Participatory research under the logic of care: Shared analysis in a CAPS AD

Resumos

This research explores the experiences of illness from the point of view of users of a CAPS AD III. Based on a qualitative design, the study comprised two stages: in the first, a Narrative Interview of Illness McGill-MINI, a semi-structured interview protocol, was carried out with the participants; in the second, the participants took part in the validation process, analysis of results and elaboration of the thematic framework. The results reveal narratives crossed by psychic helplessness, family abandonment, losses, and lack of credibility — the effect of an excluding process in which the drug overrides the subject. Participatory research under the logic of care (Tangvald-Pedersen & Bongaardt, 2016) enabled a reflective dialogue on the experience of illness, bringing together researchers and participants as different storytellers, allowing the weaving of the phenomenon to enrich their mutual understanding.

Key words:
Participatory research; CAPS AD; McGill-mini narrative; first person