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Internalization of care: a qualitative study with schoolchildren living with sickle cell disease

ABSTRACT

Objective

to analyze the internalization of body care by the schoolchildren with sickle cell disease based on Vigotski's development theory and Collière's concept of care.

Method

Qualitative study with 15 schoolchildren living with sickle cell disease, followed in an outpatient clinic in the city of Vitoria - ES. The technique was the individual interview and thematic analysis. Body hydration, playing, prevention and management of the sickle cell crisis, food and clothing were the thematic units that emerged.

Results

Participants reported ingesting various types of liquids. The games were predominantly active. The medications were repair and maintenance of health. It was observed no consumption of healthy foods. The use of clothes suitable for the cold was evidenced. Pain was a sign of the internalization of care and knowledge for games. The decrease in liquids and inadequate clothing triggered the sickle cell crisis.

Final Considerations

The internalization of knowledge and care mediated by pain and the unpreparedness of teachers due to lack of knowledge were highlighted.

Implications for practice

this study can support the best articulation between health professionals, children and school.

Keywords:
Anemia; Sickle Cell; Child; Self Care; Qualitative Research; Child Development

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