Transitions experienced by mothers of children/adolescents with sickle cell disease in the context of the COVID-19 pandemic

Transiciones vividas por madres de niños/adolescentes con enfermedad de células falciformes en el contexto de la pandemia de COVID-19

ABSTRACT

Objective:

To analyze the transitions experienced by mothers and children/adolescents with sickle cell disease after the emergence of the COVID-19 pandemic.

Method:

A qualitative study involving 19 mothers of children and adolescents with sickle cell disease. Data were obtained through semi-structured interviews via WhatsApp, followed by Thematic Analysis and Descending Hierarchical Classification with the help of Interface de R pour les Analyses Multidimensionnelles de Texteset de Questionnaires and interpreted in the light of Afaf Meleis' Transition Theory.

Results:

Support from family members for displacement; mothers' adherence to the routine of daily stimuli and physical exercises favored healthy transitions; lack of remote health care; low socioeconomic resources; interruption of the physiotherapy service; and maternal overload favor unhealthy transitions.

Final considerations:

Efforts/movements by mothers ensure the healthy transition of children/adolescents with sickle disease during the pandemic, while supporting their unhealthy transition.

Keywords:
COVID-19. Chronic disease. Anemia; sickle cell. Nursing. Family