1 |
McArdle, 2019McArdle, S. (2019). Parents’ experiences of health services for the treatment of eating disorders: A qualitative study. Journal of Mental Health, 28(4), 404-409. https://doi.org/10.1080/09638237.2017.1417558 https://doi.org/10.1080/09638237.2017.14...
, Ireland |
Explore parents 'experiences after contacting health services to treat their daughters' eating disorders |
Generic qualitative study; focus groups or semi-structured individual interviews; interpretative thematic analysis |
N = 15 |
12 mothers and 3 fathers |
Multiprofessional outpatient treatment or hospitalization |
2 |
Mitrofan, 2019Mitrofan, O., Petkova, H., Janssens, A., Kelly, J., Edwards, E., Nicholls, D. McNicholas, F., Simic, M., Eisler, I., Ford, T., & Byford, S. (2019). Care experiences of young people with eating disorders and their parents: Qualitative study. BJPsych Open, 5(1). https://doi.org/10.1192/bjo.2018.78 https://doi.org/10.1192/bjo.2018.78...
, United Kingdom |
Explore the perspectives of patients and parents on positive and negative aspects of the care offered to young people with eating disorders |
Generic qualitative study; online focus groups; thematic content analysis |
N = 11 |
9 mothers and 2 fathers |
Multiprofessional outpatient treatment or hospitalization |
3 |
Sun, 2019Sun, K. S., Lam, T. P., Kwok, K. W., Chong, K. Y., Poon, M. K., & Wu, D. (2019). Treatment of Chinese adolescents with anorexia nervosa in Hong Kong: The gap between treatment expectations and outcomes. PLOS ONE, 14(5), e0216582. https://doi.org/10.1371/journal.pone.0216582 https://doi.org/10.1371/journal.pone.021...
, China |
To analyze the search for help and the results of treatment for anorexia nervosa in a sample of family members. |
Generic qualitative study; semi-structured group interview; content analysis |
N = 6 |
4 mothers and 2 fathers |
Multiprofessional outpatient treatment or hospitalization |
4 |
Toubøl, 2019Toubøl, A., Koch‐Christensen, H., Bruun, P., & Nielsen, D. S. (2019). Parenting skills after participation in skills‐based training inspired by the New Maudsley Method: A qualitative study in an outpatient eating disorder setting. Scandinavian Journal of Caring Sciences, 33(4), 959-968. https://doi.org/10.1111/scs.12694 https://doi.org/10.1111/scs.12694...
, Denmark |
Examine the perception of parents of patients with eating disorders about their new skills after participating in skills-based training inspired by Maudsley's New Method. |
Generic qualitative study; focus groups; deductive thematic content analysis |
N = 21 |
11 fathers and 10 mothers |
Skills training for parents of outpatient patients |
5 |
Wufong, 2019Wufong, E., Rhodes, P., & Conti, J. (2019). “We don’t really know what else we can do”: Parent experiences when adolescent distress persists after the Maudsley and family-based therapies for anorexia nervosa. Journal of Eating Disorders, 7(5). https://doi.org/10.1186/s40337-019-0235-5 https://doi.org/10.1186/s40337-019-0235-...
, Australia |
Build an understanding of how parents of people with eating disorders assign meaning to their experiences and negotiate their identities in the context of multifamily therapy. |
Generic qualitative study; semi-structured interviews; critical discursive analysis |
N = 13 |
9 mothers and 4 fathers |
Family therapy |
6 |
Berends, 2018Berends, T., van de Lagemaat, M., van Meijel, B., Coenen, J., Hoek, H. W., & van Elburg, A. A. (2018). Relapse prevention in anorexia nervosa: Experiences of patients and parents. International Journal of Mental Health Nursing, 27, 1546-1555. https://doi.org/10.1111/inm.12456 https://doi.org/10.1111/inm.12456...
, The Netherlands |
Understand how patients and their parents experience work with Guideline Relapse Prevention, a guide to relapse prevention designed for the context of treatment of eating disorders. |
Generic qualitative study; semi-structured interviews; thematic content analysis |
N = 12 |
6 mothers and 6 fathers |
Use of a relapse prevention guide at a center specializing in eating disorders |
7 |
Langenberg, 2018Van Langenberg, T., Duncan, R. E., Allen, J. S., Sawyer, S. M., Le Grange, D., & Hughes, E. K. (2018). “They don’t really get heard”: A qualitative study of sibling involvement across two forms of family-based treatment for adolescent anorexia nervosa. Eating Disorders, 26(4), 373-387. https://doi.org/10.1080/10640266.2018.1453632 https://doi.org/10.1080/10640266.2018.14...
, Australia |
Explore the experience of families about the involvement of sisters and brothers in the treatment of eating disorders, from the perspective of siblings, patients and parents. |
Generic qualitative study; semi-structured interviews; thematic analysis |
N = 26 |
13 mothers, 12 siblings and 1 father |
Outpatient family treatment |
8 |
Prior, 2018Prior, A.-L., Woodward, D., Hoefkens, T., Clayton, D., Thirlaway, K., & Limbert, C. (2018). Telephone helplines as a source of support for eating disorders: Service user, carer, and health professional perspectives. Eating Disorders, 26(2), 164-184. https://doi.org/10.1080/10640266.2017.1364934 https://doi.org/10.1080/10640266.2017.13...
, United Kingdom |
Gain insight into the perspectives of those who may use or refer others to use an eating disorder telephone helpline, to identify the requirements and potentials of this service. |
Generic qualitative study; focus groups and individual interviews; inductive thematic analysis |
N = 4 |
Not specified |
Telephone lines to support family members and patients with eating disorders |
9 |
Wallis, 2017Wallis, A., Rhodes, P., Dawson, L., Miskovic-Wheatley, J., Madden, S., & Touyz, S. (2017). Relational containment: Exploring the effect of family-based treatment for anorexia on familial relationships. Journal of Eating Disorders, 5(1), 5-27. https://doi.org/10.1186/s40337-017-0156-0 https://doi.org/10.1186/s40337-017-0156-...
, Austrália |
To investigate the process of change in family relationships of adolescents with anorexia nervosa and their parents, who participated in a family treatment. |
Constructionist approach; individual interviews; analysis according to data-based theory |
N = 27 |
15 mothers and 12 fathers |
Family post-hospitalization treatment of patients with eating disorders |
10 |
Engman-Bredvik, 2016Engman-Bredvik, S., Carballeira Suarez, N., Levi, R., & Nilsson, K. (2016). Multi-family therapy in anorexia nervosa: A qualitative study of parental experiences. Eating Disorders, 24(2), 186-197. https://doi.org/10.1080/10640266.2015.1034053 https://doi.org/10.1080/10640266.2015.10...
, Sweden |
To investigate the experience of parents of patients with anorexia nervosa in multifamily therapy. |
Generic qualitative study; individual interviews; phenomenological analysis |
N = 12 |
6 mothers and 6 fathers |
Multifamily therapy for families of patients in multi-professional outpatient or inpatient treatment |
11 |
Macdonald, 2014MacDonald, P., Rhind, C., Hibbs, R., Goddard, E., Raenker, S., Todd, G., Schmidt, U., & Treasure, J. (2014). Carers’ assessment, skills and information sharing (CASIS) trial: A qualitative study of the experiential perspective of caregivers and patients. European Eating Disorders Review, 22(6), 430-438. https://doi.org/10.1002/erv.2320 https://doi.org/10.1002/erv.2320...
, United Kingdom |
Explore the perception of patients and their caregivers about the quality of the relationship between them after the caregivers have received a skills training intervention. |
Generic qualitative study; written questionnaires; thematic content analysis |
N = 115 |
Unspecified (mostly mothers) |
Skills training for caregivers of people with eating disorders undergoing hospitalization |
12 |
Patel, 2014, USA |
Understand how a child's eating disorder affects the parents' life and well-being; understand the main barriers and motivations that parents experience to engage in adaptive coping behaviors; determine what are the reactions to messages that encourage self-care. |
Generic qualitative study; focus groups; comparative analysis |
N = 19 |
15 mothers and 4 fathers |
Self-care messages for parents of people with eating disorders undergoing outpatient or hospital treatment |
13 |
Ma, 2012Ma, J. L. C. (2012). Perceived process of change in family therapy for eating disorders in Shenzhen, China: A qualitative study. Journal of Family Psychotherapy, 23(3), 184-201. https://doi.org/10.1080/08975353.2012.705638 https://doi.org/10.1080/08975353.2012.70...
, China |
Identify the symptomatic cycle of family interactions that maintained the symptoms of the eating disorder; find out if the family therapist, in his role as facilitator, promoted contextual changes in the family; understand the roles of the family and the therapist in these changes. |
Generic qualitative study; semi-structured family interviews and transcription analysis of recorded therapeutic sessions; content analysis |
N = 20 |
10 mothers and 10 fathers |
Family therapy offered at a family treatment center for eating disorders |
14 |
Whitney, 2012Whitney, J., Currin, L., Murray, J., & Treasure, J. (2012). Family work in anorexia nervosa: A qualitative study of carers’ experiences of two methods of family intervention. European Eating Disorders Review, 20(2), 132-141. https://doi.org/10.1002/erv.1077 https://doi.org/10.1002/erv.1077...
, United Kingdom |
Explore the perception of the effectiveness of treatment, caregiver satisfaction and the change process in caregivers of people with anorexia nervosa who participated in individual family work or in multi-family workshops |
Generic qualitative study; individual interviews; Interpretative Phenomenological Analysis |
N = 23 |
17 parents, 4 siblings, 1 husband and 1 daughter |
Family therapy or multifamily workshops for families of patients in hospital |
15 |
Ma, 2006Ma, J. L. C., & Lai, K. (2006). Perceived treatment effectiveness of family therapy for chinese patients suffering from anorexia nervosa: A qualitative inquiry. Journal of Family Social Work, 10(2), 59-74. https://doi.org/10.1300/J039v10n02_04 https://doi.org/10.1300/J039v10n02_04...
, China |
Explore the perception of patients with anorexia nervosa and their families about family therapy |
Generic qualitative study; family interviews; thematic analysis |
N = 24 families |
Parents (unspecified quantities) |
Family therapy at a treatment center for eating disorders |
16 |
Highet, 2005Highet, N., Thompson, M., & King, R. M. (2005). The experience of living with a person with an eating disorder: The impact on the carers. Eating Disorders, 13(4), 327-344. https://doi.org/10.1080/10640260591005227 https://doi.org/10.1080/1064026059100522...
, Australia |
Identify the experiences and difficulties of caregivers of people with eating disorders throughout the disease process up to the point of accessing treatment |
Generic qualitative study; focus groups and individual interviews; thematic analysis |
N = 24 |
Parents and partners (unspecified quantities) |
Treatment in specialized services for eating disorders |
17 |
Tierney, 2005Tierney, S. (2005). The treatment of adolescent anorexia nervosa: A qualitative study of the views of parents. Eating Disorders, 13(4), 369-379. https://doi.org/10.1080/10640260591005254 https://doi.org/10.1080/1064026059100525...
, United Kingdom |
Investigate the perspective of parents of people with eating disorders on treatment |
Generic qualitative study; semi-structured interviews; thematic analysis |
N = 14 |
8 mothers and 6 fathers |
Multiprofessional outpatient treatment or hospitalization |
18 |
McMaster, 2004McMaster, R., Beale, B., Hillege, S., & Nagy, S. (2004). The parent experience of eating disorders: Interactions with health professionals. International Journal of Mental Health Nursing, 13(1), 67-73. https://doi.org/10.1111/j.1447-0349.2004.00310.x https://doi.org/10.1111/j.1447-0349.2004...
, Australia |
Explore the interactions between parents of people with eating disorders and health professionals |
Generic qualitative study; individual interviews; thematic analysis |
N = 22 |
19 mothers and 3 fathers |
Multiprofessional outpatient treatment or hospitalization |
19 |
Winn, 2004Winn, S., Perkins, S., Murray, J., Murphy, R., & Schmidt, U. (2004). A qualitative study of the experience of caring for a person with bulimia nervosa. Part 2: Carers’ needs and experiences of services and other support. International Journal of Eating Disorders, 36(3), 269-279. https://doi.org/10.1002/eat.20068 https://doi.org/10.1002/eat.20068...
, United Kingdom |
Determine the extent to which health services meet the support needs of caregivers of people with bulimia nervosa and whether they feel the need to seek help for themselves. |
Generic qualitative study; telephone interviews; thematic content analysis |
N = 20 |
14 Mothers, 1 father and 5 emotional partners |
Multiprofessional outpatient treatment or hospitalization |