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Jagnoor et al./2018/ Índia22 Jagnoor J, Bekker S, Chamania S, Potokar T, Ivers R. Identifying priority policy issues and health system research questions associated with recovery outcomes for burns survivors in India: a qualitative inquiry. BMJ Open. 2018;8(3):e020045. DOI: 10.1136/bmjopen-2017-020045 https://doi.org/10.1136/bmjopen-2017-020...
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Identify priority policy and health system research issues associated with recovery outcomes for burn survivors in India. |
Participants recognized the challenges of burn care and recovery and identified the need for prolonged rehabilitation. |
Strengthening health systems can enable providers to address issues such as development/ delivery, protocols, capacity building, effective coordination, key organizations and referral networks. |
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Ross et al./2021/EUA77 Ross E, Crijns TJ, Ring D, Coopwood B. Social factors and injury characteristics associated with the development of perceived injury stigma among burn survivors. Burns. 2021;47(3):692-7. DOI: 10.1016/j.burns.2020.07.022 https://doi.org/10.1016/j.burns.2020.07....
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Analysis of patient and injury characteristics associated with social stigma by burn survivors from the NIDILRR Burn Model Systems. |
Facial burns and amputations are independent risk factors for social stigma, while the male gender and greater community integration were protective. |
Importance of counseling for patients who suffer facial burns and/amputations; and investing in outreach programs for burn survivors to improve social support. |
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Freitas et al./2019/ Brasil1313 Roberson JL, Pham J, Shen J, Stewart K, Hoyte-Williams PE, Mehta K, et al. Lessons Learned From Implementation and Management of Skin Allograft Banking Programs in Low- and Middle-Income Countries: A Systematic Review. J Burn Care Res. 2020;41(6):1271-8. DOI: 10.1093/jbcr/iraa093 https://doi.org/10.1093/jbcr/iraa093...
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To compare the perception of stigmatization, symptoms of depression and self-esteem in adults in the general population with burn survivors in Brazil and verify possible correlations between these populations. |
The Brazilian versions of the BR-PSQ-R, BDI and RSES were applied to 120 general population and 240 burn survivors. Moderate correlations were found between the perception of stigmatization and depression and the perception of stigmatization and self-esteem. |
Participants in the general population and burn survivors exhibit similar levels of perceived stigmatization; the general population had fewer symptoms of depression and higher self- esteem when compared to burn survivors. |
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Gauffin & Öster/2019/Uppsala, Suécia88 de Oliveira Freitas N, Pitta NC, Dantas RAS, Farina JA Jr, Rossi LA. Comparison of the perceived stigmatization measures between the general population and burn survivors in Brazil. Burns. 2020;46(2):416-22. DOI: 10.1016/j.burns.2019.07.035 https://doi.org/10.1016/j.burns.2019.07....
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To explore the perception of former burn patients about the specific health of the burn and investigate how these experiences correspond to the subscales of the BSHS-B. |
Between 2000 and 2007 - 20 respondents with TBSA >20% between 10 and 17 years after the burn. Despite extensive burns, respondents said they led a nearnormal life. Other topics after the burn were: skin problems, reduced use of morphine, the importance of work, stress, mentality and the health system. |
The BSHS-B alone may not be sufficient to assess the long-term self-perception of health of former burn patients. The investigation of supplementary areas that reflect the socio-cultural environment of former patients and personal factors can be of great importance. |
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Macleod et al./2016/ Nottingham, Inglaterra1414 Freitas NO, Forero CG, Caltran MP, Alonso J, Dantas RAS, Piccolo MS, et al. Validation of the Perceived Stigmatization Questionnaire for Brazilian adult burn patients. PLoS One. 2018;13(1):e0190747. DOI: 10.1371/journal.pone.0190747 https://doi.org/10.1371/journal.pone.019...
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Examine how PTSD and the preoccupation with appearance associated with burns are experienced when both difficulties occur. |
Interpretive phenomenological analysis of 8 women with PTSD symptoms, it was observed the concern with the appearance and the maintenance of the threat sensation through the social stigma acts as a trigger to relive the traumatic incident that caused the burn. |
The results suggest that psychosocial interventions need to be adapted to address processes related to concerns about change in appearance and traumatic reliving. |
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Barnett et al./2017/Malawi1515 Ren Z, Zhang P, Wang H, Wang H. Qualitative research investigating the mental health care service gap in Chinese burn injury patients. BMC Health Serv Res. 2018;18(1):902. DOI: 10.1186/s12913-018-3724-3 https://doi.org/10.1186/s12913-018-3724-...
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Record findings from a support group in Malawi and provide qualitative analysis of content discussed by burn survivors and caregivers |
Caregivers discussed issues of guilt and self-reproach for their children's injuries; emotional distance between caregiver and survivor, fears about the patient's probable death, and concerns about the future and stigma associated with burns |
Establishment of a support group in the burn unit provided space for burn survivors and their families to discuss subjective experiences and coping techniques. |
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Berg et al./2017/ Alemanha1010 Macleod R, Shepherd L, Thompson AR. Posttraumatic stress symptomatology and appearance distress following burn injury: An interpretative phenomenological analysis. Health Psychol. 2016;35(11):1197-204. DOI: 10.1037/hea0000391 https://doi.org/10.1037/hea0000391...
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To analyze whether patients at different periods since the burn differed in psychosocial impairment. |
Between 2006 and 2012, BSHS-B, HADS-D, PTSD, IES-R, PSQ and SCQ were asked about the quality of life. |
The results suggest persistence of the psychosocial burden over time after a burn. Psychosocial interventions may be indicated even many years after burns. |
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Roberson et al./2020/ Multicêntrico1616 Müller A, Smits D, Claes L, Jasper S, Berg L, Ipaktchi R, et al. Validation of the German version of the Perceived Stigmatization Questionnaire/Social Comfort Questionnaire in adult burn survivors. Burns. 2016;42(4):790-6. DOI: 10.1016/j.burns.2016.01.001 https://doi.org/10.1016/j.burns.2016.01....
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Multicenter study on tissue banks in low- and middle-income countries. |
Three thousand three hundred forty-six records and 33 reports from 17 countries were analyzed, and obstacles to bank creation were found: high capital costs and operating costs per graft; insufficient training opportunities; deregistration of donation and socio-cultural stigma around transplant donation. |
The availability of skin allografts can be improved by strategic investments in governance and regulatory frameworks; international cooperation initiatives; training programs; standardized protocols, and inclusive public awareness campaigns; Capacity-building efforts that involve key stakeholders can increase donation and transplant rates. |
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Freitas et al./2018/ Brasil1717 Borges RT, Lira CS, Silva RM, Gonçalves JL, Pena PFA. O empoderamento da mulher queimada por autoimolação e sua sustentação na religião e espiritualidade. Rev Bras Promoç Saúde. 2018;31(4):1-7.
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Validity of the Portuguese PSP version developed in the USA for burn patients. |
240 adult burn patients admitted to rehabilitation in two burn units in Brazil. PSQ scores were correlated with BDI, RSE, and two BSHS-R domains: affect and body image and interpersonal relationships. Confirmatory Item Factor Analysis (CIFA) was used to test the three factors (absence of friendly, confused, and hostile behavior) |
PSQ-R scores correlated strongly with depression, self-esteem, body image, and interpersonal relationships. Total PSQ-R scores were significantly lower for patients with visible scars. The PSQ-R showed reliability and validity comparable to the original version |
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Ren et al./2018/China1111 Barnett BS, Mulenga M, Kiser MM, Charles AG. Qualitative analysis of a psychological supportive counseling group for burn survivors and families in Malawi. Burns. 2017;43(3):602-7. DOI: 10.1016/j.burns.2016.09.027 https://doi.org/10.1016/j.burns.2016.09....
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Explore and conceptualize the obstacles encountered in providing mental health care to burn patients. |
Interview 16 burn patients, five nurses, four rehabilitation the- rapies, five physicians and eight caregivers about their experiences with current health services and barriers. |
Need to focus on the underlying social, economic, and cultural determinants of mental health care. |
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Müller et al./2016/ Alemanha99 Gauffin E, Öster C. Patient perception of long-term burn-specific health and congruence with the Burn Specific Health Scale-Brief. Burns. 2019;45(8):1833-40. DOI: 10.1016/j.burns.2018.12.015 https://doi.org/10.1016/j.burns.2018.12....
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Validity of the German version of the PSQ/ SCQ in burn victims. |
All PSQ/SCQ scales showed good internal consistency. Higher PSQ means/lower SCQ means were related to less social support, lower quality of life, and more symptoms of anxiety/depression. |
A four-factor structure and good validity of the PSQ/SCQ were evidenced. Further studies should investigate the application of the PSQ/SCQ in individuals with appearance differences unrelated to burns. |
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Borges et al./2018/ Brasil1212 Berg L, Meyer S, Ipaktchi R, Vogt PM, Müller A, de Zwaan M. Psychosocial Distress at Different Time Intervals after Burn Injury. Psychother Psychosom Med Psychol. 2017;67(6):231-9. DOI: 10.1055/s-0042-111006 https://doi.org/10.1055/s-0042-111006...
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Identify the relationship between spirituality and religiosity in women's empowerment burned by self-immolation. |
Method of “narrative of the disease” with support in women's speeches. |
The burn victim woman showed multiple nuances concerning self-image and self-esteem. Faith in religion and spirituality helped in overcoming personal and social conflicts. |