Calidad de la transición del cuidado de niños y adolescentes considerando la presencia de enfermedad crónica

Gomes, Vitória Carolini; Lanzoni, Gabriela Marcellino de Melo; Cechinel-Peiter, Caroline; Santos, José Luís Guedes dos; Mello, Ana Lúcia Schaefer Ferreira de; Magalhães, Aline Lima Pestana

Vitória Carolini Gomes

conception or design of the study/research

analysis and/or interpretation of data

final review with critical and intellectual participation in the manuscript

Universidade Federal de Santa Catarina. Florianópolis, Santa Catarina, Brazil

https://orcid.org/0000-0003-1147-2233

Gabriela Marcellino de Melo Lanzoni

conception or design of the study/research

analysis and/or interpretation of data

final review with critical and intellectual participation in the manuscript

Universidade Federal de Santa Catarina. Florianópolis, Santa Catarina, Brazil

https://orcid.org/0000-0001-5935-8849

Caroline Cechinel-Peiter Corresponding author: Caroline Cechinel-Peiter, E-mail: carolcechinel@gmail.com

conception or design of the study/research

analysis and/or interpretation of data

final review with critical and intellectual participation in the manuscript

Universidade Federal de Santa Catarina. Florianópolis, Santa Catarina, Brazil

https://orcid.org/0000-0003-0032-6791

José Luís Guedes dos Santos

conception or design of the study/research

analysis and/or interpretation of data

final review with critical and intellectual participation in the manuscript

Universidade Federal de Santa Catarina. Florianópolis, Santa Catarina, Brazil

https://orcid.org/0000-0003-3186-8286

Ana Lúcia Schaefer Ferreira de Mello

analysis and/or interpretation of data

final review with critical and intellectual participation in the manuscript

Universidade Federal de Santa Catarina. Florianópolis, Santa Catarina, Brazil

https://orcid.org/0000-0001-9591-7361

Aline Lima Pestana Magalhães

analysis and/or interpretation of data

final review with critical and intellectual participation in the manuscript

Universidade Federal de Santa Catarina. Florianópolis, Santa Catarina, Brazil

https://orcid.org/0000-0001-7553-1648

Corresponding author: Caroline Cechinel-Peiter, E-mail: carolcechinel@gmail.com

EDITOR IN CHIEF: Álvaro Sousa

ASSOCIATE EDITOR: Renata Karina Reis

Items		Fator
1.	Agreed with the health care team on health goals and means	3
2.	Preferences considered when deciding health needs	3
3.	Preferences considered when deciding where health needs are met.	3
4.	Had information needed for self-care	1
5.	Understand how to manage health	1
6.	Understand warning signs and symptoms	1
7.	Had a written care plan	4
8.	Understand what makes the health condition better or worse	1
9.	Understand health care responsibilities	1
10.	Confident knew what to do to manage care	1
11.	Confident could do what needed to take care of health	1
12.	Had a written list of appointments or exams for the next weeks	4
13.	Understand medications’ purpose	2
14.	Understand how to take medications	2
15.	Understand medications’ side effects	2

Variable	Category	n	%
Gender	Male	172	56.4
	Female	133	43.6
City of residence	Same city of the hospitals	133	43.6
	Same health region of the hospitals	101	33.1
	Other cities	71	23.3
Connection between the tutor and the child	Mother	233	76.4
	Father	44	14.4
	Others	28	9.2
Chronic disease	Yes	192	63.0
Chronic disease	No	113	37.0
Type of chronic disease according with ICD 10 chapter	Respiratory system diseases	62	32.3
	Congenital malformations, deformations, and chromosomal abnormalities	58	30.2
	Neoplasms	19	9.9
	Diseases of the circulatory system	11	5.7
	Diseases of the nervous system	11	5.7
	Endocrine, nutritional, and metabolic diseases	9	4.7
	Disease of the digestive system	8	4.2
	Diseases of the genitourinary system	5	2.6
	Mental and behavioral disorders	7	3.7
	Disease of blood and blood-forming organs, and some immune disorders	2	1.0

CTM-15 items	Total		Patients with chronic disease		Patients with no chronic disease		p value
CTM-15 items	Mean	Standard deviation	Mean	Standard deviation	Mean	Standard deviation	p value
1	87.6	18.9	89.2	17.7	85.0	20.4	0.065
2	86.4	24.4	88.4	22.9	83.0	26.5	0.078
3	84.1	25.0	86.9	23.0	79.5	27.7	0.018
4	90.3	20.0	91.6	18.8	88.2	21.8	0.171
5	92.1	18.1	93.2	17.3	90.3	19.3	0.191
6	91.5	18.9	92.8	17.8	89.4	20.5	0.142
7	82.9	28.6	84.1	29.0	80.9	28.0	0.349
8	91.8	17.2	93.3	15.0	89.3	20.1	0.066
9	94.7	12.5	95.6	11.3	93.2	14.2	0.120
10	89.4	20.1	90.9	18.7	86.9	22.1	0.112
11	90.1	18.3	90.9	17.4	88.7	19.8	0.318
12	82.0	29.1	87.3	25.9	72.8	31.9	<0.001
13	91.2	19.5	92.7	19.6	88.7	19.1	0.095
14	94.3	16.0	96.0	13.0	91.3	19.9	0.038
15	67.8	38.0	76.1	34.9	52.9	39.0	<0.001
Total	87.9	13.4	90.0	11.9	84.3	15.1	0.001

CTM-15 factors	Total		Patients with chronic disease		Patients with no chronic disease		p value
CTM-15 factors	Mean	Standard deviation	Mean	Standard deviation	Mean	Standard deviation	p value
1	91.4	13.7	92.6	12.1	89.3	16.0	0.058
2	84.8	18.5	88.5	17.6	78.5	18.4	<0.001
3	86.0	18.2	88.1	16.5	82.5	20.4	0.014
4	82.6	23.4	85.5	22.6	77.5	24.0	0.004

Type of chronic disease according with ICD10 chapter	Total mean	Standard deviation	p value
Respiratory system diseases	88.8	12.5	0.480
Congenital malformations, deformations, and chromosomal abnormalities	90.6	11.1
Neoplasms	92.5	7.6
Diseases of the circulatory system	94.9	4.3
Diseases of the nervous system	91.1	12.0
Endocrine, nutritional, and metabolic diseases	92.4	12.2
Disease of the digestive system	90.5	10.6
Diseases of the genitourinary system	87.6	16.5
Mental and behavioral disorders	82.3	21.1
Disease of blood and blood-forming organs, and some immune disorders	80.0	28.3

[1] Corresponding author: Caroline Cechinel-Peiter, E-mail: carolcechinel@gmail.com

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Calidad de la transición del cuidado de niños y adolescentes considerando la presencia de enfermedad crónica

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