Chiu et al.88. Chiu M, Peinhof S, De Guzman C, Borhani M, Siu C, Kuzeljevic B, et al. Seizure action plans in the pediatric population with epilepsy: uptake, determinants, and parental interest in a mobile application. Epilepsy Behav. 2021;117:107860. https://doi.org/10.1016/j.yebeh.2021.107860
https://doi.org/10.1016/j.yebeh.2021.107...
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Cross-sectional observational (Canada) |
192 participants: average age 10.4 years. |
This study aimed to determine the percentage of pediatric patients with epilepsy who have individualized action plans, identify predictive variables, and assess parental interest in a mobile application with SAP guidelines. |
The study showed that 15% of parents use mobile apps to manage their children’s epilepsy, with the most commonly used features being seizure trackers and medication reminders, and that 83% of participants are interested in an app that presents an individualized action plan for seizures. |
Choi et al.99. Choi SA, Lim K, Baek H, Yoo S, Cho A, Kim H, et al. Impact of mobile health application on data collection and self-management of epilepsy. Epilepsy Behav. 2021;119:107982. https://doi.org/10.1016/j.yebeh.2021.107982
https://doi.org/10.1016/j.yebeh.2021.107...
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Longitudinal observational (South Korea) |
99 participants:
18 patients aged 15 years or over and 81 caregivers. |
Brain4U mobile application, which includes a seizure diary, medication reminders, comorbidity self-screening tools, and an individualized dashboard for epilepsy patients. |
The app provided accurate information on the timing and type of seizures but had variations in user adherence and some inconsistencies in clinical data. Caregivers and patients reported that educational content and medication reminders were the most useful features. |
Davies et al.1010. Davies EH, Fieggen K, Wilmshurst J, Anyanwu O, Burman RJ, Komarzynski S. Demonstrating the feasibility of digital health to support pediatric patients in South Africa. Epilepsia Open. 2021;6:653-62. https://doi.org/10.1002/epi4.12527
https://doi.org/10.1002/epi4.12527...
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Observational (South Africa) |
39 participants: average age 10 years (4–6 years) |
Smartphone application (Aparito app) and pulse device connected via Bluetooth. |
The app can capture important information such as medication adherence data and clinical events. Crisis management becomes more effective. |
Dozières-Puyravel et al.1111. Dozières-Puyravel B, Danse M, Goujon E, Höhn S, Auvin S. Views of adolescents and their parents on mobile apps for epilepsy self-management. Epilepsy Behav. 2020;106:107039. https://doi.org/10.1016/j.yebeh.2020.107039
https://doi.org/10.1016/j.yebeh.2020.107...
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Cross-sectional observational (France) |
36 participants:
17 adolescents aged 10–18 years and 19 parents or caregivers. |
A questionnaire for teenagers to understand their interests and the type of content they would like to see in an epilepsy self-management app. |
Most parents and adolescents were interested in an epilepsy self-management app. A lack of knowledge about existing apps was observed and it is believed that the use of these tools could promote greater dissemination of knowledge about epilepsy. |
LaGrant et al.1212. LaGrant B, Goldenholz DM, Braun M, Moss RE, Grinspan ZM. Patterns of recording epileptic spasms in an electronic seizure diary compared with video-eeg and historical cohorts. Pediatr Neurol. 2021;122:27-34. https://doi.org/10.1016/j.pediatrneurol.2021.04.008
https://doi.org/10.1016/j.pediatrneurol....
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Observational (the United States) |
314 pediatric participants with average onset of symptoms of 2.8. |
Electronic seizure diary that allows the entry of demographic information and recording of seizures via mobile devices, wearable devices, or Amazon Alexa. |
The study evaluated spasm patterns in epileptic children using an electronic diary available on mobile devices and observed individual differences between users of the electronic diary in terms of the frequency of reports. |
Le Marne et al.1313. Le Marne FA, Butler S, Beavis E, Gill D, Bye AM. EpApp: development and evaluation of a smartphone/tablet app for adolescents with epilepsy. J Clin Neurosci. 2018;50:214-20. https://doi.org/10.1016/j.jocn.2018.01.065
https://doi.org/10.1016/j.jocn.2018.01.0...
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Observational (Australia) |
51 participants: average age 14.49 years. |
The EpApp application for epilepsy management. It uses medication reminders, a seizure diary, and personalized statistics. |
During the study, there was a significant improvement in general knowledge about epilepsy, but not in attitudes or self-efficacy related to the disease. Adolescents and parents considered medication reminders to be the most useful resource. |
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