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Public health programs for hereditary hemoglobinopathies in high school students in Brazil

This study tested the viability and efficiency of a hereditary hemoglobinopathy program in which a Brazilian community the town of Bragança Paulista, SP (Brazil) - was involved, were tested focusing school students.The screening of the hemoglobinopathies was done through optional exams for patients by using electrophoresis of hemoglobins and complementary hematological tests. A total of 1,171 individuals, including, 1,118 pupils and 53 of their relatives were tested over a period of 24 months. A total of 47 individuals with hereditary hemoglobin changes were detected - 4.0% of the samples examined. The community was fairly receptive to the program which showed a general level of acceptance of 55.4%. The study aroused the interest of the community and motivated the implantation of a special service for diagnosis, genetic counseling and treatment of the hemoglobinopathy carriers in the community where it was undertaken.

Thalassemia; Hemoglobin SC disease; Hemoglobin S disease; Program evaluation


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