Schmidt C, Bosa C. 20032
|
Review studies of the impact of global developmental disorders,
especially autism on the family. |
Systematic review/the exact number of participants was not
reported/Universidade Federal do Rio Grande do Sul, RS, Brazil |
5/11 (AMSTAR) |
High level of stress in families of children with ASD, with the
mother being the primary target; Feelings of helplessness by mothers in
relation to lack of support from their husbands regarding the
responsibilities related to the care of their child; emotional strain of
husbands/fathers regarding financial and occupational difficulties
(important guarantees for the child's care); family difficulties in
dealing with the symptoms (cognitive and communication deficits). |
Parents’ religious beliefs help them to overcome difficulties
at the time of diagnosis and during therapy. |
Bosa CA. 20067
|
Review the literature on the different interventions used in the
treatment of autism, with emphasis on those that are empirically
based. |
Nonsystematic review/the number of articles and participants
included was not informed/
Porto Alegre, RS, Brazil |
Does not apply |
Identifies mothers with more stress and depression due to
excess responsibility in relation to the child; Suffering of the parents
due to diagnostic postponement; |
It was observed that psychosocial interventions (stimulating
social and communication development) are effective. Strong influence of
social and health system support on family stress reduction. |
Barbosa MR, Fernandes FD. 20093
|
Evaluate the quality of life of caregivers of children with ASD
and determine whether there is some type of association between the
different domains and demographic aspects, such as parental education and
social class. |
Qualitative study assessing the quality of life of 150
caregivers of children with autism/Metropolitan Areas in Southeast
Brazil |
7/10 (CASP) |
Difficulties in access to healthcare services contribute to
increased stress in caregivers of children with ASD.
Difficulties
in dealing with the scarcity of recreational and educational activities
for the children. |
Factors such as access to leisure, healthcare, and transport
play an important role in the quality of life perceived by parents of
children with ASD. |
Vieira CB, Fernandes FD. 201316
|
Evaluate the quality of life in siblings of children with ASD
through the World Health Organization Quality of Life (WHOQOL-A)
questionnaire. |
Quantitative and qualitative study/21 siblings of autistic
children/São Paulo, SP, Brazil. |
8/10 (CASP) |
There was no significant reduction in quality of life of
siblings. QoL is influenced by coping strategies, family individuality,
and social support. |
The environment and health care influence the improvement in
the quality of life of children with ASD and their families. |
Favero-Nunes MA, dos Santos MA. 20109
|
Evaluate the itinerary undertaken by mothers of children with
ASD in their search for diagnosis and treatment, associating it to their
interaction with the affected child. |
Qualitative-quantitative/study of 20 mothers of children with
ASD/countryside São Paulo, Brazil. |
4/10 (CASP) |
Family's difficulties dealing with the “pilgrimage” in search
for healthcare and education services, diagnostic and treatment
postponement; difficulty accepting the loss of the perfect child;
physical and emotional burden mainly on the mothers to devote themselves
entirely to their children; concern about the future of their
children. |
Access to specialized medical care and the availability of a
multidisciplinary team, consisting mainly of psychologists and educators,
contribute to decrease the physical and emotional burden of mothers. |
Braga MR, Ávila LA.
20048
|
Comprehend, through the maternal perspective, the process of
detection of pervasive developmental disorders. |
Qualitative and quantitative study/20 mothers of children with
ASD features/Catanduva and São José do Rio Preto, SP, Brazil |
10/10 (CASP) |
Parental anxiety regarding diagnostic postponement; parents’
difficulty accepting the diagnosis. |
No coping strategies used by family members themselves were
observed. However, the study highlighted the need for more nurses trained
regarding the adequacy of personal, family, social, and therapeutic
resources, as well as educational programs on the subject. |
Bagarollo MF, Panhoca I. 201010
|
Analyze the dialogical processes of five autistic adolescents,
focusing on evidence from the experiences they had in daily life and
social expressions that permeate their oral discourse, seeking subsidies
for the therapeutic process of these subjects. |
Qualitative study/5 adolescents with ASD./Campinas, SP,
Brazil |
7/10 (CASP) |
Greater responsibility of parents in offering cultural and
social interactions to the child. Identifies the family as one of the
influential means in prolonging the childhood of the individual with
ASD. |
Speech therapy is crucial, as the social-cognitive function of
individuals with ASD is associated with the communication profile,
helping their interaction with parents. |
Sifuentes M,
Bosa CA. 201015
|
Assess the co-parenting of five couples (father/mother) with children
with autism, whose children were aged between 4 and 7 years. |
Collective case study/five couples with autistic
children./Porto Alegre and its metropolitan area, RS, Brazil |
3/10 (CASP) |
Mothers are the primary caregivers of autistic children and the
main stressor reported by them is the children's difficulty to perform
daily tasks. |
No specific strategy was reported. The importance of studies
and interventions directed at these families is emphasized. |
| Schmidt C, et al. 200717
|
Assess maternal coping strategies fordifficulties experienced by
individuals with autism and the mothers’ strategies to cope with their
own emotions triggered by this context. |
Qualitative study/30 mothers whose children have a diagnosis of
autism/Porto Alegre, RS, Brazil |
10/10 (CASP) |
Mothers’ difficulty in dealing with the symptoms (related to
communication, difficulties in daily activities, behavior and
developmental delays) |
The following were used: aggressive actions, avoiding and ignoring
stressors, distractions, seeking social/religious support, direct
actions, inaction, acceptance, emotional expression, and reassessment of
actions/planning of new actions. |
