- sintomáticos (n=1)(22 Martínez-Triana R, Martínez-Rodríguez M, Guerra-Romero C, Guerra-González EM, Machado-Almeida T, Machín-García S, et al. Cuestionario para evaluar la calidad de vida relacionada con la salud de adultos con drepanocitosis. Rev Cuba Hematol Inmunol Hemoter [Internet]. 2012[cited 2016 May 28];28:385-97. Available from: http://scielo.sld.cu/pdf/hih/v28n4/hih07412.pdf
http://scielo.sld.cu/pdf/hih/v28n4/hih07...
) - que apresentavam crises dolorosas frequentes (n=9)(22 Martínez-Triana R, Martínez-Rodríguez M, Guerra-Romero C, Guerra-González EM, Machado-Almeida T, Machín-García S, et al. Cuestionario para evaluar la calidad de vida relacionada con la salud de adultos con drepanocitosis. Rev Cuba Hematol Inmunol Hemoter [Internet]. 2012[cited 2016 May 28];28:385-97. Available from: http://scielo.sld.cu/pdf/hih/v28n4/hih07412.pdf
http://scielo.sld.cu/pdf/hih/v28n4/hih07...
,1313 McClish DK, Penberthy LT, Bovbjerg VE, Roberts JD; Aisiku IP, Levenson JL, et al. Health related quality of life in sickle cell patients: The PiSCES project. Health Qual Life Outcomes[Internet]. 2005[cited 2016 Jun 25];3(50):1-7. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1253526/
http://www.ncbi.nlm.nih.gov/pmc/articles...
14 Ballas SK, Barton FB, Waclawiw MA, Swerdlow P, Eckman JR, Pegelow CH, et al. Hydroxyurea and sickle cell anemia: effect on quality of life. Health Qual Life Outcomes[Internet]. 2006[cited 2016 May 27];4(59):1-8. Available from: http://www.hqlo.com/content/pdf/1477-7525-4-59.pdf
http://www.hqlo.com/content/pdf/1477-752...
-1515 Asnani, M, Lipps G, Reid M. Utility of WHOQOL-BREF in measuring quality of life in sickle cell disease. Health Qual Life Outcomes[Internet]. 2009[cited 2016 Jul 26];7(75):1-6. Available from: http://www.smj.org.sa/index.php/smj/article/viewFile/771/407
http://www.smj.org.sa/index.php/smj/arti...
16 van Tuijn CF, van Beers EJ, Schnog JJ, Biemond BJ. Pain rate and social circumstances rather than cumulative organ damage determine the quality of life in adults with sickle cell disease. Am J Hematol [Internet]. 2010[cited 2016 Oct 13];85(7):532-5. Available from: http://onlinelibrary.wiley.com/doi/10.1002/ajh.21731/epdf
http://onlinelibrary.wiley.com/doi/10.10...
17 Dampier C, LeBeau P, Rhee S, Lieff S, Kesler K, Ballas S, et al. Health-related quality of life in adults with sickle cell disease (SCD): a report from the comprehensive sickle cell centers clinical trial consortium. Am J Hematol[Internet]. 2011[cited 2016 Aug 18];86(2):203-5. Available from: http://onlinelibrary.wiley.com/doi/10.1002/ajh.21905/pdf
http://onlinelibrary.wiley.com/doi/10.10...
18 Anie KA, Grocott H, White L, Dzingina M, Rogers G, Cho G. Patient self-assessment of hospital pain, mood and health-related quality of life in adults with sickle cell disease. BMJ Open[Internet]. 2012 [cited 2016 Oct 12];2(4):1-6. Available from: http://bmjopen.bmj.com/content/2/4/e001274.full.pdf+html
http://bmjopen.bmj.com/content/2/4/e0012...
-1919 Ohara DG, Ruas G, Castro SS, Martins PR, Walsh IA. Musculoskeletal pain, profile and quality of life of individuals with sickle cell disease. Rev Bras Fisioter [Internet]. 2012[cited 2016 Oct 13];16(5):431-8. Available from: http://www.scielo.br/pdf/rbfis/v16n5/pt_aop040_12.pdf
http://www.scielo.br/pdf/rbfis/v16n5/pt_...
,2525 Pereira SAS, Brener S, Cardoso CS, Proietti ABFC. Sickle Cell Disease: quality of life in patients with hemoglobin SS and SC disorders. Rev Bras Hematol Hemoter[Internet]. 2013[cited 2016 Oct 25];35(5):325-31. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3832312/pdf/rbhh-35-05-0325.pdf
http://www.ncbi.nlm.nih.gov/pmc/articles...
,2828 Vilela RQB, Cavalcante FC, Cavalcante BF, Araujo DL, Lobo MM, Nunes FAT. Quality of life of individuals with sickle cell disease followed at referral centers in Alagoas, Brazil. Rev Bras Hematol Hemoter[Internet]. 2012[cited 2016 Oct 12];34(6):442-6. Available from: http://www.scielo.br/pdf/rbhh/v34n6/v34n6a14.pdf
http://www.scielo.br/pdf/rbhh/v34n6/v34n...
) - com forma grave da doença (n=8)(11 Asnani MR, Reid ME, Ali SB, Lipps G, Williams-Green P. Quality of life in patients with sickle cell disease in Jamaica: rural-urban differences. Rural Remote Health [Internet]. 2008[cited 2015 Jul 21];8(2):1-9. Available from: http://www.rrh.org.au/publishedarticles/article_print_890.pdf
http://www.rrh.org.au/publishedarticles/...
,22 Martínez-Triana R, Martínez-Rodríguez M, Guerra-Romero C, Guerra-González EM, Machado-Almeida T, Machín-García S, et al. Cuestionario para evaluar la calidad de vida relacionada con la salud de adultos con drepanocitosis. Rev Cuba Hematol Inmunol Hemoter [Internet]. 2012[cited 2016 May 28];28:385-97. Available from: http://scielo.sld.cu/pdf/hih/v28n4/hih07412.pdf
http://scielo.sld.cu/pdf/hih/v28n4/hih07...
,1313 McClish DK, Penberthy LT, Bovbjerg VE, Roberts JD; Aisiku IP, Levenson JL, et al. Health related quality of life in sickle cell patients: The PiSCES project. Health Qual Life Outcomes[Internet]. 2005[cited 2016 Jun 25];3(50):1-7. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1253526/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,1616 van Tuijn CF, van Beers EJ, Schnog JJ, Biemond BJ. Pain rate and social circumstances rather than cumulative organ damage determine the quality of life in adults with sickle cell disease. Am J Hematol [Internet]. 2010[cited 2016 Oct 13];85(7):532-5. Available from: http://onlinelibrary.wiley.com/doi/10.1002/ajh.21731/epdf
http://onlinelibrary.wiley.com/doi/10.10...
17 Dampier C, LeBeau P, Rhee S, Lieff S, Kesler K, Ballas S, et al. Health-related quality of life in adults with sickle cell disease (SCD): a report from the comprehensive sickle cell centers clinical trial consortium. Am J Hematol[Internet]. 2011[cited 2016 Aug 18];86(2):203-5. Available from: http://onlinelibrary.wiley.com/doi/10.1002/ajh.21905/pdf
http://onlinelibrary.wiley.com/doi/10.10...
-1818 Anie KA, Grocott H, White L, Dzingina M, Rogers G, Cho G. Patient self-assessment of hospital pain, mood and health-related quality of life in adults with sickle cell disease. BMJ Open[Internet]. 2012 [cited 2016 Oct 12];2(4):1-6. Available from: http://bmjopen.bmj.com/content/2/4/e001274.full.pdf+html
http://bmjopen.bmj.com/content/2/4/e0012...
,2626 Mastandréa EB, Lucchesi F, Kitayama MMG, Figueiredo MS, Citero VA. The relationship between genotype, psychiatric symptoms and quality of life in adult patients with sickle cell disease in São Paulo, Brazil: a cross-sectional study. Sao Paulo Med J[Internet]. 2015[cited 2016 Oct 22];133(5):421-7. Available from: http://www.scielo.br/pdf/spmj/v133n5/1516-3180-spmj-2015-00171105.pdf
http://www.scielo.br/pdf/spmj/v133n5/151...
,2828 Vilela RQB, Cavalcante FC, Cavalcante BF, Araujo DL, Lobo MM, Nunes FAT. Quality of life of individuals with sickle cell disease followed at referral centers in Alagoas, Brazil. Rev Bras Hematol Hemoter[Internet]. 2012[cited 2016 Oct 12];34(6):442-6. Available from: http://www.scielo.br/pdf/rbhh/v34n6/v34n6a14.pdf
http://www.scielo.br/pdf/rbhh/v34n6/v34n...
) - com internações frequentes (n=1)(2525 Pereira SAS, Brener S, Cardoso CS, Proietti ABFC. Sickle Cell Disease: quality of life in patients with hemoglobin SS and SC disorders. Rev Bras Hematol Hemoter[Internet]. 2013[cited 2016 Oct 25];35(5):325-31. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3832312/pdf/rbhh-35-05-0325.pdf
http://www.ncbi.nlm.nih.gov/pmc/articles...
) - que necessitavam de transfusões de sangue (n=2)(2121 Ahmed AE, Alaskar AS, Al-Suliman AM, Jazieh AR, McClish DK, Al Salamah M, et al. Health-related quality of life in patients with sickle cell disease in Saudi Arabia. Health Qual Life Outcomes[Internet]. 2015[cited 2016 Jul 18];13:183. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4647668/
http://www.ncbi.nlm.nih.gov/pmc/articles...
,2525 Pereira SAS, Brener S, Cardoso CS, Proietti ABFC. Sickle Cell Disease: quality of life in patients with hemoglobin SS and SC disorders. Rev Bras Hematol Hemoter[Internet]. 2013[cited 2016 Oct 25];35(5):325-31. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3832312/pdf/rbhh-35-05-0325.pdf
http://www.ncbi.nlm.nih.gov/pmc/articles...
) - com comorbidades ou complicações impostas pela doença (n=3)(1717 Dampier C, LeBeau P, Rhee S, Lieff S, Kesler K, Ballas S, et al. Health-related quality of life in adults with sickle cell disease (SCD): a report from the comprehensive sickle cell centers clinical trial consortium. Am J Hematol[Internet]. 2011[cited 2016 Aug 18];86(2):203-5. Available from: http://onlinelibrary.wiley.com/doi/10.1002/ajh.21905/pdf
http://onlinelibrary.wiley.com/doi/10.10...
,2020 Al Jaouni SK, Al Muhayawi MS, Halawa TF, Al Mehayawi MS. Treatment adherence and quality of life outcomes in patients with sickle cell disease. Saudi Med J[Internet]. 2013[cited 2016 Jun 08];34(3):261-5. Available from: http://www.smj.org.sa/index.php/smj/article/viewFile/771/407
http://www.smj.org.sa/index.php/smj/arti...
,2525 Pereira SAS, Brener S, Cardoso CS, Proietti ABFC. Sickle Cell Disease: quality of life in patients with hemoglobin SS and SC disorders. Rev Bras Hematol Hemoter[Internet]. 2013[cited 2016 Oct 25];35(5):325-31. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3832312/pdf/rbhh-35-05-0325.pdf
http://www.ncbi.nlm.nih.gov/pmc/articles...
) - com menores taxas de hemoglobina (n=1)(22 Martínez-Triana R, Martínez-Rodríguez M, Guerra-Romero C, Guerra-González EM, Machado-Almeida T, Machín-García S, et al. Cuestionario para evaluar la calidad de vida relacionada con la salud de adultos con drepanocitosis. Rev Cuba Hematol Inmunol Hemoter [Internet]. 2012[cited 2016 May 28];28:385-97. Available from: http://scielo.sld.cu/pdf/hih/v28n4/hih07412.pdf
http://scielo.sld.cu/pdf/hih/v28n4/hih07...
) - que não aderiam ou com ou início tardio do tratamento (n=1)(2020 Al Jaouni SK, Al Muhayawi MS, Halawa TF, Al Mehayawi MS. Treatment adherence and quality of life outcomes in patients with sickle cell disease. Saudi Med J[Internet]. 2013[cited 2016 Jun 08];34(3):261-5. Available from: http://www.smj.org.sa/index.php/smj/article/viewFile/771/407
http://www.smj.org.sa/index.php/smj/arti...
) - que se declararam vítimas de preconceito devido à doença (n=1)(33 Roberti MDRF, Moreira CLNSO, Tavares RS, Borges Filho HM, Silva AG, Maia CHG, et al. Evaluation of quality of life of patients with sickle cell disease in a General Hospital of Goiás, Brazil, Brasil. Rev Bras Hematol Hemoter[Internet]. 2010[cited 2016 Apr 28];32:449-54. Available from: http://www.scielo.br/pdf/rbhh/v32n6/08.pdf
http://www.scielo.br/pdf/rbhh/v32n6/08.p...
) - com transtorno de humor (n=1)(2828 Vilela RQB, Cavalcante FC, Cavalcante BF, Araujo DL, Lobo MM, Nunes FAT. Quality of life of individuals with sickle cell disease followed at referral centers in Alagoas, Brazil. Rev Bras Hematol Hemoter[Internet]. 2012[cited 2016 Oct 12];34(6):442-6. Available from: http://www.scielo.br/pdf/rbhh/v34n6/v34n6a14.pdf
http://www.scielo.br/pdf/rbhh/v34n6/v34n...
)
|
- com dupla heterozigose (HbSC) (n=3)(11 Asnani MR, Reid ME, Ali SB, Lipps G, Williams-Green P. Quality of life in patients with sickle cell disease in Jamaica: rural-urban differences. Rural Remote Health [Internet]. 2008[cited 2015 Jul 21];8(2):1-9. Available from: http://www.rrh.org.au/publishedarticles/article_print_890.pdf
http://www.rrh.org.au/publishedarticles/...
,1717 Dampier C, LeBeau P, Rhee S, Lieff S, Kesler K, Ballas S, et al. Health-related quality of life in adults with sickle cell disease (SCD): a report from the comprehensive sickle cell centers clinical trial consortium. Am J Hematol[Internet]. 2011[cited 2016 Aug 18];86(2):203-5. Available from: http://onlinelibrary.wiley.com/doi/10.1002/ajh.21905/pdf
http://onlinelibrary.wiley.com/doi/10.10...
,2626 Mastandréa EB, Lucchesi F, Kitayama MMG, Figueiredo MS, Citero VA. The relationship between genotype, psychiatric symptoms and quality of life in adult patients with sickle cell disease in São Paulo, Brazil: a cross-sectional study. Sao Paulo Med J[Internet]. 2015[cited 2016 Oct 22];133(5):421-7. Available from: http://www.scielo.br/pdf/spmj/v133n5/1516-3180-spmj-2015-00171105.pdf
http://www.scielo.br/pdf/spmj/v133n5/151...
) - com formas menos graves da doença falciforme (n=3)(11 Asnani MR, Reid ME, Ali SB, Lipps G, Williams-Green P. Quality of life in patients with sickle cell disease in Jamaica: rural-urban differences. Rural Remote Health [Internet]. 2008[cited 2015 Jul 21];8(2):1-9. Available from: http://www.rrh.org.au/publishedarticles/article_print_890.pdf
http://www.rrh.org.au/publishedarticles/...
,77 Keller SD, Yang M, Treadwell MJ, Werner EM, Hassell KL. Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks. Health Qual Life Outcomes[Internet]. 2014[cited 2016 Apr 30];12(1):1-11. Available from: http://www.hqlo.com/content/12/1/125
http://www.hqlo.com/content/12/1/125...
,1717 Dampier C, LeBeau P, Rhee S, Lieff S, Kesler K, Ballas S, et al. Health-related quality of life in adults with sickle cell disease (SCD): a report from the comprehensive sickle cell centers clinical trial consortium. Am J Hematol[Internet]. 2011[cited 2016 Aug 18];86(2):203-5. Available from: http://onlinelibrary.wiley.com/doi/10.1002/ajh.21905/pdf
http://onlinelibrary.wiley.com/doi/10.10...
) - que viviam em área rural (n=1)(11 Asnani MR, Reid ME, Ali SB, Lipps G, Williams-Green P. Quality of life in patients with sickle cell disease in Jamaica: rural-urban differences. Rural Remote Health [Internet]. 2008[cited 2015 Jul 21];8(2):1-9. Available from: http://www.rrh.org.au/publishedarticles/article_print_890.pdf
http://www.rrh.org.au/publishedarticles/...
) - casados (n=2)(55 Adams-Graves P, Lamar K, Johnson C, Corley P. Development and validation of SIMS: An instrument for measuring quality of life of adults with sickle cell disease. Am J Hematol[Internet]. 2008[cited 2016 May 30];83(7):558-62. Available from: http://onlinelibrary.wiley.com/doi/10.1002/ajh.21146/pdf
http://onlinelibrary.wiley.com/doi/10.10...
,2828 Vilela RQB, Cavalcante FC, Cavalcante BF, Araujo DL, Lobo MM, Nunes FAT. Quality of life of individuals with sickle cell disease followed at referral centers in Alagoas, Brazil. Rev Bras Hematol Hemoter[Internet]. 2012[cited 2016 Oct 12];34(6):442-6. Available from: http://www.scielo.br/pdf/rbhh/v34n6/v34n6a14.pdf
http://www.scielo.br/pdf/rbhh/v34n6/v34n...
)- mulheres (n=1)(55 Adams-Graves P, Lamar K, Johnson C, Corley P. Development and validation of SIMS: An instrument for measuring quality of life of adults with sickle cell disease. Am J Hematol[Internet]. 2008[cited 2016 May 30];83(7):558-62. Available from: http://onlinelibrary.wiley.com/doi/10.1002/ajh.21146/pdf
http://onlinelibrary.wiley.com/doi/10.10...
) - empregados (n=3)(1,1818 Anie KA, Grocott H, White L, Dzingina M, Rogers G, Cho G. Patient self-assessment of hospital pain, mood and health-related quality of life in adults with sickle cell disease. BMJ Open[Internet]. 2012 [cited 2016 Oct 12];2(4):1-6. Available from: http://bmjopen.bmj.com/content/2/4/e001274.full.pdf+html
http://bmjopen.bmj.com/content/2/4/e0012...
,2121 Ahmed AE, Alaskar AS, Al-Suliman AM, Jazieh AR, McClish DK, Al Salamah M, et al. Health-related quality of life in patients with sickle cell disease in Saudi Arabia. Health Qual Life Outcomes[Internet]. 2015[cited 2016 Jul 18];13:183. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4647668/
http://www.ncbi.nlm.nih.gov/pmc/articles...
) - com renda superior a 30 mil dólares ao ano (n=1)(55 Adams-Graves P, Lamar K, Johnson C, Corley P. Development and validation of SIMS: An instrument for measuring quality of life of adults with sickle cell disease. Am J Hematol[Internet]. 2008[cited 2016 May 30];83(7):558-62. Available from: http://onlinelibrary.wiley.com/doi/10.1002/ajh.21146/pdf
http://onlinelibrary.wiley.com/doi/10.10...
) - com 12 anos ou mais de escolaridade (n=3)(55 Adams-Graves P, Lamar K, Johnson C, Corley P. Development and validation of SIMS: An instrument for measuring quality of life of adults with sickle cell disease. Am J Hematol[Internet]. 2008[cited 2016 May 30];83(7):558-62. Available from: http://onlinelibrary.wiley.com/doi/10.1002/ajh.21146/pdf
http://onlinelibrary.wiley.com/doi/10.10...
,1818 Anie KA, Grocott H, White L, Dzingina M, Rogers G, Cho G. Patient self-assessment of hospital pain, mood and health-related quality of life in adults with sickle cell disease. BMJ Open[Internet]. 2012 [cited 2016 Oct 12];2(4):1-6. Available from: http://bmjopen.bmj.com/content/2/4/e001274.full.pdf+html
http://bmjopen.bmj.com/content/2/4/e0012...
,2121 Ahmed AE, Alaskar AS, Al-Suliman AM, Jazieh AR, McClish DK, Al Salamah M, et al. Health-related quality of life in patients with sickle cell disease in Saudi Arabia. Health Qual Life Outcomes[Internet]. 2015[cited 2016 Jul 18];13:183. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4647668/
http://www.ncbi.nlm.nih.gov/pmc/articles...
) - em tratamento com hidroxiureia (n=1)(1414 Ballas SK, Barton FB, Waclawiw MA, Swerdlow P, Eckman JR, Pegelow CH, et al. Hydroxyurea and sickle cell anemia: effect on quality of life. Health Qual Life Outcomes[Internet]. 2006[cited 2016 May 27];4(59):1-8. Available from: http://www.hqlo.com/content/pdf/1477-7525-4-59.pdf
http://www.hqlo.com/content/pdf/1477-752...
) - que recebiam tratamentos eficazes para dor e depressão (n=1)(1717 Dampier C, LeBeau P, Rhee S, Lieff S, Kesler K, Ballas S, et al. Health-related quality of life in adults with sickle cell disease (SCD): a report from the comprehensive sickle cell centers clinical trial consortium. Am J Hematol[Internet]. 2011[cited 2016 Aug 18];86(2):203-5. Available from: http://onlinelibrary.wiley.com/doi/10.1002/ajh.21905/pdf
http://onlinelibrary.wiley.com/doi/10.10...
) - com intervenção médica precoce e adesão ao tratamento (n=1)(2020 Al Jaouni SK, Al Muhayawi MS, Halawa TF, Al Mehayawi MS. Treatment adherence and quality of life outcomes in patients with sickle cell disease. Saudi Med J[Internet]. 2013[cited 2016 Jun 08];34(3):261-5. Available from: http://www.smj.org.sa/index.php/smj/article/viewFile/771/407
http://www.smj.org.sa/index.php/smj/arti...
) - com prática regular de atividade física (n=1)(2121 Ahmed AE, Alaskar AS, Al-Suliman AM, Jazieh AR, McClish DK, Al Salamah M, et al. Health-related quality of life in patients with sickle cell disease in Saudi Arabia. Health Qual Life Outcomes[Internet]. 2015[cited 2016 Jul 18];13:183. Available from: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4647668/
http://www.ncbi.nlm.nih.gov/pmc/articles...
). |