Development of the short version of the informal caregiver burden
               assessment questionnaire

Martins, Teresa; Peixoto, Maria José; Araújo, Fátima; Rodrigues, Marta; Pires, Fátima

doi:10.1590/S0080-623420150000200008

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Sumário

Original Article • Rev. esc. enferm. USP 49 (02) • Mar-Apr 2015 • https://doi.org/10.1590/S0080-623420150000200008 copy

Development of the short version of the informal caregiver burden assessment questionnaire

Desarrollo De Una Versión Reducida Del Cuestionario De Evaluación De La Sobrecarga Del Cuidador Informal

Authorship SCIMAGO INSTITUTIONS RANKINGS

OBJETIVE

to create a reduced version of the QASCI, which is structurally equivalent to the long one and meets the criteria of reliability and validity.

METHOD

Through secondary data from previous studies, the participants were divided into two samples, one for the development of reduced version and the second for study of the factorial validity. Participants responded to QASCI, the SF 36, the ADHS and demographic questions.

RESULTS

A reduced version of 14 items showed adequate psychometric properties of validity and internal consistency, adapted to a heptadimensional structure that assesses positive and negative aspects of care.

CONCLUSION

Confirmatory factor analysis revealed a good fit with the advocated theoretical model.

Caregivers; Family; Validation Studies; Psychometrics

	Components
	1	2	3	4	5	6	7
1-Desire to flee from the situation	0.50	0.31	0.11	0.13	0.30	0.10	0.06
2-Psychologically difficult	0.70	0.22	0.18	0.03	0.06	-0.02	-0.09
3-Feeling tired and exhausted	0.77	0.16	0.03	-0.01	0.14	0.09	0.13
4-Self conflict^* * item without discrimination power	0.40	0.48	0.20	0.08	0.27	0.05	0.02
5-Deterioration in health	0.65	0.11	0.25	0.01	0.24	0.19	0.07
6-Care has required a physical effort	0.69	0.08	0.22	-0.15	0.01	0.20	-0.00
7-Loss of control^* * item without discrimination power	0.48	0.13	0.41	-0.03	0.22	0.27	0.05
8-Altered plans	0.39	0.11	0.64	0.01	0.03	0.19	-0.07
9-Not enough time for oneself	0.60	0.11	0.37	0.08	0.03	0.11	-0.04
10-Feeling that life has played a dirty trick	0.35	0.09	0.46	0.26	-0.10	0.27	0.02
11-Difficult to plan for the future	0.38	0.00	0.52	-0.10	-0.06	0.18	0.06
12-Feeling trapped	0.61	0.21	0.33	-0.00	0.07	-0.13	-0.02
13-Avoiding inviting friends	0.11	0.20	0.64	0.02	0.26	0.02	0.07
14-Social life impaired	0.30	0.03	0.73	-0.00	-0.08	-0.05	-0.03
15-Feeling alone and isolated^* * item without discrimination power	0.47	0.17	0.46	0.07	0.14	0.13	0.08
16-Experiencing economic difficulties	0.17	0.10	0.14	-0.03	0.10	0.85	0.08
17-Uncertain economic future	0.19	0.10	0.11	-0.10	0.03	0.84	0.04
18-Feeling offended	0.26	0.73	0.03	0.20	0.09	0.03	0.02
19-Feeling embarrassed	0.20	0.71	0.09	0.20	0.02	0.04	-0.02
20-Excessive requests	0.12	0.68	0.08	-0.07	0.05	0.12	0.02
21-Feeling manipulated	0.12	0.76	0.14	0.07	0.21	0.05	0.02
22-Reduction in privacy^* * item without discrimination power	0.08	0.44	0.44	-0.25	0.31	-0.03	0.04
23-Succeeding in doing the majority of things	0.22	-0.01	0.09	0.05	0.68	0.06	0.10
24-Capacity to go on	0.31	0.12	0.04	0.21	0.70	-0.08	0.17
25-Gaining knowledge or experience	-0.02	0.16	-0.02	-0.07	0.62	0.11	-0.03
26-Recognition by the family	-0.01	-0.03	-0.01	0.12	0.16	-0.01	0.87
27-Support by the family	0.06	0.07	0.05	0.10	0.00	0.13	0.88
28-Feeling well^* * item without discrimination power	0.11	0.24	0.11	0.48	0.47	-0.02	-0.05
29-Relative demonstrates gratitude	0.06	0.20	0.22	0.61	-0.12	-0.16	0.24
30-Recognition of work	-0.04	0.26	0.00	0.64	0.21	0.10	-0.07
31-Feeling closer	-0.06	0.01	-0.16	0.73	0.06	0.08	0.06
32-Increased self-esteem	0.02	-0.09	0.01	0.64	-0.03	-0.19	0.11

	QASCI	QASCI-VR
Emotional Burden	0.77	0.66
Impact on Personal Life	0.80	0.70
Financial Burden	0.82	0.82
Reactions to Demands	0.77	0.67
Perception of Effective Control Mechanisms	0.61	0.67
Family Support	0.77	0.77
Satisfaction with Role and Relative	0.68	0.59

				Correlation
	M	DP	Dimension	QASCI	QASCI-VR
2-Psychologically difficult	3.18	1.32	SE	0.51	0.53
3-Feeling tired and exhausted	3.16	1.24	SE	0.59	0.59
8-Altered plans	3.58	1.50	IVP	0.49	0.56
14-Social life impaired	3.57	1.48	IVP	0.34	0.46
16-Experiencing economic difficulties	2.42	1.45	SF	0.55	0.50
17-Uncertain economic future	2.44	1.50	SF	0.50	0.47
18-Feeling offended	2.31	1.16	RE	0.50	0.49
21-Feeling manipulated	2.07	1.27	RE	0.53	0.50
23-Succeeding in doing the majority of things^* * Inverted items	2.39	1.21	PMEC	0.46	0.47
24-Capacity to go on^* * Inverted items	2.13	1.16	PMEC	0.56	0.54
26- Recognition by the family ^* * Inverted items	2.45	1.54	SupF	0.41	0.41
27- Support by the family^* * Inverted items	2.64	1.52	SupF	0.48	0.46
31- Feeling closer...^* * Inverted items	1.96	1.38	SPF	0.18	0.28
32- Increased self-esteem ^* * Inverted items	2.69	1.53	SPF	0.13	0.25

	SE	IVP	SF	RE	PMEC	SupF	SPF	QASCI
SF 36
FF	-0.22^ p<0.01	-0.22^ p<0.01	-0.24^ p<0.01	-0.07	-0.26^ p<0.01	-0.10^* * p<0.05	-0.10^* * p<0.05	-0.29^ p<0.01
DF	-0.37^ p<0.01	-0.37^ p<0.01	-0.27^ p<0.01	-0.28^ p<0.01	-0.36^ p<0.01	-0.10^* * p<0.05	0.10^* * p<0.05	-0.39^ p<0.01
DE	-0.28^ p<0.01	-0.29^ p<0.01	-0.21^ p<0.01	-0.24^ p<0.01	-0.24^ p<0.01	-0.03	0.09	-0.27^ p<0.01
SG	-0.43^ p<0.01	-0.40^ p<0.01	-0.27^ p<0.01	-0.25^ p<0.01	-0.39^ p<0.01	-0.10^* * p<0.05	-0.10^* * p<0.05	-0.47^ p<0.01
Vita	-0.36^ p<0.01	-0.41^ p<0.01	-0.24^ p<0.01	-0.17^ p<0.01	-0.29^ p<0.01	-0.24^ p<0.01	-0.22^ p<0.01	-0.46^ p<0.01
FS	-0.43^ p<0.01	-0.44^ p<0.01	-0.27^ p<0.01	-0.41^ p<0.01	-0.43^ p<0.01	-0.11^* * p<0.05	0.01	-0.47^ p<0.01
SM	-0.43^ p<0.01	-0.50^ p<0.01	-0.28^ p<0.01	-0.33^ p<0.01	-0.27^ p<0.01	-0.16^ p<0.01	-0.18^ p<0.01	-0.51^ p<0.01
Pain	-0.30^ p<0.01	-0.34^ p<0.01	-0.30^ p<0.01	-0.13^ p<0.01	-0.12^* * p<0.05	-0.06	-0.01	-0.30^ p<0.01
EADH
EA	0.51^ p<0.01	0.49^ p<0.01	0.31^ p<0.01	0.34^ p<0.01	0.31^ p<0.01	0.22^ p<0.01	0.14^* * p<0.05	0.54^ p<0.01
ED	0.48^ p<0.01	0.51^ p<0.01	0.28^ p<0.01	0.26^ p<0.01	0.38^ p<0.01	0.24^ p<0.01	0.22^ p<0.01	0.54^ p<0.01

	SE	IVP	SF	RE	PMEC	SupF	SPF	QASCI-VR
SF 36
FF	-0.23^ p<0.01	-0.04	-0.24^ p<0.01	-0.11^* * p<0.05	-0.21^ p<0.01	-0.10^* * p<0.05	-0.03	-0.25^ p<0.01
DF	-0.36^ p<0.01	-0.25^ p<0.01	-0.27^ p<0.01	-0.21^ p<0.01	-0.30^ p<0.01	-0.10^* * p<0.05	0.14^ p<0.01	-0.35^ p<0.01
DE	-0.28^ p<0.01	-0.23^ p<0.01	-0.21^ p<0.01	-0.19^ p<0.01	-0.17^ p<0.01	-0.03	0.11^* * p<0.05	-0.25^ p<0.01
SG	-0.40^ p<0.01	-0.19^ p<0.01	-0.27^ p<0.01	-0.27^ p<0.01	-0.35^ p<0.01	-0.10^* * p<0.05	-0.01	-0.42^ p<0.01
Vita	-0.38^ p<0.01	-0.24^ p<0.01	-0.24^ p<0.01	-0.19^ p<0.01	-0.31^ p<0.01	-0.24^ p<0.01	-0.17^ p<0.01	-0.47^ p<0.01
FS	-0.34^ p<0.01	-0.35^ p<0.01	-0.27^ p<0.01	-0.34^ p<0.01	-0.37^ p<0.01	-0.11^* * p<0.05	0.10^* * p<0.05	-0.43^ p<0.01
SM	-0.41^ p<0.01	-0.33^ p<0.01	-0.28^ p<0.01	-0.33^ p<0.01	-0.25^ p<0.01	-0.16^ p<0.01	-0.04	-0.47^ p<0.01
Pain	-0.29^ p<0.01	-0.18^ p<0.01	-0.30^ p<0.01	-0.15^ p<0.01	-0.13^ p<0.01	-0.06	0.02	-0.29^ p<0.01
EADH
EA	0.44^ p<0.01	0.33^ p<0.01	0.31^ p<0.01	0.32^ p<0.01	0.35^ p<0.01	0.22^ p<0.01	0.04	0.51^ p<0.01
ED	0.43^ p<0.01	0.30^ p<0.01	0.28^ p<0.01	0.26^ p<0.01	0.42^ p<0.01	0.24^ p<0.01	0.13^* * p<0.05	0.52^ p<0.01

Universidade de São Paulo, Escola de Enfermagem Av. Dr. Enéas de Carvalho Aguiar, 419 , 05403-000 São Paulo - SP/ Brasil, Tel./Fax: (55 11) 3061-7553, - São Paulo - SP - Brazil
E-mail: reeusp@usp.br

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[1] Corresponding author: Teresa Martins. Escola Superior de Enfermagem do Porto, Rua António Bernardino de Almeida, Porto, Portugal. tefenone teresam@esenf.pt

	SE	IVP	SF	RE	PMEC	SupF	SPF	QASCI
SF 36
FF	-0.22^ p<0.01	-0.22^ p<0.01	-0.24^ p<0.01	-0.07	-0.26^ p<0.01	-0.10^* * p<0.05	-0.10^* * p<0.05	-0.29^ p<0.01
DF	-0.37^ p<0.01	-0.37^ p<0.01	-0.27^ p<0.01	-0.28^ p<0.01	-0.36^ p<0.01	-0.10^* * p<0.05	0.10^* * p<0.05	-0.39^ p<0.01
DE	-0.28^ p<0.01	-0.29^ p<0.01	-0.21^ p<0.01	-0.24^ p<0.01	-0.24^ p<0.01	-0.03	0.09	-0.27^ p<0.01
SG	-0.43^ p<0.01	-0.40^ p<0.01	-0.27^ p<0.01	-0.25^ p<0.01	-0.39^ p<0.01	-0.10^* * p<0.05	-0.10^* * p<0.05	-0.47^ p<0.01
Vita	-0.36^ p<0.01	-0.41^ p<0.01	-0.24^ p<0.01	-0.17^ p<0.01	-0.29^ p<0.01	-0.24^ p<0.01	-0.22^ p<0.01	-0.46^ p<0.01
FS	-0.43^ p<0.01	-0.44^ p<0.01	-0.27^ p<0.01	-0.41^ p<0.01	-0.43^ p<0.01	-0.11^* * p<0.05	0.01	-0.47^ p<0.01
SM	-0.43^ p<0.01	-0.50^ p<0.01	-0.28^ p<0.01	-0.33^ p<0.01	-0.27^ p<0.01	-0.16^ p<0.01	-0.18^ p<0.01	-0.51^ p<0.01
Pain	-0.30^ p<0.01	-0.34^ p<0.01	-0.30^ p<0.01	-0.13^ p<0.01	-0.12^* * p<0.05	-0.06	-0.01	-0.30^ p<0.01
EADH
EA	0.51^ p<0.01	0.49^ p<0.01	0.31^ p<0.01	0.34^ p<0.01	0.31^ p<0.01	0.22^ p<0.01	0.14^* * p<0.05	0.54^ p<0.01
ED	0.48^ p<0.01	0.51^ p<0.01	0.28^ p<0.01	0.26^ p<0.01	0.38^ p<0.01	0.24^ p<0.01	0.22^ p<0.01	0.54^ p<0.01

	SE	IVP	SF	RE	PMEC	SupF	SPF	QASCI-VR
SF 36
FF	-0.23^ p<0.01	-0.04	-0.24^ p<0.01	-0.11^* * p<0.05	-0.21^ p<0.01	-0.10^* * p<0.05	-0.03	-0.25^ p<0.01
DF	-0.36^ p<0.01	-0.25^ p<0.01	-0.27^ p<0.01	-0.21^ p<0.01	-0.30^ p<0.01	-0.10^* * p<0.05	0.14^ p<0.01	-0.35^ p<0.01
DE	-0.28^ p<0.01	-0.23^ p<0.01	-0.21^ p<0.01	-0.19^ p<0.01	-0.17^ p<0.01	-0.03	0.11^* * p<0.05	-0.25^ p<0.01
SG	-0.40^ p<0.01	-0.19^ p<0.01	-0.27^ p<0.01	-0.27^ p<0.01	-0.35^ p<0.01	-0.10^* * p<0.05	-0.01	-0.42^ p<0.01
Vita	-0.38^ p<0.01	-0.24^ p<0.01	-0.24^ p<0.01	-0.19^ p<0.01	-0.31^ p<0.01	-0.24^ p<0.01	-0.17^ p<0.01	-0.47^ p<0.01
FS	-0.34^ p<0.01	-0.35^ p<0.01	-0.27^ p<0.01	-0.34^ p<0.01	-0.37^ p<0.01	-0.11^* * p<0.05	0.10^* * p<0.05	-0.43^ p<0.01
SM	-0.41^ p<0.01	-0.33^ p<0.01	-0.28^ p<0.01	-0.33^ p<0.01	-0.25^ p<0.01	-0.16^ p<0.01	-0.04	-0.47^ p<0.01
Pain	-0.29^ p<0.01	-0.18^ p<0.01	-0.30^ p<0.01	-0.15^ p<0.01	-0.13^ p<0.01	-0.06	0.02	-0.29^ p<0.01
EADH
EA	0.44^ p<0.01	0.33^ p<0.01	0.31^ p<0.01	0.32^ p<0.01	0.35^ p<0.01	0.22^ p<0.01	0.04	0.51^ p<0.01
ED	0.43^ p<0.01	0.30^ p<0.01	0.28^ p<0.01	0.26^ p<0.01	0.42^ p<0.01	0.24^ p<0.01	0.13^* * p<0.05	0.52^ p<0.01