ABSTRACT
Objective
To understand family care modeling for children with SCZ from the theoretical contributions of the Rosette of Care in the chronic situation.
Methods
The study was conducted between October and November 2017 with 11 relatives, exploring in-depth interviews and story-theme design for data production.
Results
The Rosette of Care can be triggered from self-care or family care, performing care attitudes built on previous family experiences and interactions with care learned in health services. The modeling of care is supported by the family nucleus consisting of mother, father and grandmother, organizing it in four dimensions: Fully care, “Look after”, Stimulate, and Access resources and services. The mother recognizes the child's needs, judges the family's abilities and defines the caregiver.
Conclusion and implications for practice
The modeling of care is very personal due to the epidemic scenario and to the little scientific knowledge at the time, resulting in innovations in care attitudes. It is up to the nurses to support the relatives to recognize the health needs that emerge from the child, as well as to potentiate the division of care tasks, mainly stimulating the adequacy of the workload of the parents.
Keywords:
Mother-Child Relations; Family relations; Microcephaly; Zika virus Disabled children
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Source: Extracted from Bellato et al.
Source: Elaborated by the authors based on data from the in-depth interview.
Source: Elaborated by the authors based on data from the in-depth interview.