Translation, cultural adaptation, and validation of the celiac disease DUX (CDDUX)

Lins, Manuela Torres Camara; Tassitano, Rafael Miranda; Brandt, Kátia Galeão; Castro Antunes, Margarida Maria de; Silva, Giselia Alves Pontes da

doi:10.1016/j.jped.2014.11.005

Acessibilidade / Reportar erro

Brasil

Español English

sumário « anterior atual seguinte »

Sumário

ORIGINAL ARTICLES • J. Pediatr. (Rio J.) 91 (5) • Sep-Oct 2015 • https://doi.org/10.1016/j.jped.2014.11.005 copy

Translation, cultural adaptation, and validation of the celiac disease DUX (CDDUX)^☆ ☆ Please cite this article as: Lins MT,Tassitano RM, Brant KG, Antunes MM, da Silva GA. Translation, cultural adaptation, and validation of the celiac disease DUX (CDDUX). J Pediatr (Rio J). 2015;91:448-54. ^☆☆ ☆☆ Study conducted at Universidade Federal de Pernambuco (UFPE), Recife, PE, Brazil.

Authorship SCIMAGO INSTITUTIONS RANKINGS

ABSTRACT

OBJECTIVE:

To translate, cross-culturally adapt, and validate a specific questionnaire for the evaluation of celiac children and adolescents, the celiac disease DUX (CDDUX).

METHODS:

The steps suggested by Reichenheim and Moraes (2007) were followed to obtain conceptual, item, semantic, operational, and measurement equivalences. Four pediatric gastroenterologists; a researcher with tool validation background; three English teachers; and 33 celiac patients, aged 8-18 years, and their caregivers participated in the study. The scores of celiac patients and those obtained from their caregivers were compared. Among the patients, the scores were compared in relation to gender and age.

RESULTS:

All items were considered relevant to the construct and good semantic equivalence of the version was acquired. During measurement equivalence, the exploratory factor analysis showed appropriate weight of all items and good internal consistency, with Cronbach's a of 0.81. Significant difference was found among the final scores of children and their caregivers. There was no difference among the final scores in relation to gender or age.

CONCLUSION:

The questionnaire was translated and adapted according to all the proposed steps, with all equivalences adequately met. It is a valid tool to access the QoL of celiac children and adolescents in the translated language.

Keywords:
Quality of life; Cross-cultural adaptation; Celiac disease

Original version	Final translated and adapted version
We would like to know how you feel these days	Nós gostaríamos de saber como você tem se sentido esses dias
Therefore, could you please indicate how you feel in different situations?	Você poderia indicar como se sente em diferentes situações?
You can do that by circling in each question one of the faces that fits you best. There are no wrong answers; it's about what you feel	Você pode fazer isso circulando em cada pergunta a carinha que mostre como você se sente. Não há respostas certas ou erradas; trata-se de saber como se sente

Please express how you’ve been feeling lately.	Por favor, circule a carinha que mostra como você tem se sentido ultimamente.
1. When I think of food containing gluten, I feel …	1. Quando você pensa em comida com glúten, você se sente …
2. When at school I am given food containing gluten, I find it …	2. Quando na escola lhe dão comida com glúten, você se sente …
3. Talking about my coeliac disease with others my age, I find …	3. Quando precisa falar para outros da sua idade sobre sua doença celíaca, você se sente…
4. Not being able to eat just everything, I find …	4. Não poder comer tudo faz você se sentir …
5. When someone offers me food that I can’t have, I feel …	5. Quando alguém lhe oferece comida que você não pode comer, você se sente …
6. When I have to explain to others what celiac disease is, I feel …	6. Quando você tem que explicar aos outros o que é doença celíaca, você se sente …
7. Talking about celiac disease I find …	7. Quando se fala sobre doença celíaca, você se sente …
8. Having to follow a lifelong diet, I find …	8. Ter que seguir uma dieta por toda a vida faz você se sentir …
9. Having to pay attention to what I eat, I find …	9. Ter que prestar atenção ao que você come faz você se sentir …
10. Having celiac disease is …	10. Ter doença celíaca é …
11. Not being able to eat anything I want like other people, I find …	11. Não poder comer tudo que você quer, como as outras pessoas, faz você se sentir …
12. Following a diet for my celiac disease is …	12. Ter que seguir uma dieta por causa da sua doença celíaca é …

Item	Communication	Having celiac disease	Diet
Q3. Talking about my coeliac disease with others my age, I find …	0.76^a	-0.14	0.54^a
Q6. When I have to explain to others what coeliac disease is, I feel …	0.81^a	0.02	0.56^a
Q7. Talking about coeliac disease I find …	0.81^a	0.06	0.41^b
Q1. When I think of food containing gluten, I feel …	-0.12	0.70^a	0.20
Q2. When at school I am given food containing gluten, I find it …	-0.15	0.79^a	0.26
Q5. When someone offers me food that I can’t have, I feel …	0.27	0.66^a	0.36^b
Q4. Not being able to eat just everything, I find …	0.29	0.28	0.77^a
Q8. Having to follow a lifelong diet, I find …	0.51^a	0.19	0.73^a
Q9. Having to pay attention to what I eat, I find …	0.47^a	-0.01	0.47^a
Q10. Having celiac disease is …	0.43^b	0.36^b	0.75^a
Q11. Not being able to eat anything I want like other people, I find …	0.24	0.39^b	0.79^a
Q12. Following a diet for my celiac disease is …	0.45^a	-0.01	0.47^a

Question	Factor loading			Value of a if it was excluded	Cronbach's a
	Communication	Having CD	Diet
Q3	0.84			0.79
Q6	0.68			0.79
Q7	0.68			0.80
Q1		0.73		0.82
Q2		0.75		0.81
Q5		0.62		0.80	0.81
Q4			0.83	0.78
Q8			0.62	0.79
Q9			0.57	0.80
Q10			0.62	0.78
Q11			0.83	0.78
Q12			0.72	0.81

Domain	Children and adolescents		Parent/guardian		p
	Mean	SD	Mean	SD
CDDUX	57.6	12.3	45.4	10.4	<0.01
Having celiac disease	44.0	13.8	45.4	14.3	0.68
Communication	71.3	18.1	38.4	10.7	<0.01
Diet	57.6	16.7	52.3	14.1	<0.01

Sociedade Brasileira de Pediatria Av. Carlos Gomes, 328 cj. 304, 90480-000 Porto Alegre RS Brazil, Tel.: +55 51 3328-9520 - Porto Alegre - RS - Brazil
E-mail: jped@jped.com.br

Acompanhe os números deste periódico no seu leitor de RSS

[1] *Corresponding author. E-mail: manuela.atorres@gmail.com(M.T.C. Lins).