Analyze the governmental agenda on HTLV prevention and control in the states of Bahia and Minas Gerais |
To find the scenarios, motivations, and main actors to prioritize HTLV in governmental political agendas |
I. HTLV - history |
1. HTLV Discovery |
First studies on HTLV Inclusion of HTLV in Ordinance No. 1,376/1993 |
2. Research, teaching, and assistance institutions: a) HTLV Multidisciplinary Center (Bahia); b) HTLV/UFBA Outpatient Clinic; c) Hemominas Foundation (Minas Gerais) |
History; access; strategies to maintain care; findings/search results |
3. Clinical and epidemiological aspects |
Confusion between HIV and HTLV; transmission routes; clinical manifestation in adults and children; prevalence; unreported/underreported disease; non-inclusion of HTLV in the list of neglected or rare diseases; stigma/prejudice; delivery guidance for positive women; need for prevention |
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To identify the factors favoring or hindering the formulation of an agenda and implementing actions to prevent and control HTLV in these states |
II. Ignorance of infection |
4. Neglected, invisible, ignored disease |
By healthcare providers; the population; and managers |
III. Actions developed by the State |
5. Policies for people living with HTLV |
Lack of direction from the Ministry of Health; pressure/factors to include the subject in governmental agendas; political interest/disinterest; justification for the development of actions |
Describe norms, strategies, and actions which have been implemented to prevent and control infections |
6. Care network: (a) research institutions; (b) Municipal Health Department; (c) State Department of Health; and (d) others |
Existing services/network organization; actions/strategies/planning; financing/resources for actions; partnerships between different sectors and agencies; multidisciplinary work; comprehensive service; testing pregnant women; testing other groups; non-breastfeeding guidance and infant formula supply; follow-up of a child of positive mothers; calling relatives of positive patients; difficulties (confirmatory examinations, underreporting) |
Describe norms, strategies, and actions which have been implemented to prevent and control infections |
IV. Dissemination of the theme |
7. Training |
Training professionals to assist and structure services |
8. Health education |
Educational actions for the population (campaigns, spread of educational material); dissemination strategies (including HTLV as an STI, presenting HTLV in events, disseminating it in the media) |
To identify the factors favoring or hindering the formulation of an agenda and implementing actions to prevent and control HTLV in these states |
V - Social movements |
9. Social Mobilization |
Importance of social mobilization to disseminate the theme; participation of the social movements in including HLTV in governmental agendas; inclusion of HTLV in discussion forums; lack of mobilization negatively impacting the implementation of actions |
To find the scenarios, motivations, and main actors to prioritize HTLV in the political agenda of governments |
10. HTLVIDA NGO |
NGO structuring; developed activities/actions; search for partnerships; recognition of the NGO work by other institutions |