Ibikunle PO, Nwokeji SC (2017)(3333 Ibikunle PO, Nwokeji SC. Assessment of stigma among people living with Hansen’s disease in south-east Nigeria. Lepr Rev. 2017;88:43-57. https://doi.org/10.47276/lr.88.1.43 https://doi.org/10.47276/lr.88.1.43...
) |
Nigeria |
Cross-sectional |
Primary Care/Specialized Care |
The Explanatory model interview catalogue (EMIC-a); The internalised stigma of mental illness scale (ISMI); The Participation scale: P-Scale;Eye, Hand & Foot impairment (EHF) Score. |
Silva AC, Ferreira RC, Ferreira MA, Ribeiro MT(2014)(1717 Silva AC, Ferreira RC, Ferreira MA, Ribeiro MT. Association between the degree of physical impairment from leprosy and dependence in activities of daily living among the elderly in a health unit in the State of Minas Gerais. Rev Soc Bras Med Trop. 2014;47(2):212-7. https://doi.org/10.1590/0037-8682-0012-2014 https://doi.org/10.1590/0037-8682-0012-2...
) |
Brazil |
Cross-sectional |
Hospital Care |
The basic activities of daily living (BADL) e instrumental activities of daily living (IADL). |
Abdela SG, Van Henten S, Abegaz SH, Bayuh FB, Zewdu FT, BerheFT, et al (2020)(1818 Abdela SG, Van Henten S, Abegaz SH, Bayuh FB, Zewdu FT, Berhe FT, et al. Activity limitation and social participation restriction among leprosy patients in BoruMeda Hospital, Amhara Region, Ethiopia. PLoS Negl Trop Dis. 2020;14(9):e0008702. https://doi.org/10.1371/journal.pntd.0008702 https://doi.org/10.1371/journal.pntd.000...
) |
Ethiopia |
Cross-sectional |
Hospital Care |
Screening of Activity Limitation and Safety Awareness (SALSA) scale e participation scale |
Nascimento DDS, Ramos AN Jr, Araújo OD, Macêdo SF, Silva GVD, Lopes WMPS, et al(2020)(1919 Nascimento DDS, Ramos AN Jr, Araújo OD, Macêdo SF, Silva GVD, Lopes WMPS, et al. Activity limitation and social participation restriction of people with leprosy: a cross-sectional analysis of magnitude and associated factors in a hyperendemic municipality in the state of Piauí, Brazil, 2001-2014. Epidemiol Serv Saude. 2020;29(3):e2019543. https://doi.org/10.5123/S1679-49742020000300012 https://doi.org/10.5123/S1679-4974202000...
) |
Brazil |
Cross-sectional |
Primary Care |
Screening of Activity Limitation and Safety Awareness (SALSA) scale e participation scale. |
Achdiat PA, Ariyanto EF, Simanjuntak MN (2021)(88 Achdiat PA, Ariyanto EF, Simanjuntak MN. A literature review: the history of psychological impact of illness amongst people with Leprosy (PwL) in Countries across the Globe. Dermatol Res Pract. 2021;5519608. https://doi.org/10.1155/2021/5519608 https://doi.org/10.1155/2021/5519608...
) |
Indonesia |
Review |
|
|
Sousa NP, Silva MIB, Lobo CG, Barboza MCC, Abdon APV (2011)(55 Sousa NP, Silva MIB, Lobo CG, Barboza MCC, Abdon APV. Análise da qualidade de vida em pacientes com incapacidades funcionais decorrentes de hanseníase. Hansen Int. 2011;36(1):11-6. https://doi.org/10.47878/hi.2011.v36.35107 https://doi.org/10.47878/hi.2011.v36.351...
) |
Brazil |
Cross-sectional |
Specialized Care |
Medical Outcome Study 36-item Short-form Health Survey (SF36); a questionnaire addressing epidemiological, socioeconomic, and disease characteristics. |
Carvalho MAJ, Lopes NTB, Santos TS, Santos KS, Farnocchi PG, Tavares CM (2013)(3939 Carvalho MAJ, Lopes NTB, Santos TS, Santos KS, Farnocchi PG, Tavares CM. Avaliação das incapacidades físicas em ex-portadores de hanseníase da época do isolamento compulsório. Hansen Int. 2013;38(1/2):47-55. https://doi.org/10.47878/hi.2013.v38.35075 https://doi.org/10.47878/hi.2013.v38.350...
) |
Brazil |
Descriptive |
Primary Care |
Sociodemographic Questionnaire; Simplified Neurological Evaluation Form. |
Benedicto CB, Marques T, Milano AP, Galan NGA, Nardi ST, Duerksen Frank, et al (2017)(2020 Benedicto CB, Marques T, Milano AP, Galan NGA, Nardi ST, Duerksen Frank, et al. Quality of life, physical disability, and the human figure drawing assessment of patients with neuropathies in leprosy. Acta Fisiátr. 2017;24(3):120-6. https://doi.org/10.5935/0104-7795.20170022 https://doi.org/10.5935/0104-7795.201700...
) |
Brazil |
Descriptive |
Specialized Care |
Degree of Disability Assessment Form; Sociodemographic and Clinical Questionnaire; Human Figure Drawing (DFH); NeuroQol - Neuropathy-Specific Quality of Life Questionnaire (Brazilian Portuguese Version). |
Govindasamy K, Jacob I, Solomon RM, Darlong J(2021)(3838 Govindasamy K, Jacob I, Solomon RM, Darlong J. Burden of depression and anxiety among leprosy affected and associated factors: a cross sectional study from India. PLoS Negl Trop Dis. 2021;15(1):e0009030. https://doi:10.1371/journal.pntd.0009030 https://doi:10.1371/journal.pntd.0009030...
) |
India |
Cross-sectional |
Primary Care |
Standardized Questionnaire for Depression-(PHQ-9); Standardized Questionnaire for Anxiety Disorder-(GAD-7); Degree of Disability; and Socioeconomic Profile. |
Ekeke N, Chukwu J, Nwafor C, Ogbudebe C, Oshi D, Meka A, Madichie N (2014)(3434 Ekeke N, Chukwu J, Nwafor C, Ogbudebe C, Oshi D, Meka A, et al. Children and leprosy in southern Nigeria: burden, challenges and prospects. Lepr Rev. 2014;85:111-7. https://doi.org/10.47276/lr.85.2.111 https://doi.org/10.47276/lr.85.2.111...
) |
Nigeria |
Descriptive-retrospective, cross-sectional |
Specialized Care |
Questionnaire-based interview; A retrospective descriptive desk analysis of leprosy case notification data for children 0 to 14 years in the 14 states in Southern Nigeria |
Seshadri D, Khaitan BK, Khanna N, Sagar R (2015)(4343 Seshadri D, Khaitan BK, Khanna N, Sagar R. Dehabilitation in the era of elimination and rehabilitation: a study of 100 leprosy patients from a tertiary care hospital in India. Lepr Rev. 2015;86(1):62-74. https://doi.org/10.47276/lr.86.1.62 https://doi.org/10.47276/lr.86.1.62...
) |
India |
Cross-sectional |
Hospital Care |
Clinical and Demographic Data; 52-item Anandaraj Dehabilitation Scale. |
Van Dorst MMAR, Van Netten WJ, Waltz MM, Pandey BD, Choudhary R, Van Brakel WH (2020)(3535 Van Dorst MMAR, Van Netten WJ, Waltz MM, Pandey BD, Choudhary R, Van Brakel WH. Depression and mental wellbeing in people affected by leprosy in southern Nepal. Glob Health Action. 2020;13(1):1815275. https://doi.org/10.1080/16549716.2020.1815275 https://doi.org/10.1080/16549716.2020.18...
) |
Nepal |
Cross-sectional |
Primary Care |
Sociodemographic Questionnaire; Patient Health Questionnaire (PHQ-9); Warwick-Edinburgh Mental Wellbeing Scale (WEMWBS); 5-Question Stigma Indicator-Affected Persons (5-QSI-AP). |
Van Brakel WH, Sihombing B, Djarir H, Beise K, Kusumawardhani L, Yulihane R, et al (2020)(2121 Van Brakel WH, Sihombing B, Djarir H, Beise K, Kusumawardhani L, Yulihane R, et al. Disability in people affected by leprosy: the role of impairment, activity, social participation, stigma and discrimination. Glob Health Action. 2012;5:18394. https://doi.org/10.3402/gha.v5i0.18394 https://doi.org/10.3402/gha.v5i0.18394...
) |
Indonesia |
Cross-sectional |
Primary Care |
Screening of Activity Limitation and Safety Awareness (SALSA) scale, Participation Scale, Jacoby Stigma Scale (anticipated stigma), Explanatory Model Interview Catalogue (EMIC) stigma scale And Discrimination assessment. |
Beltrame RT, Marciano LHSC, Fonseca MDS; Prado RBR (2015)(2222 Beltrame RT, Marciano LHSC, Fonseca MDS, Prado RBR. Estratégias de enfrentamento utilizadas pelo paciente com deficiências físicas na hanseníase. Mimesis, Bauru [Internet]. 2015[cited 2020 Dec 9]; 36(1):117-38. Available from: https://secure.unisagrado.edu.br/static/biblioteca/mimesis/mimesis_v36_n1_2015_art_05.pdf https://secure.unisagrado.edu.br/static/...
) |
Brazil |
Descriptive |
Specialized Care |
Sociodemographic Questionnaires, Clinical aspects of the disease, and Functional Independence in performing ADLs and IADLs; Checklist related to the type of visible physical disability found in the patient; and the Folkman and Lazarus Coping Strategies Inventory, adapted to Portuguese. |
Viana LDS, Aguiar MIFD, Vasconcelos PFD, Aquino DMCD (2017)(2323 Viana LDS, Aguiar MIFD, Vasconcelos PFD, Aquino DMCD. Physical appearance and repercussions on the quality of life and the autonomy of elderly people affected by leprosy. Enferm Glob. 2017;16(2):366-74. https://doi.org/10.6018/eglobal.16.2.248681 https://doi.org/10.6018/eglobal.16.2.248...
) |
Brazil |
Descriptive, with quantitative approach |
Specialized Care |
Physical Domain of the World Health Organization Quality of Life (WHOQOL-BREF) and the “Sensory Abilities” and “Autonomy” facets of WHOQOL-OLD. |
Van Veen NHJ, Hemo DA, Bowers RL, Pahan D, Negrini JF, Velema JP, et al (2011)(2424 Van Veen NHJ, Hemo DA, Bowers RL, Pahan D, Negrini JF, Velema JP, et al. Evaluation of activity limitation and social participation, and the effects of reconstructive surgery in people with disability due to leprosy: a prospective cohort study. Disabil Rehabil. 2011;33(8):667-74. https://doi.org/10.3109/09638288.2010.506238 https://doi.org/10.3109/09638288.2010.50...
) |
Bangladesh |
Prospective Cohort |
Hospital Care |
Screening of Activity Limitation and Safety Awareness (SALSA) scale, Participation Scale |
Hurtado MN, Atehortua MC, Bravo, J (2003)(2525 Hurtado MN, Atehortúa MC, Bravo JH. Fundamentos epidemiológicos y perfil de la situación de discapacidad de la población com enfermedad de Hansen del Valle del Cauca. Colomb Med [Internet]. 2003[cited 2020 Dec 11];34(1):36-39. Available from: https://colombiamedica.univalle.edu.co/index.php/comedica/article/view/251/254 https://colombiamedica.univalle.edu.co/i...
) |
Colombia |
Descriptive |
Primary Care |
International Classification of Functioning; Sociodemographic Form. |
Sharma M, Saxena V (2019)(2626 Sharma M, Saxena V. Health status of leprosy affected people in rehabilitation colonies of Uttarakhand. Indian J Lepr [Internet]. 2019[cited 2020Dec 9];91(2):79-89. Available from: https://www.leprosy-information.org/resource/health-status-leprosy-affected-people-rehabilitation-colonies-uttarakhand https://www.leprosy-information.org/reso...
) |
India |
Cross-sectional, observational |
Specialized Care |
Demographic Socioeconomic and Epidemiological Data; Availability of various government and non-government facilities; Body Mass Index - BMI; WHO Disability Grading. |
Vieira CSCA, Lobato ML, Figueira MCS, Amaral MCE, Vilela MFG, Silva EM (2018)(2727 Vieira CSCA, Lobato ML, Figueira MCS, Amaral MCE, Vilela MFG, Silva EM. Life after Leprosy Treatment Discharge: physical and social limitations. Indian J Lepr. 2018;90(3):177-88. https://doi.org/10.13140/RG.2.2.28406.55367 https://doi.org/10.13140/RG.2.2.28406.55...
) |
Brazil |
Ecological, analytical |
Primary Care |
Simplified Neurological Evaluation; Sociodemographic and Clinical Profile; Screening of Activity Limitation and Safety (SALSA); Participation Scale. |
Nardi SMT, Paschoal VD, Zanetta DMT (2012)(2828 Nardi SMT, Paschoal VD, Zanetta DMT. Limitations in activities of people affected by leprosy after completing multidrug therapy: application of the SALSA scale. Lepr Rev. 2012;83(2):172-83. https://doi.org/10.47276/lr.83.2.172 https://doi.org/10.47276/lr.83.2.172...
) |
Brazil |
Cross-sectional |
Specialized Care |
Screening of Activity Limitation and Safety Awareness (SALSA) scale |
Monteiro LD, Alencar CH, Barbosa JC, Novaes CCBS, Silva RCP, HeukelbachI J (2014)(2929 Monteiro LD, Alencar CH, Barbosa JC, Novaes CCBS, Silva RCP, HeukelbachI J. Limited activity and social participation after hospital discharge from leprosy treatment in a hyperendemic area in north Brazil. Rev Bras Epidemiol. 2014;91(104). https://doi.org/10.1590/1415-790X201400010008ENG https://doi.org/10.1590/1415-790X2014000...
) |
Brazil |
Cross-sectional |
Primary Care |
Simplified Neurological Evaluation; Screening of Activity Limitation and Safety Awareness (SALSA); Participation Scale. |
D’Azevedo SSP, et al (2021)(3030 D’Azevedo SSP, Santos DCM, Arruda GA, Barbosa JC, Alves MGT, Souza NMN. Perfil de funcionalidade de pessoas afetadas pela hanseníase. Rev. Rene [Internet]. 2021 [citado 2022 Abr 24] ; 22: e61702.http://dx.doi.org/10.15253/2175-6783.20212261702 http://dx.doi.org/10.15253/2175-6783.202...
) |
Brazil |
Cross-sectional |
Primary Care |
Sociodemographic and Clinical Questionnaire and the World Health Organization Disability Assessment Schedule (WHODAS). |
Reis FJJ, Lopes D, Gosling AD, Gomes MK (2014)(4141 Reis FJJ, Lopes D, Gosling AD, Gomes MK. Psychological distress and quality of life in leprosy patients with neuropathic pain. Lepr Rev[Internet]. 2014[cited 2020 Dec 11];85(3):186-93. Available from: https://pubmed.ncbi.nlm.nih.gov/25509719/ https://pubmed.ncbi.nlm.nih.gov/25509719...
) |
Brazil |
Cross-sectional |
Hospital Care |
Douleur neuropathique en 4 questions questionnaire; 12-item General Health Questionnaire; World Health Organization quality of life (WHOQOL-BREF) |
Govindharaj P, Srinivasan S, Darlong J (2018)(99 Govindharaj P, Srinivasan S, Darlong J. Perception toward the disease of the people affected by leprosy. Int J Mycobacteriol [Internet]. 2018[cited 2021 Oct 30];7(3):247-50. Available from: https://pubmed.ncbi.nlm.nih.gov/30198504/ https://pubmed.ncbi.nlm.nih.gov/30198504...
) |
India |
Cross-sectional descriptive |
Hospital Care |
Semi-structured Questionnaire. |
Ramos JM, Alonso-Castaneda B, Eshetu D, Lemma D, Reyes F, Belinchon I, et al (2014)(4444 Ramos JM, Alonso-Castaneda B, Eshetu D, Lemma D, Reyes F, Belinchon I, et al. Prevalence and characteristics of neuropathic pain in leprosy patients treated years ago. Pathog Glob Health. 2014;108(4):186-90. https://doi.org/10.1179/2047773214Y.0000000140 https://doi.org/10.1179/2047773214Y.0000...
) |
Ethiopia |
Cross-sectional |
Specialized Care |
Neuropathic Pain Symptom Inventory (NPSI) questionnaire |
Rodini FCB, Gonçalves M, Barros ARSB, Mazzer N, Elui LMC, Fonseca MCR (2010)(3636 Rodini FCB, Gonçalves M, Barros ARSB, Mazzer N, Elui LMC, Fonseca MCR. Prevenção de incapacidade na hanseníase com apoio em um manual de autocuidado para pacientes. Fisioter Pesqui. 2010;17(2):157-62. https://doi.org/10.1590/S1809-29502010000200012 https://doi.org/10.1590/S1809-2950201000...
) |
Brazil |
Cross-sectional |
Specialized Care |
Medical Outcome Study 36-item Short-form health Survey (SF36) |
PatilA, Mayur SS (2021)(4242 Patil A, Mayur SS. Quality of life and mental health status of hansen disease patients, attending a designated leprosy care center in South-India. Int J Mycobacteriol[Internet]. 2021[cited 2020 Dec 11];10(1):31-36. Available from: https://pubmed.ncbi.nlm.nih.gov/33707369/ https://pubmed.ncbi.nlm.nih.gov/33707369...
) |
India |
Cross-sectional |
Hospital Care |
World Health Organization quality of life (WHOQOL-BREF); Questionnaire and mental health status by the SelfReporting questionnaire |
Gaudenci EM, Nardelli GG, Almeida Neto OP, Malaquias BSS Carvalho BT, Pedrosa LAK (2015)(4040 Gaudenci EM, Nardelli GG, Almeida Neto OP, Malaquias BSS, Carvalho BT, Pedrosa LAK. Quality of life, depression and physical disability of patients with leprosy. Hansen Int [Internet]. 2015[cited 2020 Dec 9];40(2):48-58. Available from: https://periodicos.saude.sp.gov.br/index.php/hansenologia/article/view/36175/34483 https://periodicos.saude.sp.gov.br/index...
) |
Brazil |
Cross-sectional, quantitative, descriptive, and analytical |
Specialized Care |
Clinical and Socioeconomic Questionnaire; Beck Depression Inventory- BDI for Depression Assessment; World Health Organization Quality of Life (WHOQOL-BREF). |
Costa RMPC, Mendes LCB(2020)(1010 Costa RMPC, Mendes LCB. Quality of life of people with leprosy sequelae and self-care: an integrative review. Cienc Cuid Saúde. 2020;19:e45649. https://doi.org/10.4025/cienccuidsaude.v19I0.45649 https://doi.org/10.4025/cienccuidsaude.v...
) |
Brazil |
Integrative Review |
|
|
Govindharaj P, Srinivasan S, Darlong J(2018)(4545 Govindharaj P, Srinivasan S, Darlong J. Quality of life of persons affected by leprosy in an endemic district, West Bengal, India. Indian J Dermatol [Internet]. 2018[cited 2023 Jun 23];63(6):459-64. Available from: https://pubmed.ncbi.nlm.nih.gov/30504972/ https://pubmed.ncbi.nlm.nih.gov/30504972...
) |
India |
Cross-sectional |
Hospital Care |
World Health Organization quality of life (WHOQOL-BREF) |
Lustosa AA, Nogueira LT, Pedrosa JIS, Teles JBM, Campelo V (2011)(4646 Lustosa AA, Nogueira LT, Pedrosa JIS, Teles JBM, Campelo V. The impact of leprosy on health-related quality of life. Rev Soc Bras Med Trop. 2011;44(5):621-26. https://doi.org/10.1590/S0037-86822011000500019 https://doi.org/10.1590/S0037-8682201100...
) |
Brazil |
Cross-sectional |
Specialized Care |
Medical Outcome Study 36-item Short-form Health Survey (SF36), Clinical, Sociodemographic, and Epidemiological Data. |
Chingu D, Duncan M, Amosun S (2013)(4747 Chingu D, Duncan M, Amosun S. The quality of life of people with leprosy-related residual impairment and disability in Malawi: is there a difference between people living in a leprosarium and those re-integrated into their communities? Lepr Rev. 2014;84(4):292-301. https://doi.org/10.47276/lr.84.4.292 https://doi.org/10.47276/lr.84.4.292...
) |
Malawi |
Cross-sectional |
Primary Care |
World Health Organization quality of life (WHOQOL-BREF) |
Schuller I, Van Brakel WH, Van Vliet I, Beise K, Wardhani L, Silwana S, et al (2010)(3737 Schuller I, Van Brakel WH, Van Der Vliet I, Beise K, Wardhani L, Silwana S, et al. The way women experience disabilities and especially disabilities related to leprosy in rural areas in south Sulawesi, Indonesia. Asia Pac Disabil Rehabil J[Internet]. 2010[cited 2020 Dec 11];21(1):60-70. Available from: https://www.dinf.ne.jp/doc/english/asia/resource/apdrj/vol21_1/05_The_Way_Women.html https://www.dinf.ne.jp/doc/english/asia/...
) |
Indonesia |
Quantitative-qualitative |
Primary Care |
Interviews and Focus Groups. |
Prado GD, Prado RBR, Marciano LHSC, Nardi SMT, Cordeiro JA, Monteiro HL (2011)(3131 Prado GD, Prado RBR, Marciano LHSC, Nardi SMT, Cordeiro JA, Monteiro HL. WHO disability grade does not influence physical activity in Brazilian leprosy patients. Lepr Rev. 2011;82(3):270-8. http://dx.doi.org/10.47276/lr.82.3.270 http://dx.doi.org/10.47276/lr.82.3.270...
) |
Brazil |
Cross-sectional |
Specialized Care |
World Health Organization degree of physical disability classification (WHO-DG), the International Physical ActivityQuestionnaire (IPAQ) and the Medical Outcome Study 36-item Short-form health Survey (SF36) |
Gonçalves M, Prado MAR, Silva SS, Santos KS, Araujo PN, Fortuna CM (2018)(3232 Gonçalves M, Prado MAR, Silva SS, Santos KS, Araujo PN, Fortuna CM. Work and Leprosy: women in their pains, struggles and toils. Rev Bras Enferm. 2018;71(Suppl 1):660-7. https://doi.org/10.1590/0034-7167-2017-0598 https://doi.org/10.1590/0034-7167-2017-0...
) |
Brazil |
Qualitative |
Specialized Care |
Semi-structured Interviews. |
Barcelos RMFM, Sousa GS, Almeida MV, Palacio FGL, Gaíva MAM, Ferreira SMB(77 Barcelos RMFM, Sousa GS, Almeida MV, Palacio FGL, Gaíva MAM, Ferreira SMB. Leprosy patients quality of life: a scoping review. Rev Esc Enferm USP. 2021;55:e20200357. https://doi.org/10.1590/1980-220X-REEUSP-2020-0357 https://doi.org/10.1590/1980-220X-REEUSP...
) |
Brazil |
Review |
|
|