Instructional videos for parents/guardians of children with lip and palate clefts: integrative literature review

Mendes, Débora Letícia Moreira; Andrade, Lucas Gabriel Nunes; Joaquim, Davide Carlos; Benedito, Francisco Cezanildo Silva; Leite, Ana Caroline Rocha de Melo; Girão-Carmona, Virgínia Cláudia Carneiro

doi:10.1016/j.jped.2024.02.004

Débora Letícia Moreira Mendes ^⁎⁎ Corresponding author. E-mail:deboraleticiamm@alu.ufc.br (D.L.M. Mendes)

Conceptualization

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formal analysis

investigation

methodology

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original draft

writing

review & editing

validation

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review & editing

Universidade Federal do Ceará, Faculdade de Medicina, Departamento de Morfologia, Fortaleza, CE, Brazil

https://orcid.org/0000-0001-9469-8208

Lucas Gabriel Nunes Andrade

Validation

visualization

writing

original draft

validation

visualization

writing

review & editing

Universidade Federal do Ceará, Faculdade de Medicina, Departamento de Morfologia, Fortaleza, CE, Brazil

https://orcid.org/0000-0002-5415-4916

Davide Carlos Joaquim

Data curation

formal analysis

investigation

methodology

validation

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writing

original draft

writing

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validation

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Universidade Federal do Ceará, Faculdade de Medicina, Departamento de Morfologia, Fortaleza, CE, Brazil

https://orcid.org/0000-0003-0245-3110

Francisco Cezanildo Silva Benedito

Validation

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original draft

validation

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Universidade Federal do Ceará, Faculdade de Medicina, Departamento de Morfologia, Fortaleza, CE, Brazil

https://orcid.org/0000-0002-7551-5370

Ana Caroline Rocha de Melo Leite

Project administration

supervision

validation

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review & editing

validation

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Universidade da Integração Internacional da Lusofonia Afro-Brasileira, Instituto de Ciências da Saúde, Centro-Redenção, CE, Brazil

https://orcid.org/0000-0002-9007-7970

Virgínia Cláudia Carneiro Girão-Carmona

Project administration

resources

supervision

validation

visualization

writing

review & editing

validation

visualization

writing

review & editing

Universidade Federal do Ceará, Faculdade de Medicina, Departamento de Morfologia, Fortaleza, CE, Brazil

https://orcid.org/0000-0002-0676-8585

Institution: Universidade Federal do Ceará (UFC) e Universidade da Integração Internacional da Lusofonia Afro-Brasileira (UNILAB).

⁎ Corresponding author. E-mail:deboraleticiamm@alu.ufc.br (D.L.M. Mendes)

Conflicts of interest

The authors declare no conflicts of interest.

N°	Database	Author/Year	Type of Study	Country	Journal	L.E.^* ⁎ Level of Evidence.
1	PubMed	Bozkurt and Aras, 2021.	Descriptive retrospective study	Türkiye	Cleft Palate-Craniofacial Journal	IV
2	PubMed	Davies et al., 2018.	Descriptive study	United Kingdom	Pilot and feasibility studies	IV
3	Web of Science	Deshmukh et al., 2022.	Descriptive cross-sectional pilot study	India	Special Care In Dentistry	IV
4	Web of Science	Hakim et al., 2021.	Randomized clinical trial study	Iran	Global Pediatric Health	I
5	PubMed	Korkmaz and Buyuk, 2020.	Retrospective study	Türkiye	Cleft Palate-Craniofacial Journal	III
6	PubMed	Murthy et al., 2020	Observational randomized clinical trial with concurrent parallel design	India	Special Care In Dentistry	I
7	Scopus	Razera et al., 2019.	Descriptive study	Brazil	Texto e Contexto Enfermagem	IV
8	VHL	Spoyalo et al., 2021	Qualitative descriptive study	Canada	Cleft Palate- Craniofacial Journal	IV

N°	Title	Objective
1	Cleft lip and palate YouTube videos: content usefulness and sentiment analysis.	To describe the content of YouTube videos about lip and palate clefts and analyze the sentiment of related comments.
2	Development of an implementation intention-based intervention to change children's and parent-carers' behavior.	To describe a video animation design to teach parents and children to improve oral health.
3	Virtual reality as a parent education tool in pre‐surgical management of cleft lip and palate affected infants — A pilot study.	To evaluate the influence of virtual reality on parents' acceptance of nasoalveolar molding as pre surgical care for infants affected by lip and palate clefts.
4	The effect of combined education on the knowledge and care and supportive performance of parents with children with cleft lip and palate: A clinical trial study.	To investigate the effect of combined education on knowledge, care, and support performance in parents of children with lip and palate clefts.
5	YouTube as a patient-information source for cleft lip and palate.	To evaluate the content and quality of popular YouTube videos about lip and palate clefts treatment.
6	Assisted breastfeeding technique to improve knowledge, attitude, and practices of mothers with cleft lip- and palate-affected infants: a randomized trial.	To compare the effectiveness of the audiovisual module designed over the traditional instructional module in improving assisted breastfeeding habits.
7	Construction of an educational video on postoperative care for cheiloplasty and palatoplasty.	To describe the development of an educational video about the postoperative care of primary cheiloplasty and palatoplasty surgeries.
8	Online cleft educational videos: parent preferences.	To determine what parents of children with lip and palate clefts value in online educational videos and assess whether their needs are currently being met.

N°	Main results
1	About 50 % of the videos were from the United States, and a third had no known country of origin. A quarter of the videos were sent by universities and hospitals; 22 % by health information sites; 17 % were provided by people with lip and palate clefts; 16 % by parents, and 15 % by health care providers. 49.1 % of the videos were educational and 48.2 described patients' experiences. Based on the 20 domains used for benchmarking, 31.5 % and 35.7 % of videos were rated as useful and very helpful, respectively. Related comment feelings include surgical pain, psychological issues, public embarrassment, and difficulty with physical appearance.
2	The team developed and refined the content and visuals with guidance from an advisory group and informal discussions with children in the target age group and their respective parents. The video explains how to formulate "if-then" action plans, starting from a conversation between a boy and his mother using the method, with oral health examples to illustrate the guidelines.
3	Most parents knew about feeding and how to assist in the feeding practice of infants affected by lip and palate clefts. However, only 33 % of participants in the control group were able to understand the physician's explanation of presurgical nasoalveolar molding. In comparison, 100 % of participants in the intervention group were able to visualize its benefits.
4	Forty parents of children with lip and palate clefts participated in the study, randomly divided into two groups of 20. After the educational intervention, the average score of parental care and support knowledge significantly increased in the intervention group compared to the control. There was also a significant difference in the average parental support performance score between the two groups.
5	There were fifty videos. 32 % were sent by a clinic; 54 % were classified as moderate informational content; 60 % were aimed at patient information; 54 % were classified as reasonable according to the satisfaction of the information provided, and the majority had average audiovisual quality or above.
6	There was a significant improvement in the mothers' knowledge from baseline to six months, however, practices indicated that mothers in the audiovisual module group had a better understanding of the condition and earlier adaptation to breastfeeding practices.
7	The evaluated items - content validity index referring to easy-to-understand and comprehensible language, good use of audiovisual resources, adequate transmission and distribution of content, maintenance of audience attention, facilitation of the memorization of messages, promotion of impact to stimulate attitudes and communication of the proposed objectives - were approved and agreed by most of the judges participating in the study.
8	Parents want accessible, trustworthy, relatable, and positive videos. They preferred short videos covering relevant topics as their child grows. The YouTube videos currently available only partially address these needs, such as hearing, teething, and surgeries for older children.

[1] Institution: Universidade Federal do Ceará (UFC) e Universidade da Integração Internacional da Lusofonia Afro-Brasileira (UNILAB).

Brasil

Brasil

Instructional videos for parents/guardians of children with lip and palate clefts: integrative literature review

Abstract

Objective

Source of data

Summary of the findings

Conclusions