Context |
work culture(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
-1212 Parsons SK, Saiki-Craighill S, Mayer DK, Sullivan AM, Jeruss S, Terrin N, et al. Telling children and adolescent about their cancer diagnosis: cross-cultural comparisons between pediatric oncologists in the US and Japan. Psycho-Oncol[Internet]. 2007 [cited 2018 Jan 10];16(1):60-8. Available from: https://www.ncbi.nlm.nih.gov/pubmed/16874746 https://www.ncbi.nlm.nih.gov/pubmed/1687...
) privacy(1313 Gilbey P. Qualitative analysis of parents’ experience with receiving the news of the detection of their child’s hearing loss. Int J Pediatr Otorhinolaryngol [Internet]. 2010 [cited 2017 Jul 16];74(3):265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20042242 https://www.ncbi.nlm.nih.gov/pubmed/2004...
-1414 Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet A [Internet]. 2003 [cited 2018 Jun 15];122A(2):100-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/12955760 https://www.ncbi.nlm.nih.gov/pubmed/1295...
) training(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
12 Parsons SK, Saiki-Craighill S, Mayer DK, Sullivan AM, Jeruss S, Terrin N, et al. Telling children and adolescent about their cancer diagnosis: cross-cultural comparisons between pediatric oncologists in the US and Japan. Psycho-Oncol[Internet]. 2007 [cited 2018 Jan 10];16(1):60-8. Available from: https://www.ncbi.nlm.nih.gov/pubmed/16874746 https://www.ncbi.nlm.nih.gov/pubmed/1687...
13 Gilbey P. Qualitative analysis of parents’ experience with receiving the news of the detection of their child’s hearing loss. Int J Pediatr Otorhinolaryngol [Internet]. 2010 [cited 2017 Jul 16];74(3):265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20042242 https://www.ncbi.nlm.nih.gov/pubmed/2004...
14 Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet A [Internet]. 2003 [cited 2018 Jun 15];122A(2):100-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/12955760 https://www.ncbi.nlm.nih.gov/pubmed/1295...
15 Stenmarker M, Hallberg U, Palmérus K, Márky I. Being a messenger of life-threatening conditions: experiences of pediatric oncologists. Pediatr Blood Cancer [Internet]. 2010 [cited 2017 Jun 18];55(3):478-84. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20658619 https://www.ncbi.nlm.nih.gov/pubmed/2065...
16 Finan C, Nasr SZ, Rothwell E, Tarini BA. Primary care providers’experiences notifying parents of cystic fibrosis newborn screening results. Clin Pediatr (Phila) [Internet]. 2014 [cited 2018 Jan 16];54(1):67-75. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25104730 https://www.ncbi.nlm.nih.gov/pubmed/2510...
17 Aein F, Delaram M. Giving bad news: a qualitative research exploration. Iran Red Crescent Med J [Internet]. 2014 [cited 2018 Jun 16];16(6):e8197. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4102999/ https://www.ncbi.nlm.nih.gov/pmc/article...
18 Hasnat MJ, Graves P. Disclosure of developmental disability: a study of parent satisfaction and the determinants of satisfaction. J Paediatr Child Health [Internet]. 2000 [cited 2018 Jan16];36(1):32-5. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10723688 https://www.ncbi.nlm.nih.gov/pubmed/1072...
19 Parker TM, Johnston DL. Parental perceptions of being told their child has cancer. Pediatr Blood Cancer [Internet]. 2008 [cited 2017 Jan 26];51(4):531-4. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18623217 https://www.ncbi.nlm.nih.gov/pubmed/1862...
-2020 Rujumba J1, Mbasaalaki-Mwaka CL, Ndeezi G. Challenges faced by health workers in providing counselling services to HIV-positive children in Uganda: a descriptive study. J Int AIDS Soc [Internet]. 2010 [cited 2017 Jan 22];13:9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20205937 https://www.ncbi.nlm.nih.gov/pubmed/2020...
)
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educational level(1616 Finan C, Nasr SZ, Rothwell E, Tarini BA. Primary care providers’experiences notifying parents of cystic fibrosis newborn screening results. Clin Pediatr (Phila) [Internet]. 2014 [cited 2018 Jan 16];54(1):67-75. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25104730 https://www.ncbi.nlm.nih.gov/pubmed/2510...
,2121 Eden OB, Black I, MacKinlay GA, Emery AE. Communication with parents of children with cancer. Palliat Med [Internet]. 1994 [cited 2018 Jul 22];8(2):105-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/8081551 https://www.ncbi.nlm.nih.gov/pubmed/8081...
22 Ablon J. Parents’ responses to their child’s diagnosis of neurofibromatosis 1. Am J Med Genet [Internet]. 2000 [cited 2018 Jan 23];93(2):136-42. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10869117 https://www.ncbi.nlm.nih.gov/pubmed/1086...
23 Phuma-Ngaiyaye EE, Dartey AF. Experiences of children living with HIV and AIDS following their diagnosis disclosure in Mzuzu, Malawi. Vulnerable Child Youth Stud. 2015;10(4):357-65. doi: 10.1080/17450128.2015.1083639 https://doi.org/10.1080/17450128.2015.10...
24 Gomes GC, Xavier DM, Mota MS, Salvador MS, Silveira RS, Barlem ELD. Dando notícias difíceis à família da criança em situação grave ou em processo de terminalidade. Rev Enferm UERJ [Internet]. 2014 [cited 2017 Jun 26];22(3):347-52. Available from: https://pesquisa.bvsalud.org/portal/resource/pt/bde-27990 https://pesquisa.bvsalud.org/portal/reso...
25 Nzota MS, Matovu JKB, Draper HR, Kisa R, Kiwanuka SN. Determinats and processo f HIV status disclosure to HIV-infected children aged 4 to 17 years receiving HIV care services at Baylor College of Medicine Children’s Foundation Tanzania, Centre of Excellence (COE) in Mbeya: cross-sectional study. BMC Pediatrics [Internet]. 2015 [cited 2018 Jan 13];15:81. Available from: https://www.springermedizin.de/determinants-and-processes-of-hiv-status-disclosure-to-hiv-infec/9746990 https://www.springermedizin.de/determina...
26 Heeren GA, Jemmott JB 3rd, Sidloyi L, Ngwane Z. Disclosure of HIV diagnosis to HIV-infected children is South Africa: focus groups for intervention development. Vulnerable Child Youth Stud [Internet]. 2012 [cited 2017 Dec 12];7(1):47-54. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22468145 https://www.ncbi.nlm.nih.gov/pubmed/2246...
27 Clarke SA, Davies H, Jenney M, Glaser A, Eiser C. Parental communication and children’s behaviour following diagnosis of childhood leukaemia. Psycho-Oncol [Internet]. 2005 [cited 2018 Jul 13]14(4):274-81. Available from: https://www.ncbi.nlm.nih.gov/pubmed/15386768 https://www.ncbi.nlm.nih.gov/pubmed/1538...
-2828 Badarau DO, De Clercq E, Wangmo T, Dragomir M, Miron I, Kühne T, et al. Cancer care in Romania: challenges and pitfalls of children’s and a adolescent’s multifaceted involvement. J Med Ethics [Internet]. 2016 [cited 2018 Jan 13];42(12):757-61. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27697792 https://www.ncbi.nlm.nih.gov/pubmed/2769...
) family preparation(1414 Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet A [Internet]. 2003 [cited 2018 Jun 15];122A(2):100-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/12955760 https://www.ncbi.nlm.nih.gov/pubmed/1295...
,2222 Ablon J. Parents’ responses to their child’s diagnosis of neurofibromatosis 1. Am J Med Genet [Internet]. 2000 [cited 2018 Jan 23];93(2):136-42. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10869117 https://www.ncbi.nlm.nih.gov/pubmed/1086...
-2323 Phuma-Ngaiyaye EE, Dartey AF. Experiences of children living with HIV and AIDS following their diagnosis disclosure in Mzuzu, Malawi. Vulnerable Child Youth Stud. 2015;10(4):357-65. doi: 10.1080/17450128.2015.1083639 https://doi.org/10.1080/17450128.2015.10...
,2525 Nzota MS, Matovu JKB, Draper HR, Kisa R, Kiwanuka SN. Determinats and processo f HIV status disclosure to HIV-infected children aged 4 to 17 years receiving HIV care services at Baylor College of Medicine Children’s Foundation Tanzania, Centre of Excellence (COE) in Mbeya: cross-sectional study. BMC Pediatrics [Internet]. 2015 [cited 2018 Jan 13];15:81. Available from: https://www.springermedizin.de/determinants-and-processes-of-hiv-status-disclosure-to-hiv-infec/9746990 https://www.springermedizin.de/determina...
-2626 Heeren GA, Jemmott JB 3rd, Sidloyi L, Ngwane Z. Disclosure of HIV diagnosis to HIV-infected children is South Africa: focus groups for intervention development. Vulnerable Child Youth Stud [Internet]. 2012 [cited 2017 Dec 12];7(1):47-54. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22468145 https://www.ncbi.nlm.nih.gov/pubmed/2246...
,2929 Goodwin J, Schoch K, Shashi V, Hooper SR, Morad O, Zalevsky M, et al. A tale worth telling: the impacto f the diagnosis experience on disclosure of genetic disorders. J Intellect Disabil Res [Internet]. 2015 [cited 2018 Jan 18];59(5):474-86. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25059276 https://www.ncbi.nlm.nih.gov/pubmed/2505...
-3030 Arabiat DH, Alqaissi NM, Hamdan-Mansour AM. Children’s knowledge of cancer diagnosis and treatment: jordanian mothers’ perceptions and satisfaction with the process. Int Nurs Rev [Internet]. 2011 [cited 2018 Jun 13];58(4):443-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22092322 https://www.ncbi.nlm.nih.gov/pubmed/2209...
) with companion(1313 Gilbey P. Qualitative analysis of parents’ experience with receiving the news of the detection of their child’s hearing loss. Int J Pediatr Otorhinolaryngol [Internet]. 2010 [cited 2017 Jul 16];74(3):265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20042242 https://www.ncbi.nlm.nih.gov/pubmed/2004...
-1414 Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet A [Internet]. 2003 [cited 2018 Jun 15];122A(2):100-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/12955760 https://www.ncbi.nlm.nih.gov/pubmed/1295...
,2121 Eden OB, Black I, MacKinlay GA, Emery AE. Communication with parents of children with cancer. Palliat Med [Internet]. 1994 [cited 2018 Jul 22];8(2):105-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/8081551 https://www.ncbi.nlm.nih.gov/pubmed/8081...
-2222 Ablon J. Parents’ responses to their child’s diagnosis of neurofibromatosis 1. Am J Med Genet [Internet]. 2000 [cited 2018 Jan 23];93(2):136-42. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10869117 https://www.ncbi.nlm.nih.gov/pubmed/1086...
,3131 Al-Abdi SY, Al-Ali EA, Daheer MH, Al-Saleh YM, Al-Qurashi KH, Al-Aamri MA. Saudi mothers’ preferences about breaking bad news concerning newborns: a structured verbal questionnaire. BMC Medical Ethics [Internet]. 2011 [cited 2018 Dec 13];12:15. Available from: https://www.ncbi.nlm.nih.gov/pubmed/21861876 https://www.ncbi.nlm.nih.gov/pubmed/2186...
-3232 Afonso SBC, Mitre RMA. Noticias difíceis: sentidos atribuídos por familiares de crianças com fibrose cística. Ciên Saúde Coletiva [Internet]. 2013 [cited 2018 Jan 13];18(9):2605-13. Available from: www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf...
)
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maturity(2121 Eden OB, Black I, MacKinlay GA, Emery AE. Communication with parents of children with cancer. Palliat Med [Internet]. 1994 [cited 2018 Jul 22];8(2):105-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/8081551 https://www.ncbi.nlm.nih.gov/pubmed/8081...
,2323 Phuma-Ngaiyaye EE, Dartey AF. Experiences of children living with HIV and AIDS following their diagnosis disclosure in Mzuzu, Malawi. Vulnerable Child Youth Stud. 2015;10(4):357-65. doi: 10.1080/17450128.2015.1083639 https://doi.org/10.1080/17450128.2015.10...
,2525 Nzota MS, Matovu JKB, Draper HR, Kisa R, Kiwanuka SN. Determinats and processo f HIV status disclosure to HIV-infected children aged 4 to 17 years receiving HIV care services at Baylor College of Medicine Children’s Foundation Tanzania, Centre of Excellence (COE) in Mbeya: cross-sectional study. BMC Pediatrics [Internet]. 2015 [cited 2018 Jan 13];15:81. Available from: https://www.springermedizin.de/determinants-and-processes-of-hiv-status-disclosure-to-hiv-infec/9746990 https://www.springermedizin.de/determina...
26 Heeren GA, Jemmott JB 3rd, Sidloyi L, Ngwane Z. Disclosure of HIV diagnosis to HIV-infected children is South Africa: focus groups for intervention development. Vulnerable Child Youth Stud [Internet]. 2012 [cited 2017 Dec 12];7(1):47-54. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22468145 https://www.ncbi.nlm.nih.gov/pubmed/2246...
-2727 Clarke SA, Davies H, Jenney M, Glaser A, Eiser C. Parental communication and children’s behaviour following diagnosis of childhood leukaemia. Psycho-Oncol [Internet]. 2005 [cited 2018 Jul 13]14(4):274-81. Available from: https://www.ncbi.nlm.nih.gov/pubmed/15386768 https://www.ncbi.nlm.nih.gov/pubmed/1538...
,2929 Goodwin J, Schoch K, Shashi V, Hooper SR, Morad O, Zalevsky M, et al. A tale worth telling: the impacto f the diagnosis experience on disclosure of genetic disorders. J Intellect Disabil Res [Internet]. 2015 [cited 2018 Jan 18];59(5):474-86. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25059276 https://www.ncbi.nlm.nih.gov/pubmed/2505...
-3030 Arabiat DH, Alqaissi NM, Hamdan-Mansour AM. Children’s knowledge of cancer diagnosis and treatment: jordanian mothers’ perceptions and satisfaction with the process. Int Nurs Rev [Internet]. 2011 [cited 2018 Jun 13];58(4):443-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22092322 https://www.ncbi.nlm.nih.gov/pubmed/2209...
,3333 Boon-Yasidhi V, Kottapat U, Durier Y, Plipat N, Phongsamart W, Chokephaibulkit K, et al. Diagnosis disclosure in HIV-infected Thai children. J Med Assoc Thai [Internet]. 2005 [cited 2018 Jan 26];88(8):S100-5. Available from: https://www.ncbi.nlm.nih.gov/pubmed/16858851 https://www.ncbi.nlm.nih.gov/pubmed/1685...
34 Jalmsell L, Lövgren M, Kreicbergs U, Henter JI, Frost BM. Children with cancer share their views: tell the truth but leave room for hope. Acta Paediatr [Internet]. 2016 [cited 2018 Jan 16];105(9):1094-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27272911 https://www.ncbi.nlm.nih.gov/pubmed/2727...
35 Trejos AM, Reyes L, Bahamon MJ, Alarcón Y, Gaviria G. Effects in the adherence treatment and psychological adjustment after the disclosure of HIV/AIDS diagnosis with the "DIRE" clinical model in Colombian children under 17. Rev Child Infectol. 2015;32(4):408-15. doi: 10.4067/S0716-10182015000500007 https://doi.org/10.4067/S0716-1018201500...
36 Last BF, van Veldhuizen AMH. Information about diagnosis and prognosis related to anxiety and depression in children with cancer aged 8-16 years. EJC. 1996;32(2):290-4. Available from: doi: 10.1016/0959-8049(95)00576-5 https://doi.org/10.1016/0959-8049(95)005...
37 Waxler JL, Cherniske EM, Dieter K, Herd P, Pober BR. Hearing from parents: the impacto f receiving the diagnosis of Williams syndrome in their child. Am J Med Genet A [Internet]. 2013 [cited 2018 Jan 19];161A(3):534-41. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23401422 https://www.ncbi.nlm.nih.gov/pubmed/2340...
38 Thorne C, Newell ML, Peckham CS. Disclosure of diagnosis and planning for the future in HIV-affected families in Europe. Child Care Health Dev. 2000;26(1):29-40. doi: 10.1046/j.1365-2214.2000.00128.x https://doi.org/10.1046/j.1365-2214.2000...
39 Muñoz Sastre MT, Sorum PC, Mullet E. Lay people’s and health professionals’views about breaking bad news to children. Child Care Health Dev [Internet]. 2014 [cited 2018 Jan 26];40(1):106-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22928950 https://www.ncbi.nlm.nih.gov/pubmed/2292...
-4040 Vaz LM, Eng E, Maman S, Tshikandu T, Behets F. Telling children they have HIV: lessons learned from findings of a qualitative study in Sub-Saharan Africa. AIDS Patients Care STDS [Internet]. 2010 [cited 2018 Jun 12];24(4):247-56. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20397899 https://www.ncbi.nlm.nih.gov/pubmed/2039...
) the right to know(2626 Heeren GA, Jemmott JB 3rd, Sidloyi L, Ngwane Z. Disclosure of HIV diagnosis to HIV-infected children is South Africa: focus groups for intervention development. Vulnerable Child Youth Stud [Internet]. 2012 [cited 2017 Dec 12];7(1):47-54. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22468145 https://www.ncbi.nlm.nih.gov/pubmed/2246...
,3434 Jalmsell L, Lövgren M, Kreicbergs U, Henter JI, Frost BM. Children with cancer share their views: tell the truth but leave room for hope. Acta Paediatr [Internet]. 2016 [cited 2018 Jan 16];105(9):1094-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27272911 https://www.ncbi.nlm.nih.gov/pubmed/2727...
,3636 Last BF, van Veldhuizen AMH. Information about diagnosis and prognosis related to anxiety and depression in children with cancer aged 8-16 years. EJC. 1996;32(2):290-4. Available from: doi: 10.1016/0959-8049(95)00576-5 https://doi.org/10.1016/0959-8049(95)005...
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Sender |
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physician(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
12 Parsons SK, Saiki-Craighill S, Mayer DK, Sullivan AM, Jeruss S, Terrin N, et al. Telling children and adolescent about their cancer diagnosis: cross-cultural comparisons between pediatric oncologists in the US and Japan. Psycho-Oncol[Internet]. 2007 [cited 2018 Jan 10];16(1):60-8. Available from: https://www.ncbi.nlm.nih.gov/pubmed/16874746 https://www.ncbi.nlm.nih.gov/pubmed/1687...
13 Gilbey P. Qualitative analysis of parents’ experience with receiving the news of the detection of their child’s hearing loss. Int J Pediatr Otorhinolaryngol [Internet]. 2010 [cited 2017 Jul 16];74(3):265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20042242 https://www.ncbi.nlm.nih.gov/pubmed/2004...
14 Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet A [Internet]. 2003 [cited 2018 Jun 15];122A(2):100-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/12955760 https://www.ncbi.nlm.nih.gov/pubmed/1295...
15 Stenmarker M, Hallberg U, Palmérus K, Márky I. Being a messenger of life-threatening conditions: experiences of pediatric oncologists. Pediatr Blood Cancer [Internet]. 2010 [cited 2017 Jun 18];55(3):478-84. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20658619 https://www.ncbi.nlm.nih.gov/pubmed/2065...
-1616 Finan C, Nasr SZ, Rothwell E, Tarini BA. Primary care providers’experiences notifying parents of cystic fibrosis newborn screening results. Clin Pediatr (Phila) [Internet]. 2014 [cited 2018 Jan 16];54(1):67-75. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25104730 https://www.ncbi.nlm.nih.gov/pubmed/2510...
,1818 Hasnat MJ, Graves P. Disclosure of developmental disability: a study of parent satisfaction and the determinants of satisfaction. J Paediatr Child Health [Internet]. 2000 [cited 2018 Jan16];36(1):32-5. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10723688 https://www.ncbi.nlm.nih.gov/pubmed/1072...
19 Parker TM, Johnston DL. Parental perceptions of being told their child has cancer. Pediatr Blood Cancer [Internet]. 2008 [cited 2017 Jan 26];51(4):531-4. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18623217 https://www.ncbi.nlm.nih.gov/pubmed/1862...
20 Rujumba J1, Mbasaalaki-Mwaka CL, Ndeezi G. Challenges faced by health workers in providing counselling services to HIV-positive children in Uganda: a descriptive study. J Int AIDS Soc [Internet]. 2010 [cited 2017 Jan 22];13:9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20205937 https://www.ncbi.nlm.nih.gov/pubmed/2020...
-2121 Eden OB, Black I, MacKinlay GA, Emery AE. Communication with parents of children with cancer. Palliat Med [Internet]. 1994 [cited 2018 Jul 22];8(2):105-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/8081551 https://www.ncbi.nlm.nih.gov/pubmed/8081...
,2323 Phuma-Ngaiyaye EE, Dartey AF. Experiences of children living with HIV and AIDS following their diagnosis disclosure in Mzuzu, Malawi. Vulnerable Child Youth Stud. 2015;10(4):357-65. doi: 10.1080/17450128.2015.1083639 https://doi.org/10.1080/17450128.2015.10...
-2424 Gomes GC, Xavier DM, Mota MS, Salvador MS, Silveira RS, Barlem ELD. Dando notícias difíceis à família da criança em situação grave ou em processo de terminalidade. Rev Enferm UERJ [Internet]. 2014 [cited 2017 Jun 26];22(3):347-52. Available from: https://pesquisa.bvsalud.org/portal/resource/pt/bde-27990 https://pesquisa.bvsalud.org/portal/reso...
,3030 Arabiat DH, Alqaissi NM, Hamdan-Mansour AM. Children’s knowledge of cancer diagnosis and treatment: jordanian mothers’ perceptions and satisfaction with the process. Int Nurs Rev [Internet]. 2011 [cited 2018 Jun 13];58(4):443-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22092322 https://www.ncbi.nlm.nih.gov/pubmed/2209...
31 Al-Abdi SY, Al-Ali EA, Daheer MH, Al-Saleh YM, Al-Qurashi KH, Al-Aamri MA. Saudi mothers’ preferences about breaking bad news concerning newborns: a structured verbal questionnaire. BMC Medical Ethics [Internet]. 2011 [cited 2018 Dec 13];12:15. Available from: https://www.ncbi.nlm.nih.gov/pubmed/21861876 https://www.ncbi.nlm.nih.gov/pubmed/2186...
-3232 Afonso SBC, Mitre RMA. Noticias difíceis: sentidos atribuídos por familiares de crianças com fibrose cística. Ciên Saúde Coletiva [Internet]. 2013 [cited 2018 Jan 13];18(9):2605-13. Available from: www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf...
,3434 Jalmsell L, Lövgren M, Kreicbergs U, Henter JI, Frost BM. Children with cancer share their views: tell the truth but leave room for hope. Acta Paediatr [Internet]. 2016 [cited 2018 Jan 16];105(9):1094-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27272911 https://www.ncbi.nlm.nih.gov/pubmed/2727...
-3535 Trejos AM, Reyes L, Bahamon MJ, Alarcón Y, Gaviria G. Effects in the adherence treatment and psychological adjustment after the disclosure of HIV/AIDS diagnosis with the "DIRE" clinical model in Colombian children under 17. Rev Child Infectol. 2015;32(4):408-15. doi: 10.4067/S0716-10182015000500007 https://doi.org/10.4067/S0716-1018201500...
,3737 Waxler JL, Cherniske EM, Dieter K, Herd P, Pober BR. Hearing from parents: the impacto f receiving the diagnosis of Williams syndrome in their child. Am J Med Genet A [Internet]. 2013 [cited 2018 Jan 19];161A(3):534-41. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23401422 https://www.ncbi.nlm.nih.gov/pubmed/2340...
-3838 Thorne C, Newell ML, Peckham CS. Disclosure of diagnosis and planning for the future in HIV-affected families in Europe. Child Care Health Dev. 2000;26(1):29-40. doi: 10.1046/j.1365-2214.2000.00128.x https://doi.org/10.1046/j.1365-2214.2000...
,4141 Orioles A, Miller VA, Kersun LS, Ingram M, Morrison WE. “To be a phenomenal doctor you have to be the whole package”: physicians’ interpersonal behaviors during difficult conversations in pediatrics. J Palliat Med [Internet]. 2013 [cited 2018 Jun 12];16(8):929-33. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23808643 https://www.ncbi.nlm.nih.gov/pubmed/2380...
42 Abbott M, Bernard P, Forge J. Communicating a diagnosis of autism spectrum disorder-a qualitative study of parents’ experiences. Clin Child Psychol Psychiatr [Internet]. 2012 [cited 2018 Jan 26];18(3):370-82. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22904114 https://www.ncbi.nlm.nih.gov/pubmed/2290...
43 Harnett A, Tierney E, Guerin S. Convention of hope-communicating positive, realistic messages to families at the time of a child’s diagnosis with disabilities. British J Learn Disabil. 2009;37:257-64. doi: 10.1111/j.1468-3156.2009.00580.x https://doi.org/10.1111/j.1468-3156.2009...
44 Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication about prognosis between parents and physicians of children with cancer: parents preferences and the impact of prognostic information. J Clin Oncol [Internet]. 2006 [cited 2017 Jun 26];24(33):5265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/17114660 https://www.ncbi.nlm.nih.gov/pubmed/1711...
45 Havermans T, Tack J, Vertommen A, Proesmans M, de Boeck K. Breaking bad news, the diagnosis of cystic fibrosis in childhood. J Cyst Fibros [Internet]. 2015 [cited 2018 Jun 16];14(4):540-6. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25563520 https://www.ncbi.nlm.nih.gov/pubmed/2556...
46 Abdelmoktader AM, Abd Elhamed KA. Egyptian mothers’ preferences regarding how physicians break bad news about their child’s disability: A structured verbal questionnaire. BMC Med Ethics [Internet]. 2012 [cited 2018 Jan 16];13:14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22747832 https://www.ncbi.nlm.nih.gov/pubmed/2274...
47 Young B, Ward J, Salmon P, Gravenhorst K, Hill J, Eden T. Parents’ experiences of their children’s presence in discussions with physicians about leukemia. Pediatr [Internet]. 2011 [cited 2018 Jun 25];127(5):1230-8. Available from: pediatrics.aappublications.org/content/127/5/e1230 pediatrics.aappublications.org/content/1...
48 Meert KL, Eggly S, Pollack M, Anand KJS, Zimmerman J, Carcillo J, et al. Parents’s perspectives on physician-parent communication near the time of a child’s death in the pediatric intensive care unit. Pediatr Crit Care Med [Internet]. 2008 [cited 2018 Jun 25];9(1):2-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18477906 https://www.ncbi.nlm.nih.gov/pubmed/1847...
-4949 Hsiao JL, Evan EE, Zeltzer LK. Parent and child perspectives on physician communication in pediatric palliative care. Palliat Support Care [Internet]. 2007 [cited 2017 Jan 13];5(4):355-65. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18044413 https://www.ncbi.nlm.nih.gov/pubmed/1804...
) nurse(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
12 Parsons SK, Saiki-Craighill S, Mayer DK, Sullivan AM, Jeruss S, Terrin N, et al. Telling children and adolescent about their cancer diagnosis: cross-cultural comparisons between pediatric oncologists in the US and Japan. Psycho-Oncol[Internet]. 2007 [cited 2018 Jan 10];16(1):60-8. Available from: https://www.ncbi.nlm.nih.gov/pubmed/16874746 https://www.ncbi.nlm.nih.gov/pubmed/1687...
13 Gilbey P. Qualitative analysis of parents’ experience with receiving the news of the detection of their child’s hearing loss. Int J Pediatr Otorhinolaryngol [Internet]. 2010 [cited 2017 Jul 16];74(3):265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20042242 https://www.ncbi.nlm.nih.gov/pubmed/2004...
14 Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet A [Internet]. 2003 [cited 2018 Jun 15];122A(2):100-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/12955760 https://www.ncbi.nlm.nih.gov/pubmed/1295...
15 Stenmarker M, Hallberg U, Palmérus K, Márky I. Being a messenger of life-threatening conditions: experiences of pediatric oncologists. Pediatr Blood Cancer [Internet]. 2010 [cited 2017 Jun 18];55(3):478-84. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20658619 https://www.ncbi.nlm.nih.gov/pubmed/2065...
-1616 Finan C, Nasr SZ, Rothwell E, Tarini BA. Primary care providers’experiences notifying parents of cystic fibrosis newborn screening results. Clin Pediatr (Phila) [Internet]. 2014 [cited 2018 Jan 16];54(1):67-75. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25104730 https://www.ncbi.nlm.nih.gov/pubmed/2510...
,1818 Hasnat MJ, Graves P. Disclosure of developmental disability: a study of parent satisfaction and the determinants of satisfaction. J Paediatr Child Health [Internet]. 2000 [cited 2018 Jan16];36(1):32-5. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10723688 https://www.ncbi.nlm.nih.gov/pubmed/1072...
19 Parker TM, Johnston DL. Parental perceptions of being told their child has cancer. Pediatr Blood Cancer [Internet]. 2008 [cited 2017 Jan 26];51(4):531-4. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18623217 https://www.ncbi.nlm.nih.gov/pubmed/1862...
20 Rujumba J1, Mbasaalaki-Mwaka CL, Ndeezi G. Challenges faced by health workers in providing counselling services to HIV-positive children in Uganda: a descriptive study. J Int AIDS Soc [Internet]. 2010 [cited 2017 Jan 22];13:9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20205937 https://www.ncbi.nlm.nih.gov/pubmed/2020...
-2121 Eden OB, Black I, MacKinlay GA, Emery AE. Communication with parents of children with cancer. Palliat Med [Internet]. 1994 [cited 2018 Jul 22];8(2):105-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/8081551 https://www.ncbi.nlm.nih.gov/pubmed/8081...
,2323 Phuma-Ngaiyaye EE, Dartey AF. Experiences of children living with HIV and AIDS following their diagnosis disclosure in Mzuzu, Malawi. Vulnerable Child Youth Stud. 2015;10(4):357-65. doi: 10.1080/17450128.2015.1083639 https://doi.org/10.1080/17450128.2015.10...
-2424 Gomes GC, Xavier DM, Mota MS, Salvador MS, Silveira RS, Barlem ELD. Dando notícias difíceis à família da criança em situação grave ou em processo de terminalidade. Rev Enferm UERJ [Internet]. 2014 [cited 2017 Jun 26];22(3):347-52. Available from: https://pesquisa.bvsalud.org/portal/resource/pt/bde-27990 https://pesquisa.bvsalud.org/portal/reso...
,3030 Arabiat DH, Alqaissi NM, Hamdan-Mansour AM. Children’s knowledge of cancer diagnosis and treatment: jordanian mothers’ perceptions and satisfaction with the process. Int Nurs Rev [Internet]. 2011 [cited 2018 Jun 13];58(4):443-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22092322 https://www.ncbi.nlm.nih.gov/pubmed/2209...
31 Al-Abdi SY, Al-Ali EA, Daheer MH, Al-Saleh YM, Al-Qurashi KH, Al-Aamri MA. Saudi mothers’ preferences about breaking bad news concerning newborns: a structured verbal questionnaire. BMC Medical Ethics [Internet]. 2011 [cited 2018 Dec 13];12:15. Available from: https://www.ncbi.nlm.nih.gov/pubmed/21861876 https://www.ncbi.nlm.nih.gov/pubmed/2186...
-3232 Afonso SBC, Mitre RMA. Noticias difíceis: sentidos atribuídos por familiares de crianças com fibrose cística. Ciên Saúde Coletiva [Internet]. 2013 [cited 2018 Jan 13];18(9):2605-13. Available from: www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf...
,3434 Jalmsell L, Lövgren M, Kreicbergs U, Henter JI, Frost BM. Children with cancer share their views: tell the truth but leave room for hope. Acta Paediatr [Internet]. 2016 [cited 2018 Jan 16];105(9):1094-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27272911 https://www.ncbi.nlm.nih.gov/pubmed/2727...
-3535 Trejos AM, Reyes L, Bahamon MJ, Alarcón Y, Gaviria G. Effects in the adherence treatment and psychological adjustment after the disclosure of HIV/AIDS diagnosis with the "DIRE" clinical model in Colombian children under 17. Rev Child Infectol. 2015;32(4):408-15. doi: 10.4067/S0716-10182015000500007 https://doi.org/10.4067/S0716-1018201500...
,3737 Waxler JL, Cherniske EM, Dieter K, Herd P, Pober BR. Hearing from parents: the impacto f receiving the diagnosis of Williams syndrome in their child. Am J Med Genet A [Internet]. 2013 [cited 2018 Jan 19];161A(3):534-41. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23401422 https://www.ncbi.nlm.nih.gov/pubmed/2340...
-3838 Thorne C, Newell ML, Peckham CS. Disclosure of diagnosis and planning for the future in HIV-affected families in Europe. Child Care Health Dev. 2000;26(1):29-40. doi: 10.1046/j.1365-2214.2000.00128.x https://doi.org/10.1046/j.1365-2214.2000...
,4141 Orioles A, Miller VA, Kersun LS, Ingram M, Morrison WE. “To be a phenomenal doctor you have to be the whole package”: physicians’ interpersonal behaviors during difficult conversations in pediatrics. J Palliat Med [Internet]. 2013 [cited 2018 Jun 12];16(8):929-33. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23808643 https://www.ncbi.nlm.nih.gov/pubmed/2380...
42 Abbott M, Bernard P, Forge J. Communicating a diagnosis of autism spectrum disorder-a qualitative study of parents’ experiences. Clin Child Psychol Psychiatr [Internet]. 2012 [cited 2018 Jan 26];18(3):370-82. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22904114 https://www.ncbi.nlm.nih.gov/pubmed/2290...
43 Harnett A, Tierney E, Guerin S. Convention of hope-communicating positive, realistic messages to families at the time of a child’s diagnosis with disabilities. British J Learn Disabil. 2009;37:257-64. doi: 10.1111/j.1468-3156.2009.00580.x https://doi.org/10.1111/j.1468-3156.2009...
44 Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication about prognosis between parents and physicians of children with cancer: parents preferences and the impact of prognostic information. J Clin Oncol [Internet]. 2006 [cited 2017 Jun 26];24(33):5265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/17114660 https://www.ncbi.nlm.nih.gov/pubmed/1711...
45 Havermans T, Tack J, Vertommen A, Proesmans M, de Boeck K. Breaking bad news, the diagnosis of cystic fibrosis in childhood. J Cyst Fibros [Internet]. 2015 [cited 2018 Jun 16];14(4):540-6. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25563520 https://www.ncbi.nlm.nih.gov/pubmed/2556...
46 Abdelmoktader AM, Abd Elhamed KA. Egyptian mothers’ preferences regarding how physicians break bad news about their child’s disability: A structured verbal questionnaire. BMC Med Ethics [Internet]. 2012 [cited 2018 Jan 16];13:14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22747832 https://www.ncbi.nlm.nih.gov/pubmed/2274...
47 Young B, Ward J, Salmon P, Gravenhorst K, Hill J, Eden T. Parents’ experiences of their children’s presence in discussions with physicians about leukemia. Pediatr [Internet]. 2011 [cited 2018 Jun 25];127(5):1230-8. Available from: pediatrics.aappublications.org/content/127/5/e1230 pediatrics.aappublications.org/content/1...
48 Meert KL, Eggly S, Pollack M, Anand KJS, Zimmerman J, Carcillo J, et al. Parents’s perspectives on physician-parent communication near the time of a child’s death in the pediatric intensive care unit. Pediatr Crit Care Med [Internet]. 2008 [cited 2018 Jun 25];9(1):2-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18477906 https://www.ncbi.nlm.nih.gov/pubmed/1847...
-4949 Hsiao JL, Evan EE, Zeltzer LK. Parent and child perspectives on physician communication in pediatric palliative care. Palliat Support Care [Internet]. 2007 [cited 2017 Jan 13];5(4):355-65. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18044413 https://www.ncbi.nlm.nih.gov/pubmed/1804...
) other professionals(1515 Stenmarker M, Hallberg U, Palmérus K, Márky I. Being a messenger of life-threatening conditions: experiences of pediatric oncologists. Pediatr Blood Cancer [Internet]. 2010 [cited 2017 Jun 18];55(3):478-84. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20658619 https://www.ncbi.nlm.nih.gov/pubmed/2065...
,2020 Rujumba J1, Mbasaalaki-Mwaka CL, Ndeezi G. Challenges faced by health workers in providing counselling services to HIV-positive children in Uganda: a descriptive study. J Int AIDS Soc [Internet]. 2010 [cited 2017 Jan 22];13:9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20205937 https://www.ncbi.nlm.nih.gov/pubmed/2020...
,3535 Trejos AM, Reyes L, Bahamon MJ, Alarcón Y, Gaviria G. Effects in the adherence treatment and psychological adjustment after the disclosure of HIV/AIDS diagnosis with the "DIRE" clinical model in Colombian children under 17. Rev Child Infectol. 2015;32(4):408-15. doi: 10.4067/S0716-10182015000500007 https://doi.org/10.4067/S0716-1018201500...
,5050 Bartolo PA. Communicating a diagnosis of developmental disability to parents: multiprofessional negotiation frameworks. Child Care Health Dev [Internet]. 2002 [cited 2017 Jan 15];28(1):65-71. Available from: https://www.ncbi.nlm.nih.gov/pubmed/11856189 https://www.ncbi.nlm.nih.gov/pubmed/1185...
)
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family with professional support(1515 Stenmarker M, Hallberg U, Palmérus K, Márky I. Being a messenger of life-threatening conditions: experiences of pediatric oncologists. Pediatr Blood Cancer [Internet]. 2010 [cited 2017 Jun 18];55(3):478-84. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20658619 https://www.ncbi.nlm.nih.gov/pubmed/2065...
,1717 Aein F, Delaram M. Giving bad news: a qualitative research exploration. Iran Red Crescent Med J [Internet]. 2014 [cited 2018 Jun 16];16(6):e8197. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4102999/ https://www.ncbi.nlm.nih.gov/pmc/article...
,2222 Ablon J. Parents’ responses to their child’s diagnosis of neurofibromatosis 1. Am J Med Genet [Internet]. 2000 [cited 2018 Jan 23];93(2):136-42. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10869117 https://www.ncbi.nlm.nih.gov/pubmed/1086...
,2525 Nzota MS, Matovu JKB, Draper HR, Kisa R, Kiwanuka SN. Determinats and processo f HIV status disclosure to HIV-infected children aged 4 to 17 years receiving HIV care services at Baylor College of Medicine Children’s Foundation Tanzania, Centre of Excellence (COE) in Mbeya: cross-sectional study. BMC Pediatrics [Internet]. 2015 [cited 2018 Jan 13];15:81. Available from: https://www.springermedizin.de/determinants-and-processes-of-hiv-status-disclosure-to-hiv-infec/9746990 https://www.springermedizin.de/determina...
26 Heeren GA, Jemmott JB 3rd, Sidloyi L, Ngwane Z. Disclosure of HIV diagnosis to HIV-infected children is South Africa: focus groups for intervention development. Vulnerable Child Youth Stud [Internet]. 2012 [cited 2017 Dec 12];7(1):47-54. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22468145 https://www.ncbi.nlm.nih.gov/pubmed/2246...
27 Clarke SA, Davies H, Jenney M, Glaser A, Eiser C. Parental communication and children’s behaviour following diagnosis of childhood leukaemia. Psycho-Oncol [Internet]. 2005 [cited 2018 Jul 13]14(4):274-81. Available from: https://www.ncbi.nlm.nih.gov/pubmed/15386768 https://www.ncbi.nlm.nih.gov/pubmed/1538...
28 Badarau DO, De Clercq E, Wangmo T, Dragomir M, Miron I, Kühne T, et al. Cancer care in Romania: challenges and pitfalls of children’s and a adolescent’s multifaceted involvement. J Med Ethics [Internet]. 2016 [cited 2018 Jan 13];42(12):757-61. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27697792 https://www.ncbi.nlm.nih.gov/pubmed/2769...
-2929 Goodwin J, Schoch K, Shashi V, Hooper SR, Morad O, Zalevsky M, et al. A tale worth telling: the impacto f the diagnosis experience on disclosure of genetic disorders. J Intellect Disabil Res [Internet]. 2015 [cited 2018 Jan 18];59(5):474-86. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25059276 https://www.ncbi.nlm.nih.gov/pubmed/2505...
,3030 Arabiat DH, Alqaissi NM, Hamdan-Mansour AM. Children’s knowledge of cancer diagnosis and treatment: jordanian mothers’ perceptions and satisfaction with the process. Int Nurs Rev [Internet]. 2011 [cited 2018 Jun 13];58(4):443-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22092322 https://www.ncbi.nlm.nih.gov/pubmed/2209...
,3333 Boon-Yasidhi V, Kottapat U, Durier Y, Plipat N, Phongsamart W, Chokephaibulkit K, et al. Diagnosis disclosure in HIV-infected Thai children. J Med Assoc Thai [Internet]. 2005 [cited 2018 Jan 26];88(8):S100-5. Available from: https://www.ncbi.nlm.nih.gov/pubmed/16858851 https://www.ncbi.nlm.nih.gov/pubmed/1685...
,3535 Trejos AM, Reyes L, Bahamon MJ, Alarcón Y, Gaviria G. Effects in the adherence treatment and psychological adjustment after the disclosure of HIV/AIDS diagnosis with the "DIRE" clinical model in Colombian children under 17. Rev Child Infectol. 2015;32(4):408-15. doi: 10.4067/S0716-10182015000500007 https://doi.org/10.4067/S0716-1018201500...
36 Last BF, van Veldhuizen AMH. Information about diagnosis and prognosis related to anxiety and depression in children with cancer aged 8-16 years. EJC. 1996;32(2):290-4. Available from: doi: 10.1016/0959-8049(95)00576-5 https://doi.org/10.1016/0959-8049(95)005...
37 Waxler JL, Cherniske EM, Dieter K, Herd P, Pober BR. Hearing from parents: the impacto f receiving the diagnosis of Williams syndrome in their child. Am J Med Genet A [Internet]. 2013 [cited 2018 Jan 19];161A(3):534-41. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23401422 https://www.ncbi.nlm.nih.gov/pubmed/2340...
-3838 Thorne C, Newell ML, Peckham CS. Disclosure of diagnosis and planning for the future in HIV-affected families in Europe. Child Care Health Dev. 2000;26(1):29-40. doi: 10.1046/j.1365-2214.2000.00128.x https://doi.org/10.1046/j.1365-2214.2000...
,4040 Vaz LM, Eng E, Maman S, Tshikandu T, Behets F. Telling children they have HIV: lessons learned from findings of a qualitative study in Sub-Saharan Africa. AIDS Patients Care STDS [Internet]. 2010 [cited 2018 Jun 12];24(4):247-56. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20397899 https://www.ncbi.nlm.nih.gov/pubmed/2039...
,4949 Hsiao JL, Evan EE, Zeltzer LK. Parent and child perspectives on physician communication in pediatric palliative care. Palliat Support Care [Internet]. 2007 [cited 2017 Jan 13];5(4):355-65. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18044413 https://www.ncbi.nlm.nih.gov/pubmed/1804...
-5050 Bartolo PA. Communicating a diagnosis of developmental disability to parents: multiprofessional negotiation frameworks. Child Care Health Dev [Internet]. 2002 [cited 2017 Jan 15];28(1):65-71. Available from: https://www.ncbi.nlm.nih.gov/pubmed/11856189 https://www.ncbi.nlm.nih.gov/pubmed/1185...
) professional(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
,2020 Rujumba J1, Mbasaalaki-Mwaka CL, Ndeezi G. Challenges faced by health workers in providing counselling services to HIV-positive children in Uganda: a descriptive study. J Int AIDS Soc [Internet]. 2010 [cited 2017 Jan 22];13:9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20205937 https://www.ncbi.nlm.nih.gov/pubmed/2020...
,2323 Phuma-Ngaiyaye EE, Dartey AF. Experiences of children living with HIV and AIDS following their diagnosis disclosure in Mzuzu, Malawi. Vulnerable Child Youth Stud. 2015;10(4):357-65. doi: 10.1080/17450128.2015.1083639 https://doi.org/10.1080/17450128.2015.10...
,2525 Nzota MS, Matovu JKB, Draper HR, Kisa R, Kiwanuka SN. Determinats and processo f HIV status disclosure to HIV-infected children aged 4 to 17 years receiving HIV care services at Baylor College of Medicine Children’s Foundation Tanzania, Centre of Excellence (COE) in Mbeya: cross-sectional study. BMC Pediatrics [Internet]. 2015 [cited 2018 Jan 13];15:81. Available from: https://www.springermedizin.de/determinants-and-processes-of-hiv-status-disclosure-to-hiv-infec/9746990 https://www.springermedizin.de/determina...
-2626 Heeren GA, Jemmott JB 3rd, Sidloyi L, Ngwane Z. Disclosure of HIV diagnosis to HIV-infected children is South Africa: focus groups for intervention development. Vulnerable Child Youth Stud [Internet]. 2012 [cited 2017 Dec 12];7(1):47-54. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22468145 https://www.ncbi.nlm.nih.gov/pubmed/2246...
,3030 Arabiat DH, Alqaissi NM, Hamdan-Mansour AM. Children’s knowledge of cancer diagnosis and treatment: jordanian mothers’ perceptions and satisfaction with the process. Int Nurs Rev [Internet]. 2011 [cited 2018 Jun 13];58(4):443-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22092322 https://www.ncbi.nlm.nih.gov/pubmed/2209...
,3939 Muñoz Sastre MT, Sorum PC, Mullet E. Lay people’s and health professionals’views about breaking bad news to children. Child Care Health Dev [Internet]. 2014 [cited 2018 Jan 26];40(1):106-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22928950 https://www.ncbi.nlm.nih.gov/pubmed/2292...
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Message |
content |
diagnoses(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
12 Parsons SK, Saiki-Craighill S, Mayer DK, Sullivan AM, Jeruss S, Terrin N, et al. Telling children and adolescent about their cancer diagnosis: cross-cultural comparisons between pediatric oncologists in the US and Japan. Psycho-Oncol[Internet]. 2007 [cited 2018 Jan 10];16(1):60-8. Available from: https://www.ncbi.nlm.nih.gov/pubmed/16874746 https://www.ncbi.nlm.nih.gov/pubmed/1687...
13 Gilbey P. Qualitative analysis of parents’ experience with receiving the news of the detection of their child’s hearing loss. Int J Pediatr Otorhinolaryngol [Internet]. 2010 [cited 2017 Jul 16];74(3):265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20042242 https://www.ncbi.nlm.nih.gov/pubmed/2004...
14 Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet A [Internet]. 2003 [cited 2018 Jun 15];122A(2):100-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/12955760 https://www.ncbi.nlm.nih.gov/pubmed/1295...
15 Stenmarker M, Hallberg U, Palmérus K, Márky I. Being a messenger of life-threatening conditions: experiences of pediatric oncologists. Pediatr Blood Cancer [Internet]. 2010 [cited 2017 Jun 18];55(3):478-84. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20658619 https://www.ncbi.nlm.nih.gov/pubmed/2065...
16 Finan C, Nasr SZ, Rothwell E, Tarini BA. Primary care providers’experiences notifying parents of cystic fibrosis newborn screening results. Clin Pediatr (Phila) [Internet]. 2014 [cited 2018 Jan 16];54(1):67-75. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25104730 https://www.ncbi.nlm.nih.gov/pubmed/2510...
17 Aein F, Delaram M. Giving bad news: a qualitative research exploration. Iran Red Crescent Med J [Internet]. 2014 [cited 2018 Jun 16];16(6):e8197. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4102999/ https://www.ncbi.nlm.nih.gov/pmc/article...
18 Hasnat MJ, Graves P. Disclosure of developmental disability: a study of parent satisfaction and the determinants of satisfaction. J Paediatr Child Health [Internet]. 2000 [cited 2018 Jan16];36(1):32-5. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10723688 https://www.ncbi.nlm.nih.gov/pubmed/1072...
19 Parker TM, Johnston DL. Parental perceptions of being told their child has cancer. Pediatr Blood Cancer [Internet]. 2008 [cited 2017 Jan 26];51(4):531-4. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18623217 https://www.ncbi.nlm.nih.gov/pubmed/1862...
20 Rujumba J1, Mbasaalaki-Mwaka CL, Ndeezi G. Challenges faced by health workers in providing counselling services to HIV-positive children in Uganda: a descriptive study. J Int AIDS Soc [Internet]. 2010 [cited 2017 Jan 22];13:9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20205937 https://www.ncbi.nlm.nih.gov/pubmed/2020...
21 Eden OB, Black I, MacKinlay GA, Emery AE. Communication with parents of children with cancer. Palliat Med [Internet]. 1994 [cited 2018 Jul 22];8(2):105-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/8081551 https://www.ncbi.nlm.nih.gov/pubmed/8081...
22 Ablon J. Parents’ responses to their child’s diagnosis of neurofibromatosis 1. Am J Med Genet [Internet]. 2000 [cited 2018 Jan 23];93(2):136-42. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10869117 https://www.ncbi.nlm.nih.gov/pubmed/1086...
-2323 Phuma-Ngaiyaye EE, Dartey AF. Experiences of children living with HIV and AIDS following their diagnosis disclosure in Mzuzu, Malawi. Vulnerable Child Youth Stud. 2015;10(4):357-65. doi: 10.1080/17450128.2015.1083639 https://doi.org/10.1080/17450128.2015.10...
,2525 Nzota MS, Matovu JKB, Draper HR, Kisa R, Kiwanuka SN. Determinats and processo f HIV status disclosure to HIV-infected children aged 4 to 17 years receiving HIV care services at Baylor College of Medicine Children’s Foundation Tanzania, Centre of Excellence (COE) in Mbeya: cross-sectional study. BMC Pediatrics [Internet]. 2015 [cited 2018 Jan 13];15:81. Available from: https://www.springermedizin.de/determinants-and-processes-of-hiv-status-disclosure-to-hiv-infec/9746990 https://www.springermedizin.de/determina...
26 Heeren GA, Jemmott JB 3rd, Sidloyi L, Ngwane Z. Disclosure of HIV diagnosis to HIV-infected children is South Africa: focus groups for intervention development. Vulnerable Child Youth Stud [Internet]. 2012 [cited 2017 Dec 12];7(1):47-54. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22468145 https://www.ncbi.nlm.nih.gov/pubmed/2246...
27 Clarke SA, Davies H, Jenney M, Glaser A, Eiser C. Parental communication and children’s behaviour following diagnosis of childhood leukaemia. Psycho-Oncol [Internet]. 2005 [cited 2018 Jul 13]14(4):274-81. Available from: https://www.ncbi.nlm.nih.gov/pubmed/15386768 https://www.ncbi.nlm.nih.gov/pubmed/1538...
28 Badarau DO, De Clercq E, Wangmo T, Dragomir M, Miron I, Kühne T, et al. Cancer care in Romania: challenges and pitfalls of children’s and a adolescent’s multifaceted involvement. J Med Ethics [Internet]. 2016 [cited 2018 Jan 13];42(12):757-61. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27697792 https://www.ncbi.nlm.nih.gov/pubmed/2769...
29 Goodwin J, Schoch K, Shashi V, Hooper SR, Morad O, Zalevsky M, et al. A tale worth telling: the impacto f the diagnosis experience on disclosure of genetic disorders. J Intellect Disabil Res [Internet]. 2015 [cited 2018 Jan 18];59(5):474-86. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25059276 https://www.ncbi.nlm.nih.gov/pubmed/2505...
30 Arabiat DH, Alqaissi NM, Hamdan-Mansour AM. Children’s knowledge of cancer diagnosis and treatment: jordanian mothers’ perceptions and satisfaction with the process. Int Nurs Rev [Internet]. 2011 [cited 2018 Jun 13];58(4):443-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22092322 https://www.ncbi.nlm.nih.gov/pubmed/2209...
31 Al-Abdi SY, Al-Ali EA, Daheer MH, Al-Saleh YM, Al-Qurashi KH, Al-Aamri MA. Saudi mothers’ preferences about breaking bad news concerning newborns: a structured verbal questionnaire. BMC Medical Ethics [Internet]. 2011 [cited 2018 Dec 13];12:15. Available from: https://www.ncbi.nlm.nih.gov/pubmed/21861876 https://www.ncbi.nlm.nih.gov/pubmed/2186...
32 Afonso SBC, Mitre RMA. Noticias difíceis: sentidos atribuídos por familiares de crianças com fibrose cística. Ciên Saúde Coletiva [Internet]. 2013 [cited 2018 Jan 13];18(9):2605-13. Available from: www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf...
33 Boon-Yasidhi V, Kottapat U, Durier Y, Plipat N, Phongsamart W, Chokephaibulkit K, et al. Diagnosis disclosure in HIV-infected Thai children. J Med Assoc Thai [Internet]. 2005 [cited 2018 Jan 26];88(8):S100-5. Available from: https://www.ncbi.nlm.nih.gov/pubmed/16858851 https://www.ncbi.nlm.nih.gov/pubmed/1685...
34 Jalmsell L, Lövgren M, Kreicbergs U, Henter JI, Frost BM. Children with cancer share their views: tell the truth but leave room for hope. Acta Paediatr [Internet]. 2016 [cited 2018 Jan 16];105(9):1094-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27272911 https://www.ncbi.nlm.nih.gov/pubmed/2727...
35 Trejos AM, Reyes L, Bahamon MJ, Alarcón Y, Gaviria G. Effects in the adherence treatment and psychological adjustment after the disclosure of HIV/AIDS diagnosis with the "DIRE" clinical model in Colombian children under 17. Rev Child Infectol. 2015;32(4):408-15. doi: 10.4067/S0716-10182015000500007 https://doi.org/10.4067/S0716-1018201500...
36 Last BF, van Veldhuizen AMH. Information about diagnosis and prognosis related to anxiety and depression in children with cancer aged 8-16 years. EJC. 1996;32(2):290-4. Available from: doi: 10.1016/0959-8049(95)00576-5 https://doi.org/10.1016/0959-8049(95)005...
37 Waxler JL, Cherniske EM, Dieter K, Herd P, Pober BR. Hearing from parents: the impacto f receiving the diagnosis of Williams syndrome in their child. Am J Med Genet A [Internet]. 2013 [cited 2018 Jan 19];161A(3):534-41. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23401422 https://www.ncbi.nlm.nih.gov/pubmed/2340...
-3838 Thorne C, Newell ML, Peckham CS. Disclosure of diagnosis and planning for the future in HIV-affected families in Europe. Child Care Health Dev. 2000;26(1):29-40. doi: 10.1046/j.1365-2214.2000.00128.x https://doi.org/10.1046/j.1365-2214.2000...
,4040 Vaz LM, Eng E, Maman S, Tshikandu T, Behets F. Telling children they have HIV: lessons learned from findings of a qualitative study in Sub-Saharan Africa. AIDS Patients Care STDS [Internet]. 2010 [cited 2018 Jun 12];24(4):247-56. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20397899 https://www.ncbi.nlm.nih.gov/pubmed/2039...
41 Orioles A, Miller VA, Kersun LS, Ingram M, Morrison WE. “To be a phenomenal doctor you have to be the whole package”: physicians’ interpersonal behaviors during difficult conversations in pediatrics. J Palliat Med [Internet]. 2013 [cited 2018 Jun 12];16(8):929-33. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23808643 https://www.ncbi.nlm.nih.gov/pubmed/2380...
42 Abbott M, Bernard P, Forge J. Communicating a diagnosis of autism spectrum disorder-a qualitative study of parents’ experiences. Clin Child Psychol Psychiatr [Internet]. 2012 [cited 2018 Jan 26];18(3):370-82. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22904114 https://www.ncbi.nlm.nih.gov/pubmed/2290...
43 Harnett A, Tierney E, Guerin S. Convention of hope-communicating positive, realistic messages to families at the time of a child’s diagnosis with disabilities. British J Learn Disabil. 2009;37:257-64. doi: 10.1111/j.1468-3156.2009.00580.x https://doi.org/10.1111/j.1468-3156.2009...
44 Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication about prognosis between parents and physicians of children with cancer: parents preferences and the impact of prognostic information. J Clin Oncol [Internet]. 2006 [cited 2017 Jun 26];24(33):5265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/17114660 https://www.ncbi.nlm.nih.gov/pubmed/1711...
45 Havermans T, Tack J, Vertommen A, Proesmans M, de Boeck K. Breaking bad news, the diagnosis of cystic fibrosis in childhood. J Cyst Fibros [Internet]. 2015 [cited 2018 Jun 16];14(4):540-6. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25563520 https://www.ncbi.nlm.nih.gov/pubmed/2556...
46 Abdelmoktader AM, Abd Elhamed KA. Egyptian mothers’ preferences regarding how physicians break bad news about their child’s disability: A structured verbal questionnaire. BMC Med Ethics [Internet]. 2012 [cited 2018 Jan 16];13:14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22747832 https://www.ncbi.nlm.nih.gov/pubmed/2274...
-4747 Young B, Ward J, Salmon P, Gravenhorst K, Hill J, Eden T. Parents’ experiences of their children’s presence in discussions with physicians about leukemia. Pediatr [Internet]. 2011 [cited 2018 Jun 25];127(5):1230-8. Available from: pediatrics.aappublications.org/content/127/5/e1230 pediatrics.aappublications.org/content/1...
,4949 Hsiao JL, Evan EE, Zeltzer LK. Parent and child perspectives on physician communication in pediatric palliative care. Palliat Support Care [Internet]. 2007 [cited 2017 Jan 13];5(4):355-65. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18044413 https://www.ncbi.nlm.nih.gov/pubmed/1804...
-5050 Bartolo PA. Communicating a diagnosis of developmental disability to parents: multiprofessional negotiation frameworks. Child Care Health Dev [Internet]. 2002 [cited 2017 Jan 15];28(1):65-71. Available from: https://www.ncbi.nlm.nih.gov/pubmed/11856189 https://www.ncbi.nlm.nih.gov/pubmed/1185...
) prognoses(2424 Gomes GC, Xavier DM, Mota MS, Salvador MS, Silveira RS, Barlem ELD. Dando notícias difíceis à família da criança em situação grave ou em processo de terminalidade. Rev Enferm UERJ [Internet]. 2014 [cited 2017 Jun 26];22(3):347-52. Available from: https://pesquisa.bvsalud.org/portal/resource/pt/bde-27990 https://pesquisa.bvsalud.org/portal/reso...
-2525 Nzota MS, Matovu JKB, Draper HR, Kisa R, Kiwanuka SN. Determinats and processo f HIV status disclosure to HIV-infected children aged 4 to 17 years receiving HIV care services at Baylor College of Medicine Children’s Foundation Tanzania, Centre of Excellence (COE) in Mbeya: cross-sectional study. BMC Pediatrics [Internet]. 2015 [cited 2018 Jan 13];15:81. Available from: https://www.springermedizin.de/determinants-and-processes-of-hiv-status-disclosure-to-hiv-infec/9746990 https://www.springermedizin.de/determina...
,3939 Muñoz Sastre MT, Sorum PC, Mullet E. Lay people’s and health professionals’views about breaking bad news to children. Child Care Health Dev [Internet]. 2014 [cited 2018 Jan 26];40(1):106-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22928950 https://www.ncbi.nlm.nih.gov/pubmed/2292...
,4848 Meert KL, Eggly S, Pollack M, Anand KJS, Zimmerman J, Carcillo J, et al. Parents’s perspectives on physician-parent communication near the time of a child’s death in the pediatric intensive care unit. Pediatr Crit Care Med [Internet]. 2008 [cited 2018 Jun 25];9(1):2-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18477906 https://www.ncbi.nlm.nih.gov/pubmed/1847...
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honest(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
,1717 Aein F, Delaram M. Giving bad news: a qualitative research exploration. Iran Red Crescent Med J [Internet]. 2014 [cited 2018 Jun 16];16(6):e8197. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4102999/ https://www.ncbi.nlm.nih.gov/pmc/article...
,3434 Jalmsell L, Lövgren M, Kreicbergs U, Henter JI, Frost BM. Children with cancer share their views: tell the truth but leave room for hope. Acta Paediatr [Internet]. 2016 [cited 2018 Jan 16];105(9):1094-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27272911 https://www.ncbi.nlm.nih.gov/pubmed/2727...
,4343 Harnett A, Tierney E, Guerin S. Convention of hope-communicating positive, realistic messages to families at the time of a child’s diagnosis with disabilities. British J Learn Disabil. 2009;37:257-64. doi: 10.1111/j.1468-3156.2009.00580.x https://doi.org/10.1111/j.1468-3156.2009...
,4747 Young B, Ward J, Salmon P, Gravenhorst K, Hill J, Eden T. Parents’ experiences of their children’s presence in discussions with physicians about leukemia. Pediatr [Internet]. 2011 [cited 2018 Jun 25];127(5):1230-8. Available from: pediatrics.aappublications.org/content/127/5/e1230 pediatrics.aappublications.org/content/1...
-4848 Meert KL, Eggly S, Pollack M, Anand KJS, Zimmerman J, Carcillo J, et al. Parents’s perspectives on physician-parent communication near the time of a child’s death in the pediatric intensive care unit. Pediatr Crit Care Med [Internet]. 2008 [cited 2018 Jun 25];9(1):2-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18477906 https://www.ncbi.nlm.nih.gov/pubmed/1847...
,5050 Bartolo PA. Communicating a diagnosis of developmental disability to parents: multiprofessional negotiation frameworks. Child Care Health Dev [Internet]. 2002 [cited 2017 Jan 15];28(1):65-71. Available from: https://www.ncbi.nlm.nih.gov/pubmed/11856189 https://www.ncbi.nlm.nih.gov/pubmed/1185...
) empathetic(1313 Gilbey P. Qualitative analysis of parents’ experience with receiving the news of the detection of their child’s hearing loss. Int J Pediatr Otorhinolaryngol [Internet]. 2010 [cited 2017 Jul 16];74(3):265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20042242 https://www.ncbi.nlm.nih.gov/pubmed/2004...
,1515 Stenmarker M, Hallberg U, Palmérus K, Márky I. Being a messenger of life-threatening conditions: experiences of pediatric oncologists. Pediatr Blood Cancer [Internet]. 2010 [cited 2017 Jun 18];55(3):478-84. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20658619 https://www.ncbi.nlm.nih.gov/pubmed/2065...
,1717 Aein F, Delaram M. Giving bad news: a qualitative research exploration. Iran Red Crescent Med J [Internet]. 2014 [cited 2018 Jun 16];16(6):e8197. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4102999/ https://www.ncbi.nlm.nih.gov/pmc/article...
,2323 Phuma-Ngaiyaye EE, Dartey AF. Experiences of children living with HIV and AIDS following their diagnosis disclosure in Mzuzu, Malawi. Vulnerable Child Youth Stud. 2015;10(4):357-65. doi: 10.1080/17450128.2015.1083639 https://doi.org/10.1080/17450128.2015.10...
,3232 Afonso SBC, Mitre RMA. Noticias difíceis: sentidos atribuídos por familiares de crianças com fibrose cística. Ciên Saúde Coletiva [Internet]. 2013 [cited 2018 Jan 13];18(9):2605-13. Available from: www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf...
,4141 Orioles A, Miller VA, Kersun LS, Ingram M, Morrison WE. “To be a phenomenal doctor you have to be the whole package”: physicians’ interpersonal behaviors during difficult conversations in pediatrics. J Palliat Med [Internet]. 2013 [cited 2018 Jun 12];16(8):929-33. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23808643 https://www.ncbi.nlm.nih.gov/pubmed/2380...
,4444 Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication about prognosis between parents and physicians of children with cancer: parents preferences and the impact of prognostic information. J Clin Oncol [Internet]. 2006 [cited 2017 Jun 26];24(33):5265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/17114660 https://www.ncbi.nlm.nih.gov/pubmed/1711...
45 Havermans T, Tack J, Vertommen A, Proesmans M, de Boeck K. Breaking bad news, the diagnosis of cystic fibrosis in childhood. J Cyst Fibros [Internet]. 2015 [cited 2018 Jun 16];14(4):540-6. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25563520 https://www.ncbi.nlm.nih.gov/pubmed/2556...
-4646 Abdelmoktader AM, Abd Elhamed KA. Egyptian mothers’ preferences regarding how physicians break bad news about their child’s disability: A structured verbal questionnaire. BMC Med Ethics [Internet]. 2012 [cited 2018 Jan 16];13:14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22747832 https://www.ncbi.nlm.nih.gov/pubmed/2274...
,4848 Meert KL, Eggly S, Pollack M, Anand KJS, Zimmerman J, Carcillo J, et al. Parents’s perspectives on physician-parent communication near the time of a child’s death in the pediatric intensive care unit. Pediatr Crit Care Med [Internet]. 2008 [cited 2018 Jun 25];9(1):2-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18477906 https://www.ncbi.nlm.nih.gov/pubmed/1847...
49 Hsiao JL, Evan EE, Zeltzer LK. Parent and child perspectives on physician communication in pediatric palliative care. Palliat Support Care [Internet]. 2007 [cited 2017 Jan 13];5(4):355-65. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18044413 https://www.ncbi.nlm.nih.gov/pubmed/1804...
-5050 Bartolo PA. Communicating a diagnosis of developmental disability to parents: multiprofessional negotiation frameworks. Child Care Health Dev [Internet]. 2002 [cited 2017 Jan 15];28(1):65-71. Available from: https://www.ncbi.nlm.nih.gov/pubmed/11856189 https://www.ncbi.nlm.nih.gov/pubmed/1185...
) objective(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
,2525 Nzota MS, Matovu JKB, Draper HR, Kisa R, Kiwanuka SN. Determinats and processo f HIV status disclosure to HIV-infected children aged 4 to 17 years receiving HIV care services at Baylor College of Medicine Children’s Foundation Tanzania, Centre of Excellence (COE) in Mbeya: cross-sectional study. BMC Pediatrics [Internet]. 2015 [cited 2018 Jan 13];15:81. Available from: https://www.springermedizin.de/determinants-and-processes-of-hiv-status-disclosure-to-hiv-infec/9746990 https://www.springermedizin.de/determina...
,3232 Afonso SBC, Mitre RMA. Noticias difíceis: sentidos atribuídos por familiares de crianças com fibrose cística. Ciên Saúde Coletiva [Internet]. 2013 [cited 2018 Jan 13];18(9):2605-13. Available from: www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf...
,4242 Abbott M, Bernard P, Forge J. Communicating a diagnosis of autism spectrum disorder-a qualitative study of parents’ experiences. Clin Child Psychol Psychiatr [Internet]. 2012 [cited 2018 Jan 26];18(3):370-82. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22904114 https://www.ncbi.nlm.nih.gov/pubmed/2290...
,4646 Abdelmoktader AM, Abd Elhamed KA. Egyptian mothers’ preferences regarding how physicians break bad news about their child’s disability: A structured verbal questionnaire. BMC Med Ethics [Internet]. 2012 [cited 2018 Jan 16];13:14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22747832 https://www.ncbi.nlm.nih.gov/pubmed/2274...
,4949 Hsiao JL, Evan EE, Zeltzer LK. Parent and child perspectives on physician communication in pediatric palliative care. Palliat Support Care [Internet]. 2007 [cited 2017 Jan 13];5(4):355-65. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18044413 https://www.ncbi.nlm.nih.gov/pubmed/1804...
) hopeful(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
,2222 Ablon J. Parents’ responses to their child’s diagnosis of neurofibromatosis 1. Am J Med Genet [Internet]. 2000 [cited 2018 Jan 23];93(2):136-42. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10869117 https://www.ncbi.nlm.nih.gov/pubmed/1086...
,3434 Jalmsell L, Lövgren M, Kreicbergs U, Henter JI, Frost BM. Children with cancer share their views: tell the truth but leave room for hope. Acta Paediatr [Internet]. 2016 [cited 2018 Jan 16];105(9):1094-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27272911 https://www.ncbi.nlm.nih.gov/pubmed/2727...
,4343 Harnett A, Tierney E, Guerin S. Convention of hope-communicating positive, realistic messages to families at the time of a child’s diagnosis with disabilities. British J Learn Disabil. 2009;37:257-64. doi: 10.1111/j.1468-3156.2009.00580.x https://doi.org/10.1111/j.1468-3156.2009...
-4444 Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication about prognosis between parents and physicians of children with cancer: parents preferences and the impact of prognostic information. J Clin Oncol [Internet]. 2006 [cited 2017 Jun 26];24(33):5265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/17114660 https://www.ncbi.nlm.nih.gov/pubmed/1711...
,5050 Bartolo PA. Communicating a diagnosis of developmental disability to parents: multiprofessional negotiation frameworks. Child Care Health Dev [Internet]. 2002 [cited 2017 Jan 15];28(1):65-71. Available from: https://www.ncbi.nlm.nih.gov/pubmed/11856189 https://www.ncbi.nlm.nih.gov/pubmed/1185...
) available for continuity(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
,1414 Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet A [Internet]. 2003 [cited 2018 Jun 15];122A(2):100-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/12955760 https://www.ncbi.nlm.nih.gov/pubmed/1295...
,1717 Aein F, Delaram M. Giving bad news: a qualitative research exploration. Iran Red Crescent Med J [Internet]. 2014 [cited 2018 Jun 16];16(6):e8197. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4102999/ https://www.ncbi.nlm.nih.gov/pmc/article...
,2020 Rujumba J1, Mbasaalaki-Mwaka CL, Ndeezi G. Challenges faced by health workers in providing counselling services to HIV-positive children in Uganda: a descriptive study. J Int AIDS Soc [Internet]. 2010 [cited 2017 Jan 22];13:9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20205937 https://www.ncbi.nlm.nih.gov/pubmed/2020...
-2121 Eden OB, Black I, MacKinlay GA, Emery AE. Communication with parents of children with cancer. Palliat Med [Internet]. 1994 [cited 2018 Jul 22];8(2):105-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/8081551 https://www.ncbi.nlm.nih.gov/pubmed/8081...
,4141 Orioles A, Miller VA, Kersun LS, Ingram M, Morrison WE. “To be a phenomenal doctor you have to be the whole package”: physicians’ interpersonal behaviors during difficult conversations in pediatrics. J Palliat Med [Internet]. 2013 [cited 2018 Jun 12];16(8):929-33. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23808643 https://www.ncbi.nlm.nih.gov/pubmed/2380...
,4848 Meert KL, Eggly S, Pollack M, Anand KJS, Zimmerman J, Carcillo J, et al. Parents’s perspectives on physician-parent communication near the time of a child’s death in the pediatric intensive care unit. Pediatr Crit Care Med [Internet]. 2008 [cited 2018 Jun 25];9(1):2-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18477906 https://www.ncbi.nlm.nih.gov/pubmed/1847...
-4949 Hsiao JL, Evan EE, Zeltzer LK. Parent and child perspectives on physician communication in pediatric palliative care. Palliat Support Care [Internet]. 2007 [cited 2017 Jan 13];5(4):355-65. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18044413 https://www.ncbi.nlm.nih.gov/pubmed/1804...
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informational material(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
,1414 Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet A [Internet]. 2003 [cited 2018 Jun 15];122A(2):100-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/12955760 https://www.ncbi.nlm.nih.gov/pubmed/1295...
,1616 Finan C, Nasr SZ, Rothwell E, Tarini BA. Primary care providers’experiences notifying parents of cystic fibrosis newborn screening results. Clin Pediatr (Phila) [Internet]. 2014 [cited 2018 Jan 16];54(1):67-75. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25104730 https://www.ncbi.nlm.nih.gov/pubmed/2510...
,2121 Eden OB, Black I, MacKinlay GA, Emery AE. Communication with parents of children with cancer. Palliat Med [Internet]. 1994 [cited 2018 Jul 22];8(2):105-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/8081551 https://www.ncbi.nlm.nih.gov/pubmed/8081...
-2222 Ablon J. Parents’ responses to their child’s diagnosis of neurofibromatosis 1. Am J Med Genet [Internet]. 2000 [cited 2018 Jan 23];93(2):136-42. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10869117 https://www.ncbi.nlm.nih.gov/pubmed/1086...
,2525 Nzota MS, Matovu JKB, Draper HR, Kisa R, Kiwanuka SN. Determinats and processo f HIV status disclosure to HIV-infected children aged 4 to 17 years receiving HIV care services at Baylor College of Medicine Children’s Foundation Tanzania, Centre of Excellence (COE) in Mbeya: cross-sectional study. BMC Pediatrics [Internet]. 2015 [cited 2018 Jan 13];15:81. Available from: https://www.springermedizin.de/determinants-and-processes-of-hiv-status-disclosure-to-hiv-infec/9746990 https://www.springermedizin.de/determina...
-2626 Heeren GA, Jemmott JB 3rd, Sidloyi L, Ngwane Z. Disclosure of HIV diagnosis to HIV-infected children is South Africa: focus groups for intervention development. Vulnerable Child Youth Stud [Internet]. 2012 [cited 2017 Dec 12];7(1):47-54. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22468145 https://www.ncbi.nlm.nih.gov/pubmed/2246...
,3030 Arabiat DH, Alqaissi NM, Hamdan-Mansour AM. Children’s knowledge of cancer diagnosis and treatment: jordanian mothers’ perceptions and satisfaction with the process. Int Nurs Rev [Internet]. 2011 [cited 2018 Jun 13];58(4):443-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22092322 https://www.ncbi.nlm.nih.gov/pubmed/2209...
,3737 Waxler JL, Cherniske EM, Dieter K, Herd P, Pober BR. Hearing from parents: the impacto f receiving the diagnosis of Williams syndrome in their child. Am J Med Genet A [Internet]. 2013 [cited 2018 Jan 19];161A(3):534-41. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23401422 https://www.ncbi.nlm.nih.gov/pubmed/2340...
,4545 Havermans T, Tack J, Vertommen A, Proesmans M, de Boeck K. Breaking bad news, the diagnosis of cystic fibrosis in childhood. J Cyst Fibros [Internet]. 2015 [cited 2018 Jun 16];14(4):540-6. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25563520 https://www.ncbi.nlm.nih.gov/pubmed/2556...
) evaluation of the quantity and quality of the content and pace of information(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
,1414 Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet A [Internet]. 2003 [cited 2018 Jun 15];122A(2):100-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/12955760 https://www.ncbi.nlm.nih.gov/pubmed/1295...
,1616 Finan C, Nasr SZ, Rothwell E, Tarini BA. Primary care providers’experiences notifying parents of cystic fibrosis newborn screening results. Clin Pediatr (Phila) [Internet]. 2014 [cited 2018 Jan 16];54(1):67-75. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25104730 https://www.ncbi.nlm.nih.gov/pubmed/2510...
,1818 Hasnat MJ, Graves P. Disclosure of developmental disability: a study of parent satisfaction and the determinants of satisfaction. J Paediatr Child Health [Internet]. 2000 [cited 2018 Jan16];36(1):32-5. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10723688 https://www.ncbi.nlm.nih.gov/pubmed/1072...
19 Parker TM, Johnston DL. Parental perceptions of being told their child has cancer. Pediatr Blood Cancer [Internet]. 2008 [cited 2017 Jan 26];51(4):531-4. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18623217 https://www.ncbi.nlm.nih.gov/pubmed/1862...
20 Rujumba J1, Mbasaalaki-Mwaka CL, Ndeezi G. Challenges faced by health workers in providing counselling services to HIV-positive children in Uganda: a descriptive study. J Int AIDS Soc [Internet]. 2010 [cited 2017 Jan 22];13:9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20205937 https://www.ncbi.nlm.nih.gov/pubmed/2020...
-2121 Eden OB, Black I, MacKinlay GA, Emery AE. Communication with parents of children with cancer. Palliat Med [Internet]. 1994 [cited 2018 Jul 22];8(2):105-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/8081551 https://www.ncbi.nlm.nih.gov/pubmed/8081...
,2828 Badarau DO, De Clercq E, Wangmo T, Dragomir M, Miron I, Kühne T, et al. Cancer care in Romania: challenges and pitfalls of children’s and a adolescent’s multifaceted involvement. J Med Ethics [Internet]. 2016 [cited 2018 Jan 13];42(12):757-61. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27697792 https://www.ncbi.nlm.nih.gov/pubmed/2769...
,3131 Al-Abdi SY, Al-Ali EA, Daheer MH, Al-Saleh YM, Al-Qurashi KH, Al-Aamri MA. Saudi mothers’ preferences about breaking bad news concerning newborns: a structured verbal questionnaire. BMC Medical Ethics [Internet]. 2011 [cited 2018 Dec 13];12:15. Available from: https://www.ncbi.nlm.nih.gov/pubmed/21861876 https://www.ncbi.nlm.nih.gov/pubmed/2186...
,3636 Last BF, van Veldhuizen AMH. Information about diagnosis and prognosis related to anxiety and depression in children with cancer aged 8-16 years. EJC. 1996;32(2):290-4. Available from: doi: 10.1016/0959-8049(95)00576-5 https://doi.org/10.1016/0959-8049(95)005...
-3737 Waxler JL, Cherniske EM, Dieter K, Herd P, Pober BR. Hearing from parents: the impacto f receiving the diagnosis of Williams syndrome in their child. Am J Med Genet A [Internet]. 2013 [cited 2018 Jan 19];161A(3):534-41. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23401422 https://www.ncbi.nlm.nih.gov/pubmed/2340...
,4040 Vaz LM, Eng E, Maman S, Tshikandu T, Behets F. Telling children they have HIV: lessons learned from findings of a qualitative study in Sub-Saharan Africa. AIDS Patients Care STDS [Internet]. 2010 [cited 2018 Jun 12];24(4):247-56. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20397899 https://www.ncbi.nlm.nih.gov/pubmed/2039...
41 Orioles A, Miller VA, Kersun LS, Ingram M, Morrison WE. “To be a phenomenal doctor you have to be the whole package”: physicians’ interpersonal behaviors during difficult conversations in pediatrics. J Palliat Med [Internet]. 2013 [cited 2018 Jun 12];16(8):929-33. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23808643 https://www.ncbi.nlm.nih.gov/pubmed/2380...
-4242 Abbott M, Bernard P, Forge J. Communicating a diagnosis of autism spectrum disorder-a qualitative study of parents’ experiences. Clin Child Psychol Psychiatr [Internet]. 2012 [cited 2018 Jan 26];18(3):370-82. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22904114 https://www.ncbi.nlm.nih.gov/pubmed/2290...
,4545 Havermans T, Tack J, Vertommen A, Proesmans M, de Boeck K. Breaking bad news, the diagnosis of cystic fibrosis in childhood. J Cyst Fibros [Internet]. 2015 [cited 2018 Jun 16];14(4):540-6. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25563520 https://www.ncbi.nlm.nih.gov/pubmed/2556...
,4848 Meert KL, Eggly S, Pollack M, Anand KJS, Zimmerman J, Carcillo J, et al. Parents’s perspectives on physician-parent communication near the time of a child’s death in the pediatric intensive care unit. Pediatr Crit Care Med [Internet]. 2008 [cited 2018 Jun 25];9(1):2-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18477906 https://www.ncbi.nlm.nih.gov/pubmed/1847...
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emotion overload(1515 Stenmarker M, Hallberg U, Palmérus K, Márky I. Being a messenger of life-threatening conditions: experiences of pediatric oncologists. Pediatr Blood Cancer [Internet]. 2010 [cited 2017 Jun 18];55(3):478-84. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20658619 https://www.ncbi.nlm.nih.gov/pubmed/2065...
,2222 Ablon J. Parents’ responses to their child’s diagnosis of neurofibromatosis 1. Am J Med Genet [Internet]. 2000 [cited 2018 Jan 23];93(2):136-42. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10869117 https://www.ncbi.nlm.nih.gov/pubmed/1086...
,3232 Afonso SBC, Mitre RMA. Noticias difíceis: sentidos atribuídos por familiares de crianças com fibrose cística. Ciên Saúde Coletiva [Internet]. 2013 [cited 2018 Jan 13];18(9):2605-13. Available from: www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf...
) need to refer children's relatives to other services(1313 Gilbey P. Qualitative analysis of parents’ experience with receiving the news of the detection of their child’s hearing loss. Int J Pediatr Otorhinolaryngol [Internet]. 2010 [cited 2017 Jul 16];74(3):265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20042242 https://www.ncbi.nlm.nih.gov/pubmed/2004...
,2222 Ablon J. Parents’ responses to their child’s diagnosis of neurofibromatosis 1. Am J Med Genet [Internet]. 2000 [cited 2018 Jan 23];93(2):136-42. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10869117 https://www.ncbi.nlm.nih.gov/pubmed/1086...
,4040 Vaz LM, Eng E, Maman S, Tshikandu T, Behets F. Telling children they have HIV: lessons learned from findings of a qualitative study in Sub-Saharan Africa. AIDS Patients Care STDS [Internet]. 2010 [cited 2018 Jun 12];24(4):247-56. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20397899 https://www.ncbi.nlm.nih.gov/pubmed/2039...
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negative feelings(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
,1414 Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet A [Internet]. 2003 [cited 2018 Jun 15];122A(2):100-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/12955760 https://www.ncbi.nlm.nih.gov/pubmed/1295...
,1818 Hasnat MJ, Graves P. Disclosure of developmental disability: a study of parent satisfaction and the determinants of satisfaction. J Paediatr Child Health [Internet]. 2000 [cited 2018 Jan16];36(1):32-5. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10723688 https://www.ncbi.nlm.nih.gov/pubmed/1072...
,2020 Rujumba J1, Mbasaalaki-Mwaka CL, Ndeezi G. Challenges faced by health workers in providing counselling services to HIV-positive children in Uganda: a descriptive study. J Int AIDS Soc [Internet]. 2010 [cited 2017 Jan 22];13:9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20205937 https://www.ncbi.nlm.nih.gov/pubmed/2020...
21 Eden OB, Black I, MacKinlay GA, Emery AE. Communication with parents of children with cancer. Palliat Med [Internet]. 1994 [cited 2018 Jul 22];8(2):105-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/8081551 https://www.ncbi.nlm.nih.gov/pubmed/8081...
-2222 Ablon J. Parents’ responses to their child’s diagnosis of neurofibromatosis 1. Am J Med Genet [Internet]. 2000 [cited 2018 Jan 23];93(2):136-42. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10869117 https://www.ncbi.nlm.nih.gov/pubmed/1086...
,3737 Waxler JL, Cherniske EM, Dieter K, Herd P, Pober BR. Hearing from parents: the impacto f receiving the diagnosis of Williams syndrome in their child. Am J Med Genet A [Internet]. 2013 [cited 2018 Jan 19];161A(3):534-41. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23401422 https://www.ncbi.nlm.nih.gov/pubmed/2340...
,4242 Abbott M, Bernard P, Forge J. Communicating a diagnosis of autism spectrum disorder-a qualitative study of parents’ experiences. Clin Child Psychol Psychiatr [Internet]. 2012 [cited 2018 Jan 26];18(3):370-82. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22904114 https://www.ncbi.nlm.nih.gov/pubmed/2290...
,4949 Hsiao JL, Evan EE, Zeltzer LK. Parent and child perspectives on physician communication in pediatric palliative care. Palliat Support Care [Internet]. 2007 [cited 2017 Jan 13];5(4):355-65. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18044413 https://www.ncbi.nlm.nih.gov/pubmed/1804...
) need for privacy(1717 Aein F, Delaram M. Giving bad news: a qualitative research exploration. Iran Red Crescent Med J [Internet]. 2014 [cited 2018 Jun 16];16(6):e8197. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4102999/ https://www.ncbi.nlm.nih.gov/pmc/article...
) need for support(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
,1313 Gilbey P. Qualitative analysis of parents’ experience with receiving the news of the detection of their child’s hearing loss. Int J Pediatr Otorhinolaryngol [Internet]. 2010 [cited 2017 Jul 16];74(3):265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20042242 https://www.ncbi.nlm.nih.gov/pubmed/2004...
-1414 Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet A [Internet]. 2003 [cited 2018 Jun 15];122A(2):100-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/12955760 https://www.ncbi.nlm.nih.gov/pubmed/1295...
,1717 Aein F, Delaram M. Giving bad news: a qualitative research exploration. Iran Red Crescent Med J [Internet]. 2014 [cited 2018 Jun 16];16(6):e8197. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4102999/ https://www.ncbi.nlm.nih.gov/pmc/article...
,2121 Eden OB, Black I, MacKinlay GA, Emery AE. Communication with parents of children with cancer. Palliat Med [Internet]. 1994 [cited 2018 Jul 22];8(2):105-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/8081551 https://www.ncbi.nlm.nih.gov/pubmed/8081...
,2323 Phuma-Ngaiyaye EE, Dartey AF. Experiences of children living with HIV and AIDS following their diagnosis disclosure in Mzuzu, Malawi. Vulnerable Child Youth Stud. 2015;10(4):357-65. doi: 10.1080/17450128.2015.1083639 https://doi.org/10.1080/17450128.2015.10...
,3232 Afonso SBC, Mitre RMA. Noticias difíceis: sentidos atribuídos por familiares de crianças com fibrose cística. Ciên Saúde Coletiva [Internet]. 2013 [cited 2018 Jan 13];18(9):2605-13. Available from: www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf www.scielo.br/pdf/csc/v18n9/v18n9a15.pdf...
,4242 Abbott M, Bernard P, Forge J. Communicating a diagnosis of autism spectrum disorder-a qualitative study of parents’ experiences. Clin Child Psychol Psychiatr [Internet]. 2012 [cited 2018 Jan 26];18(3):370-82. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22904114 https://www.ncbi.nlm.nih.gov/pubmed/2290...
,4545 Havermans T, Tack J, Vertommen A, Proesmans M, de Boeck K. Breaking bad news, the diagnosis of cystic fibrosis in childhood. J Cyst Fibros [Internet]. 2015 [cited 2018 Jun 16];14(4):540-6. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25563520 https://www.ncbi.nlm.nih.gov/pubmed/2556...
) seeking other information sources(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
,1414 Hill V, Sahhar M, Aitken M, Savarirayan R, Metcalfe S. Experiences at the time of diagnosis of parents who have a child with a bone dysplasia resulting in short stature. Am J Med Genet A [Internet]. 2003 [cited 2018 Jun 15];122A(2):100-7. Available from: https://www.ncbi.nlm.nih.gov/pubmed/12955760 https://www.ncbi.nlm.nih.gov/pubmed/1295...
,1616 Finan C, Nasr SZ, Rothwell E, Tarini BA. Primary care providers’experiences notifying parents of cystic fibrosis newborn screening results. Clin Pediatr (Phila) [Internet]. 2014 [cited 2018 Jan 16];54(1):67-75. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25104730 https://www.ncbi.nlm.nih.gov/pubmed/2510...
,2020 Rujumba J1, Mbasaalaki-Mwaka CL, Ndeezi G. Challenges faced by health workers in providing counselling services to HIV-positive children in Uganda: a descriptive study. J Int AIDS Soc [Internet]. 2010 [cited 2017 Jan 22];13:9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20205937 https://www.ncbi.nlm.nih.gov/pubmed/2020...
21 Eden OB, Black I, MacKinlay GA, Emery AE. Communication with parents of children with cancer. Palliat Med [Internet]. 1994 [cited 2018 Jul 22];8(2):105-14. Available from: https://www.ncbi.nlm.nih.gov/pubmed/8081551 https://www.ncbi.nlm.nih.gov/pubmed/8081...
22 Ablon J. Parents’ responses to their child’s diagnosis of neurofibromatosis 1. Am J Med Genet [Internet]. 2000 [cited 2018 Jan 23];93(2):136-42. Available from: https://www.ncbi.nlm.nih.gov/pubmed/10869117 https://www.ncbi.nlm.nih.gov/pubmed/1086...
-2323 Phuma-Ngaiyaye EE, Dartey AF. Experiences of children living with HIV and AIDS following their diagnosis disclosure in Mzuzu, Malawi. Vulnerable Child Youth Stud. 2015;10(4):357-65. doi: 10.1080/17450128.2015.1083639 https://doi.org/10.1080/17450128.2015.10...
,2828 Badarau DO, De Clercq E, Wangmo T, Dragomir M, Miron I, Kühne T, et al. Cancer care in Romania: challenges and pitfalls of children’s and a adolescent’s multifaceted involvement. J Med Ethics [Internet]. 2016 [cited 2018 Jan 13];42(12):757-61. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27697792 https://www.ncbi.nlm.nih.gov/pubmed/2769...
,3434 Jalmsell L, Lövgren M, Kreicbergs U, Henter JI, Frost BM. Children with cancer share their views: tell the truth but leave room for hope. Acta Paediatr [Internet]. 2016 [cited 2018 Jan 16];105(9):1094-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27272911 https://www.ncbi.nlm.nih.gov/pubmed/2727...
,4545 Havermans T, Tack J, Vertommen A, Proesmans M, de Boeck K. Breaking bad news, the diagnosis of cystic fibrosis in childhood. J Cyst Fibros [Internet]. 2015 [cited 2018 Jun 16];14(4):540-6. Available from: https://www.ncbi.nlm.nih.gov/pubmed/25563520 https://www.ncbi.nlm.nih.gov/pubmed/2556...
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silencing(2323 Phuma-Ngaiyaye EE, Dartey AF. Experiences of children living with HIV and AIDS following their diagnosis disclosure in Mzuzu, Malawi. Vulnerable Child Youth Stud. 2015;10(4):357-65. doi: 10.1080/17450128.2015.1083639 https://doi.org/10.1080/17450128.2015.10...
,4141 Orioles A, Miller VA, Kersun LS, Ingram M, Morrison WE. “To be a phenomenal doctor you have to be the whole package”: physicians’ interpersonal behaviors during difficult conversations in pediatrics. J Palliat Med [Internet]. 2013 [cited 2018 Jun 12];16(8):929-33. Available from: https://www.ncbi.nlm.nih.gov/pubmed/23808643 https://www.ncbi.nlm.nih.gov/pubmed/2380...
) changes in mood and behavior(1111 Afonso SBC, Minayo MCS. Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis. Ciên Saúde Coletiva [Internet]. 2017 [cited 2018 Jun 28];22(1):53-62. Available from: www.scielo.br/pdf/csc/v22n1/1413-8123-csc-22-01-0053.pdf www.scielo.br/pdf/csc/v22n1/1413-8123-cs...
,2020 Rujumba J1, Mbasaalaki-Mwaka CL, Ndeezi G. Challenges faced by health workers in providing counselling services to HIV-positive children in Uganda: a descriptive study. J Int AIDS Soc [Internet]. 2010 [cited 2017 Jan 22];13:9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20205937 https://www.ncbi.nlm.nih.gov/pubmed/2020...
,2323 Phuma-Ngaiyaye EE, Dartey AF. Experiences of children living with HIV and AIDS following their diagnosis disclosure in Mzuzu, Malawi. Vulnerable Child Youth Stud. 2015;10(4):357-65. doi: 10.1080/17450128.2015.1083639 https://doi.org/10.1080/17450128.2015.10...
,3030 Arabiat DH, Alqaissi NM, Hamdan-Mansour AM. Children’s knowledge of cancer diagnosis and treatment: jordanian mothers’ perceptions and satisfaction with the process. Int Nurs Rev [Internet]. 2011 [cited 2018 Jun 13];58(4):443-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22092322 https://www.ncbi.nlm.nih.gov/pubmed/2209...
) participation in self-care(2626 Heeren GA, Jemmott JB 3rd, Sidloyi L, Ngwane Z. Disclosure of HIV diagnosis to HIV-infected children is South Africa: focus groups for intervention development. Vulnerable Child Youth Stud [Internet]. 2012 [cited 2017 Dec 12];7(1):47-54. Available from: https://www.ncbi.nlm.nih.gov/pubmed/22468145 https://www.ncbi.nlm.nih.gov/pubmed/2246...
,3333 Boon-Yasidhi V, Kottapat U, Durier Y, Plipat N, Phongsamart W, Chokephaibulkit K, et al. Diagnosis disclosure in HIV-infected Thai children. J Med Assoc Thai [Internet]. 2005 [cited 2018 Jan 26];88(8):S100-5. Available from: https://www.ncbi.nlm.nih.gov/pubmed/16858851 https://www.ncbi.nlm.nih.gov/pubmed/1685...
-3434 Jalmsell L, Lövgren M, Kreicbergs U, Henter JI, Frost BM. Children with cancer share their views: tell the truth but leave room for hope. Acta Paediatr [Internet]. 2016 [cited 2018 Jan 16];105(9):1094-9. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27272911 https://www.ncbi.nlm.nih.gov/pubmed/2727...
,4444 Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication about prognosis between parents and physicians of children with cancer: parents preferences and the impact of prognostic information. J Clin Oncol [Internet]. 2006 [cited 2017 Jun 26];24(33):5265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/17114660 https://www.ncbi.nlm.nih.gov/pubmed/1711...
,4949 Hsiao JL, Evan EE, Zeltzer LK. Parent and child perspectives on physician communication in pediatric palliative care. Palliat Support Care [Internet]. 2007 [cited 2017 Jan 13];5(4):355-65. Available from: https://www.ncbi.nlm.nih.gov/pubmed/18044413 https://www.ncbi.nlm.nih.gov/pubmed/1804...
) questions(2828 Badarau DO, De Clercq E, Wangmo T, Dragomir M, Miron I, Kühne T, et al. Cancer care in Romania: challenges and pitfalls of children’s and a adolescent’s multifaceted involvement. J Med Ethics [Internet]. 2016 [cited 2018 Jan 13];42(12):757-61. Available from: https://www.ncbi.nlm.nih.gov/pubmed/27697792 https://www.ncbi.nlm.nih.gov/pubmed/2769...
,4040 Vaz LM, Eng E, Maman S, Tshikandu T, Behets F. Telling children they have HIV: lessons learned from findings of a qualitative study in Sub-Saharan Africa. AIDS Patients Care STDS [Internet]. 2010 [cited 2018 Jun 12];24(4):247-56. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20397899 https://www.ncbi.nlm.nih.gov/pubmed/2039...
) plans for the future(1313 Gilbey P. Qualitative analysis of parents’ experience with receiving the news of the detection of their child’s hearing loss. Int J Pediatr Otorhinolaryngol [Internet]. 2010 [cited 2017 Jul 16];74(3):265-70. Available from: https://www.ncbi.nlm.nih.gov/pubmed/20042242 https://www.ncbi.nlm.nih.gov/pubmed/2004...
,1717 Aein F, Delaram M. Giving bad news: a qualitative research exploration. Iran Red Crescent Med J [Internet]. 2014 [cited 2018 Jun 16];16(6):e8197. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4102999/ https://www.ncbi.nlm.nih.gov/pmc/article...
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