Cultural adaptation and assessment of the reliability of the Special Needs Kids Questionnaire for the Brazilian context

Ferreira, Larissa Tassim Luciano; Parra, Patrícia Casale; Okido, Aline Cristiane Cavicchioli

doi:10.1590/1983-1447.2021.20200488

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Sumário

Original Article • Rev. Gaúcha Enferm. 42 • 2021 • https://doi.org/10.1590/1983-1447.2021.20200488 copy

Cultural adaptation and assessment of the reliability of the Special Needs Kids Questionnaire for the Brazilian context

Adaptación cultural y evaluación de la fidedignidad del Cuestionario Infantil de Necesidades Especiales para el contexto brasileño

Authorship SCIMAGO INSTITUTIONS RANKINGS

ABSTRACT

Objective

To carry out the cultural adaptation of the Special Needs Kids Questionnaire into Brazilian Portuguese and assess its reliability.

Methods

Methodological study conducted between September 2019 and June 2020 from the stages of translation, back-translation, content validation, semantic validation and pilot test. Content Validation Index, Cronbach's Alpha Coefficient and Intraclass Correlation Coefficient were calculated.

Results

After the second round, the adapted version had a Content Validation Index greater than 0.80 in all items and was considered understandable by the mothers. The pilot test included 89 mothers of children born prematurely from the Neonatal Intensive Care Unit in the test and 44 in the retest. All items had Cronbach's Alpha greater than 0.70. Of the 20 items, 15 showed moderate reliability, three high and two weak.

Conclusion

The instrument proved to be reliable and has the potential to identify the fragmentation and discontinuity of the care received.

Keywords
Infant newborn; Continuity of patient care; Validation study; Child; Pediatric nursing

Variables	n (%)
Education
Secondary school	20 (22.47)
Higher education	69 (77.53)
Place of origin
Southern Region of Brazil	21 (23.60)
Southeast Region of Brazil	49 (55.06)
Central-West Region of Brazil	5 (5.62)
Northeast Region of Brazil	10 (11.24)
Northern Region of Brazil	2 (2.25)
Outside Brazil/Abroad	2 (2.25)
Occupation
Household tasks	13 (14.61)
Informal work	3 (3.37)
Formal work	45 (50.56)
Self-employed	19 (21.35)
Unemployed	9 (10.11)
Marital status
With a partner	80 (89.89)
Without a partner	9 (10.11)
Other children
Yes	33 (37.08)
No	56 (62.92)
Health insurance plan
Yes	49 (55.06)
Health insurance plan + SUS	24 (26.97)
No	16 (17.98)

Variables	Mean	Standard deviation	Minimum	Median	Maximum
Current age (years)	1.48	1.74	0.00	1.00	8.00
Gestational age at birth (weeks)	30.43	2.78	23.00	30.00	35.00
Birth weight (grams)	1363.7	535.26	415.00	1330.00	2550.00
Length of stay (days)	51	40	3	42	180
Number of readmissions	0.51	1.26	0.00	0.00	10.00

Factor	Number of items	Cronbach’s α
Factor 1	7	0.748
Factor 2	4	0.790
Factor 3	3	0.789
Factor 4	4	0.803
Factor 5	2	0.854

SpeNK-Q items	ICC (IC 95%)
About the doctor who takes care of your child
1. The doctor knows my child’s health history.	0.687 (0.491;0.816)
2. The doctor accepts my opinion regarding my child's health.	0.658 (0.450;0.798)
3. I feel comfortable talking to the doctor about any problems related to my child’s health.	0.647 (0.437;0.791)
About the health professional who takes care of all or almost all of the child's health problems
4. This health professional knows all of my child's health problems.	0.680 (0.481;0.812)
5. This health professional is always informed about the care provided by other healthcare professionals.	0.800 (0.662;0.885)
6. This health professional talks with other health professionals to learn about the care received by my child.	0.555 (0.316;0.729)
7. This health professional makes contact with me when my child is cared for by other health professionals.	0.688 (0.465;0.817)
About all health professionals involved in the care provided to the child in the last few months after discharge
8. The health professionals who took care of my (my) child told me different things about the health of my child.	0.408 (0.125;0.628)
9. Someone explained to me the possible complications of my child's medical condition regarding his/her health status.	0.217 (-0.073;0.476)
10. Someone explained to me what treatments and tests were being performed on my (my) child and why.	0.502 (0.241;0.694)
11. Someone guided me about the exams, consultations and evaluations of my child.	0.588 (0.354;0.752)
12. The health professional who made the home visits to my child did not know his/her health history.	0.308 (-1.583;0.934)
13. The health professional who made the home visits to my child did not have access to information from the last assessment, visit or examination.	0.500 (-0.709;0.983)
14. I had to provide again information that I had already given about the health of my (my) child, which should have been included in the medical record.	0.769 (0.613;0.867)
15. I had to report the results of an appointment with a specialist to the health professional who was making a home visit to my child.	0.893 (0.210;0.993)
16. The health professionals who took care of my child gave all the guidance I needed to take care of him (her) at home.	0.719 (0.538;0.837)
17. The health professionals who took care of my child gave me all the guidance I needed to face minor problems or complications.	0.490 (0.235;0.684)
18. I had the impression that the health professionals who took care of my child knew him/her well.	0.592 (0.364;0.753)
19. When my child's health changed or worsened, I got answers or directions immediately.	0.543 (0.294;0.752)
20. The care offered to my child by the health system made me feel helpless.	0.673 (0.475;0.807)

Universidade Federal do Rio Grande do Sul. Escola de Enfermagem Rua São Manoel, 963 -Campus da Saúde , 90.620-110 - Porto Alegre - RS - Brasil, Fone: (55 51) 3308-5242 / Fax: (55 51) 3308-5436 - Porto Alegre - RS - Brazil
E-mail: revista@enf.ufrgs.br

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[1] Corresponding author
Aline Cristiane Cavicchioli Okido E-mail: alineokido@ufscar.br