Psychic repercussions in mothers of children with congenital Zika virus syndrome

Bulhões, Camilla de Sena Guerra; Silva, Jeferson Barbosa; Moraes, Marina Nascimento de; Reichert, Altamira Pereira da Silva; Dias, Maria Djair; Almeida, Ana Maria

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Sumário

RESEARCH • Esc. Anna. Nery 24 (2) • 2020 • https://doi.org/10.1590/2177-9465-EAN-2019-0230 copy

Psychic repercussions in mothers of children with congenital Zika virus syndrome

Authorship SCIMAGO INSTITUTIONS RANKINGS

ABSTRACT

Objective

To investigate the psychic repercussions of mothers of children with complications due to Zika Virus Congenital Syndrome.

Method

Cross-sectional study with a two-step sequential mixed approach conducted in a Health Regional of a Northeast state. Participated in the first stage of the investigation, regarding the application of the Self-Reporting Questionnaire, 15 mothers. In the second stage, interviews were conducted with 13 mothers. The analysis was performed using statistical software (step 1) and the content analysis technique (step 2).

Results

It was observed that 10 women had a positive result for mental suffering. In the qualitative stage, the following stands out in the reports: the fear of loss/death or non-evolution of the child's condition, physical and psychological exhaustion as a result of continuous care, and the appearance / worsening of conflicts that negatively affect family dynamics.

Conclusion and Implications for practice

The results point to the need for health education actions in order to enable the exchange of knowledge, practices, and experiences; offering essential psychosocial support and strengthening support networks in the formal and informal health network, aiming to create/expand equipment to assist in self-care and empowerment of these women's identities and potentials.

Keywords:
Zika Virus; Microcephaly; Mothers; Mental health

SRQ-20 Questions	Yes		No
SRQ-20 Questions	n	%	n	%
Group 1: Depressive and anxious mood
Do you feel nervous, tense or worried?	12	80	3	20
Do you get scared easily?	6	40	9	60
Have you been sad lately?	7	46.7	8	53.3
Have you been crying more than usual?	4	26.7	11	73.3
Group 2: Somatic symptoms
Do you have frequent headaches?	7	46.7	8	53.3
Do you sleep badly?	6	40	9	60
Have unpleasant stomach sensations?	2	13.3	13	86.7
Do you have lack of appetite?	5	33.3	10	66.7
Do you have indigestion?	5	33.3	10	66.7
Do your hands tremble?	3	20	12	80
Group 3: Decreased vital energy
Do you feel tired easily?	6	40	9	60
Do you find difficult to perform your daily activities with satisfaction?	9	60	6	40
Have trouble making decisions?	11	73.3	4	26.7
Do you have difficulties at your work (is your work painful, does it cause you pain?	6	40	9	60
Have trouble thinking clearly?	10	66.7	5	33.3
Do you feel tired all the time?	8	53.3	7	46.7
Group 4: Depressive thoughts
Have you lost interest in things?	4	26.7	11	73.3
Do you feel like a useless, useless person?	3	20	12	80
Have you had any idea of ending life?	5	33.3	10	66.7
Are you incapable of developing a useful role in your life?	2	13.3	13	86.7

Domain	Speeches of the collaborators
Depressive/anxious mood	My biggest fear is that she will die, I'm afraid of losing her. I do everything not to think about it (Mother 1). My feeling of mother and woman since I learned of his illness is one of fear, I am very afraid that he will grow up, not talk and do not walk, so I get even sadder (Mother 5). I am still sad, moved because sometimes I get to the health unit and see the same children, of her own age, already walking, and she still in my arm (Mother 12). It's sad you know, because I think we are quite forgotten and to get things we have to go to justice (Mother 4). In my daily life with him sometimes I get very stressed, my husband doesn't help me much, even without being working. I never had any follow-up for me as his mother or with a psychologist, no one ever asked how I was (Mother 2). As a woman, I changed a lot, I developed depression and other things, it all started after she was born, and I found out that she was special. I am accompanied by CRAS, I take controlled medication (Mother 8).
Somatic Symptoms	Normally, I travel at dawn and don't sleep much because I have to wake up at 3 am to travel at 4 am. Sometimes we are so sleepy, we want to sleep, and we can't (Mother 1). There were days when my husband and I didn't even sleep... just thinking! (Mother 11). ... if we don’t give her medicine, she doesn't get better, she can't sleep, she stays up all night, I get to dawn the day without sleeping with her, it hurts me a lot (Mother 8).
Decreased Vital Energy	... there are times when we get suffocated with so many problems. Sometimes, as I told you, I find myself overwhelmed (Mother 10). Traveling is one of the most difficult times, because it is tiring even when I get home, I still have to do things, sometimes very downhearted, very tired (Mother 1). Time is just for him. I don't have time for anything (Mother 6). One of the difficulties I face is taking care of him alone (Mother 2). This treatment routine is terrible, very bad. I don't receive support from anyone, I always travel alone with my daughter and Jesus (Mother 9). My treatment routine with her is too busy. I go to Recife almost every day, which is far away but I have to go. I'm going in dawn, at four in the morning ã (Mother 7).
Depressive thoughts	I was very vain and now that whole vanity is over. I think I don't care about myself anymore, I worry about them, my children (Mother 1). My life comes down to taking care of him, I don't see myself as a woman, but as a mother, all the time close to him and for him (Mother 6). My life before her birth was a little different, I worked, went out to have fun, had a normal life, but after she was born everything changed, I see myself today as a mother, I don't have time for myself (Mother 9). Today, I see myself as a mother and not as a woman because I dedicate my life to her alone. I miss the person I was before, because I worked, had my money, I was independent and today I no longer see the possibility of returning to my earlier life (Mother 11). The most intense feeling I had was a very strong desire to die [...] I don't have much patience to take care of her, the feeling I have inside me is sometimes of abandoning her, not taking care anymore of no children (Mother 8).

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[1] Corresponding author:Jeferson Barbosa Silva. E-mail: jefersonbarbosasilva@gmail.com