physical integrity, focusing mainly on falls. Therefore, they organize the home environment and always accompany older adults, even inside the home. Vigil is always constant and they try to keep older adults away from dangerous places and objects. Caregivers also have a routine of daily activities, which consists of helping with bathing, taking care of hair, brushing teeth, performing oral hygiene, dressing, feeding and hydration, changing chairs, taking to the bathroom, offering medications on time correct and take for walks. In cases where older adults are bedridden, caregivers are concerned with skin hydration and the acquisition of suitable mattresses to avoid injuries. |
Silva SPN, Aquino CAG, Barbosa TLA, Silva CSO, Xavier-Gomes LM.2525 Silva SPN, Aquino CAG, Barbosa TLA, Silva CSO, Xavier-Gomes LM. The perspective of caregiver front to the elderly people with Alzheimer Disease. Rev Pesqui Cuid Fundam Online. 2013:5(1):3333-42. http://dx.doi.org/10.9789/2175-5361.2013.v5i1.3333-3342. http://dx.doi.org/10.9789/2175-5361.2013...
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Estratégias de cuidado bucal para idosos com Doença de Alzheimer no domicílio
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Revista brasileira de Geriatria Gerontologia, 2016, Brazil |
The study brings oral health care performed at home by 30 caregivers, 26 family members, 1 friend and 3 professionals. The author identified the necessary care according to the dependency of older adults, showing the difference in care according to the evolution of the disease. |
Warmling AMF Santos SMA, Mello ALSF.2626 Warmling AMF, Santos SMA, Mello ALSF. Estratégias de cuidado bucal para idosos com Doença de Alzheimer no domicílio. Rev Bras Geriatr Gerontol. 2016;19(5):851-60. http://dx.doi.org/10.1590/1809-98232016019.160026. http://dx.doi.org/10.1590/1809-982320160...
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Dementia and patient safety in the community: a qualitative study of family carers’ protective practices and implications for services |
BMC health services research, 2019, Norway |
The 23 family caregivers participating in the study act to prevent physical harm through preventive presence, keeping company with older adults routinely or constantly to prevent falls or accidents at home. They help older adults to deal with their finances, helping with trips to banks or with electronic devices and controlling unnecessary expenses. Family caregivers also sought to prevent negative emotions for the person with dementia by providing leisure activities. |
Häikiö K, Sagbakken M, Rugkåsa J.2727 Häikiö K, Sagbakken M, Rugkåsa J. Dementia and patient safety in the community: a qualitative study of family carers’ protective practices and implications for services. BMC Health Serv Res. 2019;19(1):635. http://dx.doi.org/10.1186/s12913-019-4478-2. PMid:31488131. http://dx.doi.org/10.1186/s12913-019-447...
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