WHOQoL-Bref(55. Gaudenci EM, Nardelli GG, Almeida Neto OP, Malaquias BSS, Carvalho BT, Pedrosa LAK. Qualidade de Vida, Sintomas Depressivos e Incapacidade Física de Pacientes com Hanseníase. Hansen Int 2015;40(2):48-58.–77. Santos VS, Oliveira LS, Castro FD, Gois-Santos VT, Lemos LM, Ribeiro Mdo C, et al. Functional Activity Limitation and Quality of Life of Leprosy Cases in an Endemic Area in Northeastern Brazil. PLoS Negl Trop Dis. 2015;9(7):e0003900.,1515. Tsutsumi A, Izutsu T, Islam AM, Maksuda AN, Kato H, Wakai S. The quality of life, mental health, and perceived stigma of leprosy patients in Bangladesh. Soc Sci Med. 2007;64(12):2443-53.–2222. Savassi LCM, Bogutchi TR, Pinheiro A, Oliveira S, Modena CM. A influência da internação compulsória em Hospitais-colônia na qualidade de vida de cuidadores e pacientes com sequelas de hanseníase. Hansen Int. 2009;34(2):21-31.,2424. José A, Soares CLR, Marchiori M, Lanza FC, Dal Corso S, Malaguti C. The glittre-ADL test can be used to assess the functional performance in patients with leprosy: A controlled transversal study. Edorium J Disabil Rehabil. 2016;20(3):223-30.–2626. Barakat M, Zaki H. Relationship between Psychological Problems and Quality of Life among Leprosy Patients. Evidence-Based Nursing Research. 2019;1(2):15.,3434. Umoh KA, Effiong JH. Quality of life of persons newly diagnosed with leprosy in Akwa Ibom state. Int J Health Sci Res. 2015;5(6):512-7.,3535. Albinism. International Neuropsychiatric Disease Journal. 2016;6(4):1-6.,3636. Manna N, Chakraborty A, Sarkar S, Sarkar M, Pradhan U. Higher educational status, staying in joint family and early treatment initiation improves Quality of Life in leprosy: experiences from and observational study at a tertiary centre in Eastern Índia. Global Journal of Medicine and Public Health. 2015;4(2):1-7.,3737. Mankar MJ, Joshi SM, Velankar DH, Mhatre RK, Nalgundwar AN. A comparative study of the quality of life, knowledge, attitude and belief about leprosy disease among leprosy patients and community members in Shantivan Leprosy Rehabilitation centre, Nere, Maharashtra, India. J Global Infect Dis. 2011;3(4):378-82.,3838. Kumar DG, John KR, Logaraj M. An assessment of quality of life among leprosy affected persons residing in leprosy settlements of Chengalpet Taluk, Kancheepuram, Tamil Nadu. Natl J Res Community Med. 2016;5(3):149-54.,3939. Govindharaj P, Srinivasan S, Darlong J. Quality of Life of People Affected with Leprosy Disability Living in Purulia. West Bengal Int J Health Sci Res. 2018;8(2):221-5.,4040. Brouwers C, van Brakel WH, Cornielje H, Pokhrel P, Dhakal KP, Banstola N. Quality of Life, perceived stigma, activity and participation of people with leprosyrelated disabilities in South-East Nepal. Disability, CBR and Inclusive Development. 2011;22(1):16-34.,4141. Chingu D, Duncan M, Amosun S. The quality of life of people with leprosy-related residual impairment and disability in Malawi – Is there a difference between people living in a leprosarium and those re-integrated into their communities? Lepr Ver. 2013;84(4):292-301.,4242. Simões S, Castro S, Scatena L, Castro R, Lau F. Qualidade de vida dos portadores de hanseníase num município de médio porte. Medicina (Ribeirao Preto Online). 2016;49(1):60-7.,4343. Leite SCC, Caldeira AP. Oficinas terapêuticas para a reabilitação psíquica de pacientes institucionalizados em decorrência da hanseníase. Ciênc saúde coletiva. 2015;20(6):1835-42.,4444. Quaggio CMP, Virmond MCL, Guimarães HCQCP. Qualidade de vida da pessoa tratada da hanseníase. Hansen Int. 2014;39(2):36-46.,4545. Leite IF, Arruda AJCG, Vasconcelos DIB, Santana SC, Chianca KSV. The quality of life of patients with chronic leprosy. Journal of Nursing UFPE on line. 2015;9(6):8165-71.,4646. Geetha K, Dhanalakshmi A, Judie A. A study to assess the impact of leprosy on quality of life among leprosy patients in government rehabilitation home at Paranur. International Journal of Pharmaceutical and Clinical Research. 2015;7(6):466-8.,4747. Ravi HN, George R, Eapen EP, Pulimood SA, Gnanamuthu C, Jacob M, et al. A Comparison of Economic Aspects of Hospitalization Versus Ambulatory Care in the Management of Neuritis Occurring in Lepra Reaction. International Journal of Leprosy and Other Mycobacterial Diseases. 2004;72(4):448-56.,4848. Maranhão-Ferreira-Silva P, Esteves-Pereira L, Lima-Ribeiro L, Moura-dos-Santos D, Delmondes-do-Nascimento R, Steremberg-Pires-D’Azevedo S. Evaluation of the physical limitations, psychosocial aspects and quality of life of people affected by leprosy. Revista de Pesquisa: Cuidado é Fundamental Online. 2019;11(1):211-5.,4949. Lima SM, Brito KKG, Santana EMF, Nóbrega MM, Carvalho PS, Oliveira SHS, et al. Qualidade de vida de pacientes com reações hansênicas. Cogitare enferm. 2019;24:e62921. DOI: http://dx.doi.org/10.5380/ce.v24i0.62921. http://dx.doi.org/10.5380/ce.v24i0.62921...
,5050. Govindharaj P, Srinivasan S, Darlong J. Quality of Life of Persons Affected by Leprosy in an Endemic District, West Bengal, India. Indian J Dermatol. 2018;63(6):459-64.,5151. Sousa EJS, Sousa GC, Baia VF, Somensi DN, Xavier MB. Botulinum toxin type A in chronic neuropathic pain in refractory leprosy. Arq Neuro-Psiquiatr. 2019;77(5):346-51.,5252. D’Azevedo SSP, Santos DCM, Alves MGT, Sousa NMN, Arruda GA, Lima MCV. Qualidade de vida de pessoas afetadas pela hanseníase inseridas em grupos de apoio ao autocuidado. Cogitare Enfermagem. 2019;(24):e64266.,5353. Mohta A, Agrawal A, Sharma P, Singh A, Garg S, Kushwaha RK, et al. Endocrinological testicular dysfunction in patients with lepromatous leprosy and the impact of disease on patient’s quality of life. Indian Dermatol Online J. 2020;11(6):959-64.,5454. Utama APW, Hastuti P, Rustam MZA. The Relationship of Degree of Disability and Quality of Life Among Released From Treatment People Affected by Leprosy in Surabaya, Indonesia. Indian J Lepr. 2020;(92):97-107.,5555. Mahanani S, Whant TK. Family Support Improving Quality Of Life Leprosy Patients. Pelita Health and Education Journal. 2020;1(2):34-7.) |
Physical; Psychological; Social relationships; Environment |
37 |
50,0 |
SF-36(22. Lustosa AA, Nogueira LT, Pedrosa JIS, Teles JBM, Campelo V. The impact of leprosy on health-related quality of life. Rev Soc Bras Med Trop [Internet]. 2011 [cited 2021 Mar 12];44(5):621-6. Available from: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0037-86822011000500019&lng=en. http://www.scielo.br/scielo.php?script=s...
,1010. Araújo DAL, Brito KKG, Santana EMF, Soares VL, Soares MJGO. Caracterização da qualidade de vida de pessoas com hanseníase em tratamento ambulatorial. Rev Pesqui Cuid. Fundam. 2016;8(4):5010-6.,5656. Diaz AF, Moro FL, Binotto JM, Fréz AR. Estudo comparativo preliminar entre os alongamentos proprioceptivo e estático passivo em pacientes com sequelas de hanseníase. Fisioterapia e Pesquisa. 2008;15(4):339-44.,5757. Amorim AAS, Pereira ISSD, Silva Júnior EG. Análise da qualidade de vida de pacientes acometidos por hanseníase. Journal of Infection Control. 2016;5(4):1-12.,5858. Gonçalves M, Barros ARSB, Mazzer N, Elui VMC, Fonseca MCRF. Prevenção de incapacidade na hanseníase com apoio em um manual de autocuidado para pacientes. Fisioterapia e Pesquisa. 2010;17(2):157-66.,5959. Lopes Neto D, Araújo RO, Meneghini MEF, Tsuzuki LM. Avaliação da qualidade de vida em pacientes com hanseníase: uso do Medical Outcomes Study 36. Rev Bras Pesq Saúde. 2015;17(1):6-10.,6060. Lambert SM, Alembo DT, Nigusse SD, Yamuah LK, Walker SL, Lockwood DN. A randomized controlled double blind trial of ciclosporin versus prednisolone in the management of leprosy patients with new type 1 reaction, in Ethiopia. PLoS Negl Trop Dis. 2016;10(4):1-29.,6161. Sales AM, Illarramendi X, Walker SL, Lockwood D, Sarno EN, Nery JAC. The impact of erythema nodosum leprosum on health related quality of life in Rio de Janeiro. Lepr Rev. 2017;88:499-509.,6262. Bower B, Butlin C, Alam K, Lockwood D, Walker S. Health-Related Quality of Life amongst people affected by Erythema Nodosum Leprosum in Bangladesh: a Cross Sectional Study. Lepr Rev. 2017;88:488-98.,6363. Borges-de-Oliveira R, Rocha-Leite CI, Araujo-de-Freitas L, Queiroz DA, Machado PR, Quarantini LC. Perception of social exclusion, neuropathy, and quality of life among Hansen’s disease patients. Int J Psychiatry Med. 2015;49(3):176-86.,6464. Do Prado GD, Ruiz Prado RB, Camargo Marciano LHS, Tonelli Nardi SM, Cordeiro JA, Monteiro HL. WHO disability grade does not influence physical activity in Brazilian leprosy patients. Lepr Rev. 2011;82(3):270-8.,6565. Sousa NP, Silva MIB, Lobo CG, Barboza MCC, Abdon APV. Análise da qualidade de vida em pacientes com incapacidades funcionais decorrentes de hanseníase. Hansenologia Internacionalis. 2011;36(1):11-6.,6666. Darlong J, Govindharaj P, Mahato B, Lockwood DN, Walker SL. Health-related quality of life associated with erythema nodosum leprosum in Purulia, West Bengal, India. Lepr Rev. 2020;(91):100-7.,6767. Lima JMPF, Batista DM, Riberio Neto CD, Carvalhal MFN. Avaliação da qualidade de vida de pacientes hansênicos: uma abordagem quantitativa. Rev Neuro Psiq. 2019;23(1):14-26.) |
Functional capacity; Physical aspects; Pain; General health status; Mental health; Emotional aspects; Social aspects; Vitality |
14 |
18,9 |
DLQI(88. Martins BDL, Torres FN, Oliveira MLWDR. Impacto na qualidade de vida em pacientes com hanseníase: correlação do Dermatology Life Quality Index com diversas variáveis relacionadas à doença. An Bras Dermatol. 2008;83(1):39-43.,6868. Budel AR, Raymundo AR, Costa CF, Gerhardt C, Pedri LE. Perfil dos pacientes acometidos pela hanseníase atendidos no Ambulatório de Dermatologia do Hospital Evangélico de Curitiba. An Bras Dermatol. 2011;86(5):942-46. 6969. Hunt WTN, Hùng NT, Tru’ò’ng NN, Nikolaou V, Duy Đăng Khoa N, Hô‘ng Ly T. A case-control study comparing the Dermatology Life Quality Index (DLQI) ratings of patients undergoing leprosy treatment, people cured of leprosy, and controls in Vietnam. Lepr Rev. 2018;89:46-55.,7070. Proto PS, Machado Filho CDS, Rehder JRCL, Paixão MP, Angelucci RI. Qualidade de vida em hanseníase: análise comparativa entre pacientes da região Amazônica com pacientes da região do ABC, São Paulo, Brasil. An Bras Dermatol. 2010;85(6):939-41.,7171. An JG, Ma JH, Xiao SX, Xiao SB, Yang F. Quality of life in patients with lepromatous leprosy in China. J Eur Acad Dermatol Venereol. 2010;24(7):827-32.,7272. Castro RNC, Veloso TC, Filho LJSM, Coelho LC, Pinto LB, Castro AMNC. Avaliação do grau de incapacidade física de pacientes com hanseníase submetidos ao Dermatology Quality Life Index em centro de referência e unidades básicas de saúde de São Luis, MA. Rev Bras Clin Med. 2009;7:390-2.,7373. Yap F, Kiung S, Yap J. Quality of life in patients with erythema nodosum leprosum in Kuala Lumpur, Malaysia. Indian Dermatology Online Journal. 2016;7(4):255.,7474. Fortunato CN, Silva ACO, Mendes MS, Silva Júnior SV, Silva AB, Freire MEM. Calidad de vida de las personas con enfermedad de Hansen asistidas en un hospital de referencia, Paraíba-Brasil. Enferm glob. 2019;18(56):119-58.,7575. Singhal AK, De A, Reja AHH, Aggarwal I, Sharma N, Ansari A, et al. The Impact of Fixed Duration Multidrug Therapy on the Host and the Agent: A Pilot Study Using Clinical, Bacteriological, and Quality of Life Assessment Tools. Indian J Dermatol. 2018;63(6):524-6.,7676. Das NK, De A, Naskar B, Sil A, Das S, Sarda A, et al. A Quality of Life Study of Patients with Leprosy Attending the Dermatology OPD of a Tertiary Care Center of Eastern India. Indian J Dermatol. 2020;65(1):42-6.,7777. Solanki AD, Barot JP, Patel JH, Patel NM, Patel D, Nagrani N, et al. Measurement of Quality of Life in patients of Leprosy attending Outdoor Patient Department at Tertiary Care Center of Ahmedabad: A Cross Sectional Study. Indian J Lepr. 2020;(92):139-45.) |
Symptoms and feelings; Daily activities; Leisure activities and sports practices; Work and school; Interpersonal relationships; Treatment |
11 |
14,9 |
WHOQoL-100(3333. Joseph GA, Rao PSSS. Impact of leprosy on the quality of life. Bulletin of the World Health Organization. 1999;77(6):515-7.,4747. Ravi HN, George R, Eapen EP, Pulimood SA, Gnanamuthu C, Jacob M, et al. A Comparison of Economic Aspects of Hospitalization Versus Ambulatory Care in the Management of Neuritis Occurring in Lepra Reaction. International Journal of Leprosy and Other Mycobacterial Diseases. 2004;72(4):448-56.) |
Physical; Psychological; Level of independence; Social relationships; Environment; Spirituality/Personal Beliefs |
2 |
2,7 |
DLQI and SF-36(7878. Bottene IMC, Reis VMS. Quality of life of patients with paucibacillary leprosy. An Bras Dermatol. 2012;87(3):408-11.–7979. Guimenes Albuquerque R, Grüdtner Buratto G, Hirotsu C, Maeda SM, Floriano MC, Andersen ML, et al. Comparison of quality of life evaluated by SF-36 and DLQI in multibacillary and paucibacillary leprosy patients from Sao Paulo, Brazil. Int J Dermatol. 2019;58(12):1415-22.) |
Functional capacity; Physical aspects; Pain; General health status; Mental health; Emotional aspects; Social aspects; Vitality |
2 |
2,7 |
PedsQL 4.0(8080. Neder L, Weelden M, Viola GR, Lourenço DM, Len CA, Silva CA. Qualidade de vida relacionada à saúde avaliada pelo Inventário Pediátrico de Qualidade de Vida 4.0 em pacientes pediátricos com hanseníase e manifestações musculoesqueléticas. Adv Rheumatol. 2015;55(5):414-9.) |
Physical; Emotional; Social; Educational |
1 |
1,4 |
NeuroQol(8181. Benedicto CB, Marques TT, Milanp AP, Galan NGA, Nardi ST, Duerksen F, et al. Avaliação da qualidade de vida, grau de incapacidade e do desenho da figura humana em pacientes com neuropatias na hanseníase. Acta Fisiátrica. 2017;24(3):120-6.) |
Pain, Loss/Reduced sensitivity, Diffuse sensory-motor symptoms, Limitations of activities in daily life, Disorder in social relationships and distress Emotional |
1 |
1,4 |
CDLQI(8282. Loiola HAB, Aquino DMC, Cardoso LSP, Paiva MFL, Coutinho NPS, Dias RS. Perfil epidemiológico, clínico e qualidade de vida de crianças com hanseníase em um município hiperendêmico. Revista Enfermagem UERJ. 2018;(26):e32251. DOI: https://doi.org/10.12957/reuerj.2018.32251. https://doi.org/10.12957/reuerj.2018.322...
) |
Symptoms and feelings; Leisure; School or vacation; Personal relationships; Sleep and treatment |
1 |
1,4 |
W-QLI(8383. Palo SK, Swain S, Roul S, Priyadarshini S, Pati S. Improvement in quality of life after reconstructive surgery among leprosy affected persons – a preoperative and postoperative comparison in Mayurbhanj District of Odisha, India. Indian J Lepr. 2019;91:303-13.) |
Level of satisfaction; Psychological well-being; Mental symptoms; Physical health; Finances; Activities of daily living |
1 |
1,4 |
RAND-36(8484. Wan EL, Noboa J, Baltodano PA, Jousin RM, Ericson WB, Wilton JP. Nerve decompression for leprous neuropathy: A prospective study from Ecuador. Lepr Rev 2017;88:95-108.) |
Functional capacity; Physical aspects; Pain; General health status; Mental health; Emotional aspects; Social aspects; Vitality |
1 |
1,4 |
SF-20(8585. Bello AI, Denfzee SA, Iyor F. Health related quality of life amongst people affected by leprosy in South Ghana: A needs assessment. Lepr Rev. 2013;84:(1)76-84.) |
Physical ability; Limitation due to illness; Mental health; Health perception; Social aspects; Pain |
1 |
1,4 |
Standardized instrument(8686. Garbin CAS, Garbin AJI, Carloni MEOG, Rovida TAS, Martins RJ. The stigma and prejudice of leprosy: influence on the human condition. Rev Soc Bras Med Trop. 2015;48(2):194-201.) |
Does not specify |
1 |
1,4 |
Not mentioned(8787. Eyanoer PC. Social acceptance and quality of life of leprosy patient. IOP Conf. Series: Earth and Environmental Science. 2018;125:012100. DOI: https://doi.org/10.1088/1755-1315/125/1/012100. https://doi.org/10.1088/1755-1315/125/1/...
) |
– |
1 |
1,4 |
Total
|
|
74
|
100
|